How can we best support children with M.E.?
October 20, 2017
How can we best design support services that reduce isolation, increase knowledge and awareness, and ensure equality of care for children with M.E. and their families?
Designed and led by children, young people, parents and professionals, Action for M.E.’s Children’s Services Team has launched a consultation to help us answer this question.
You can get involved by taking part in one of four short surveys (please choose the survey that you feel is the best fit for you, rather than taking part in more than one):
- Our survey for children and young people with M.E. (for anyone aged 18 or under) has been designed by nine children and young people, aged from nine to 21 years.
- Our survey for parents and carers of children with M.E. has been designed by two parents whose children have M.E.
- Our survey for health and social care professionals has been designed by an occupational therapist, a consultant nurse experienced in supporting young people with M.E. and their families; and a social worker who has M.E.
- Our survey for education professionals has been designed by a head teacher working in Hospital and Outreach Education, and a parent governor whose child has M.E.
We will use the data gathered to develop services that best meet the needs of children and families affected by M.E., and support the professionals working with them.
EDIT: The deadline for the consultation has been extended to Wednesday 13 December - please do take part if you haven't already. Thank you.
