Highlighting lack of support for people with M.E. in Wales
July 15, 2016
Action for M.E. supported an event hosted by M.E. Support in Glamorgan (MESIG) and sponsored by Julie Morgan AM at the National Assembly for Wales this week.
Christalla Bailey, Vice Chair of MESiG, highlighted the lack of services and support for people with M.E. – there are no specialist NHS services at all – and outlined the group’s vision for service provision in Wales, including
- training of M.E. specialists to provide appropriate treatment,
- comprehensive diagnostic testing to reduce misdiagnosis
- support for people with M.E. to access advocacy, social care and welfare benefits.
Clare Ogden, Head of Communications and Policy, Action for M.E., presented our new five year strategy and asked the AMs, advocates and health professionals present how they could contribute to taking action for people with M.E. in Wales.
MESIG committee member Deidre Penny, whose daughter with M.E., spoke movingly about her family’s difficulties with diagnosis and inappropriate treatment. Deidre shared that it would be her daughter’s birthday (Thursday 14 July) . “She’s been ill for 24 years, and she’ll spend it in a darkened room,” she said.
The event concluded with a Q&A, prompting a lively discussion about current provision and what steps could be taken to move the agenda forward for people with M.E. in Wales.