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Last chance to enter your research priorities

December 09, 2021

The M.E./CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future M.E./CFS research.

Over 1,700 people have now voted for their top ten M.E./CFS research priorities. With the deadline fast approaching this is your last chance to join them and vote.

This process gives a greater voice to people affected by M.E./CFS to decide the direction of ME/CFS research and funding than has ever happened before.

The ME/CFS Priority Setting Partnership is led by people with M.E./CFS, their supporters and carers, and healthcare professionals working in this area. Through a three-stage process, the partnership will find the top ten research priorities of people affected by M.E./CFS.

How to take part: 

  • ONLINE: Visit the website to take the survey now:
  • BY PHONE: If you need to complete the survey by phone, please call Helen at the 25% ME Group on 0739 240 3591

Help us spread the word

The more people who take part the more power this process will hold. Do your bit to help share the survey before it closes.

If you have a family member or friend who supports someone with M.E./CFS, they can take part too. Ask them to fill in the survey today.

What happens to my votes?

This tried and tested process has one more stage. A workshop is held to finalise the top ten research priorities. This is done to ensure every perspective is considered, including, for example, people with very severe M.E.. We’ll put out more details and give everyone an opportunity to apply to be part of this workshop after the survey closes.

Find out more at

The deadline to enter your research choices is Monday 13th December 2021 at 5pm. Find out more at