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M.E./CFS Biomedical Partnership: share your ideas

December 19, 2019

In November, the newly established M.E./CFS Biomedical Partnership met with Medical Research Council and the National Institute for Health Research to discuss an application for funding for a large genome-wide association study (GWAS). If the funding application is successful, the GWAS will collect saliva samples from 20,000 people with M.E.

Having already conducted a survey regarding diagnostic criteria for recruitment into the study, the Partnership is now considering how to reach as many people with M.E. as possible, to invite them to take part in the GWAS. The Partnership says:

"We will need saliva samples from at least 20,000 people with M.E. Because not everyone will meet the study inclusion criteria, we will need to recruit a larger number than this. Do you have ideas that would help us recruit as many people with M.E./CFS as possible? Please tell us all your ideas; we may not be able to use them all but it would be great to have lots to choose from! We also want to hear any concerns or questions you have. We will not be able to respond individually but we will use them to inform the development of the project."

For more information about the planned recruitment process, and to share your ideas, questions and/or concerns, please share read and complete this short survey. Thank you.