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IAFME submits trans-national consensus document to WHO

December 04, 2018

The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and respect: An agenda for change in M.E has the support of over 60 clinicians, researchers, and non-governmental organisations from 28 different countries.

This document has been sent to the World Health Organisation by the Chair of the IAFME and Chief Executive of Action for M.E., Sonya Chowdhury, and the Executive Director of IAFME, Alexandra Heumber, requesting a meeting with representatives to discuss how they can work together to achieve the aims.

The IAFME is calling on the World Health Organisation (WHO) to take leadership for people living with M.E. worldwide who continue to face poor access to healthcare and support.

This consensus document has three aims;

1) To provide an overview of M.E. and the disease burden

2) To highlight barriers to progressing research in the M.E. field

3) To propose an agenda for change

Dr Heidi Nicholl, CEO Emerge Australia and Vice-Chair IAFME said, “This consensus document is a result of collaborative work from international experts, academics and researchers. It represents an important step forward that will underpin the global advocacy led by the IAFME, and has the broad support from stakeholders around the world. We look forward to hearing from the World Health Organisation in response to the Alliance’s request that they co-ordinate a global public health response to M.E.”

For more information please contact Alexandra Heumber, Executive Director IAFME.