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"I have lost all friends now"

December 01, 2017

"Fatigue and widespread pain are my worst problems. I'm in a wheelchair, bed-bound for days at a time and in pain 24 hours a day. It means I can't leave the house very often and feel very isolated" says Kay, 46.

"I feel fobbed off by my GP, any illness I have he puts under the umbrella of M.E. I just get more pills and sent home. I have to fight for any real treatment. I use pacing to cope as well as strong pain meds.

"I have carers twice a day to help give me meds, have showers and get dressed. I couldn't cope without them.

"I have lost all friends now. I don't see many of my family as I can't make plans. My husband is my carer so it's badly affected our relationship. Three years after I became ill I lost my job. I was taking too much time off and, as I worked in a bank, the job was too stressful. I no longer have hobbies…I used to love walking with my dog but now I can't. I now use my iPad for games and social media. This is my window to the world."

You can help us reach even more people affected by M.E. by donating to our Big Give Christmas Challenge