June 24, 2016
Our fundraiser of the week is Trevor Kay, who is entering the Ride London 100 mile cycle ride for Action for M.E.
Talking about his own experiences of M.E., Trevor said: “In early 1997, when I was 14, I was diagnosed with M.E. (or Chronic Fatigue Syndrome as it’s otherwise known), which left me trapped in bed for the best part of two and a half years. This caused me to miss the last two years of school, lose contact with friends and generally left feeling completely alone with no real hope for the future, with the very real prospect of never regaining full health.
“There was, and still is, very little known about the illness and there was also a definite, dismissive, stigma attached to it. In the early days, before we found this charity, doctors would advise that exercise was the best remedy, that it was psychological and I needed to just snap out of it. In fact the exact opposite is the case and, thanks to this charity, we discovered that advice would make it worse. The guilt and frustration that this view caused was horrible. Family and friends didn’t understand, no one really had an answer and there really wasn’t much hope for the future. How can you start recovering from something that doesn’t exist?
“But then Action For M.E. came along and my life started to change. They provided essential information on understanding the illness, great advice and, most of all, a feeling that you’re not alone. I was suddenly aware that there are other people the same as myself, it’s not 'all in my head'. We felt we could push for an official diagnosis and an acceptance that is a genuine illness. The charity also put us in touch with some great people, who helped me massively, and the road to recovery started to begin.
“It took a long time, with many setbacks along the way, but I am very lucky to have made a full recovery. Whilst never taking my health for granted, I’m determined to make the most of it.”
You can support Trevor via his JustGiving page.
For a full list of upcoming fundraising events that you can get involved in, visit our events page.
© 2019 Action for M.E. Charity registered
in England and Wales: 1036419.
Registered in Scotland: SC040452.
Get in touch