August 17, 2017
Less than half of UK NHS boards commission a specialist service for M.E., and Northern Ireland has no provision at all, leaving thousands of desperately ill people unable to access to care and support.
That's the message shared by Action for M.E. on last night's Focal Point Extra, broadcast in Belfast on NVTV.
Clare Ogden, Head of Communications and Policy, was interviewed on the programme alongside M.E. patient Sally Burch, Hope 4 Fibro and M.E. Northern Ireland; and Louise Skelly, Chief Executive, Patient and Client Council.
Sharing the findings of our Spotlight on specialist services report, we highlighted that less than a third of UK commissioners collect any data on the number of people with M.E. in their local area, and questioned how the right level of services can be commissioned if they don't know how many people need those services.
Action for M.E. is now undertaking work to