News

Text size

Considering the impact of Brexit on people with M.E.
Fundraiser of the week: Franco de la Croix-Vaubois
Sharing research data: Board states our position
Our letter in support of PACE trial data release
Alliance funds our new five-year project
M.E. in the media: M.E. Awareness Month so far
APPG on M.E. invites MPs to learn more about M.E.
M.E. and social care: new film for professionals
UK M.E./CFS Biobank launches today, M.E. Awareness Day
Watch our new awareness raising film 'What is M.E.?'
Presenting evidence to Isle of Man government committee
Latest research projects announced, plus new funding available
Fundraiser of the week - Princess Leia
M.E. in the media: raising awareness, reducing isolation
MEGA M.E. research project: first of its kind in UK
London Marathon - over £26,600 raised
Fundraiser of the week - Mia and Becky
Highlighting M.E. on the global health agenda
M.E. highlighted at new Phenome Centre launch event
Tell us about the impact of the 20m PIP rule
Wellbeing, choice and control: what's your social care experience?
Big data and biomarkers at the CMRC 2016 conference
Fundraiser of the Week: ultra marathon runner Darren Philips
New self-advocacy guide for people with M.E. in Scotland
Brain changes and killer cells: research round-up
M.E. in the media: the double whammy of isolation
Fundraiser of the week - Alan and Malcolm
Taking care of carers: Carers Week 2016
Prof Ron Davis' severe M.E. study: initial findings presented
Fundraiser of the week - Lucy and Phil
Government questioned by UN over austerity measures
Ministers answer parliamentary questions on M.E.
Fundraiser of the week - Michelle Conner
Greater Manchester Neurological Alliance launches
Taking action to raise awareness of M.E. in Wales
Fundraiser of the week - Trevor Kay
Your chance to help shape the new Independent Living Fund for Scotland
June Research Round-up
Speaker's House event to thank and influence tonight
New five year strategy announced at speaker's house event
Neurological Alliance seeking views of people with M.E.
Fundraiser of the week - Dana Boundy
Mass participation event for disabled people launched in London
Minister Alistair Burt responds to question on M.E. and social care
M.E. in the media roundup
Fundraiser of the week - Beth French
Our funded research: latest muscle dysfunction and immune findings
Highlighting lack of support for people with M.E. in Wales
Fundraiser of the week - Siobhan Duff
Has your social care assessment been delayed?
Government encourages more high-quality M.E. research proposals
How can the Government improve support for carers?
Fundraiser of the week - Mark Cockburn
Action for M.E. informs report on welfare benefit entitlement
London Marathon 2017 - your chance to support our work
Bringing M.E.-friendly theatre to your sofa
Fundraiser of the week - Julian Head
PIP change could make claiming easier for people with M.E.
Action for M.E. needs budding designers
New theory on neuro: our latest research round-up
Do you claim PIP? Share your experience
Fundraiser of the week - Jude Adams
Help us raise awareness for Severe M.E. Day today
Welfare support line open again from next week
Fundraiser of the week - Rachel Gill
Neurological Alliance publishes report on primary care
Tribunal rules in favour of releasing PACE trial data
Fundraiser of the week - Oli Jones
Fundraiser of the week - Myck Beddall
Professional versus peer support: August research round-up
Will your MP be at next week's APPG on M.E. meeting?
Highlighting M.E. at the Beauty Unseen event
New research: distinct biological differences in M.E.
Epic swim challenge for supporter Beth French
Fundraiser of the week – Joan White
Collaborating for change: conference booking now open
Millions missing: add your voice to the campaign
New peer-mentoring support network seeks volunteers
Control of welfare benefits in Scotland: have your say
Lloyds Bank staff learn about M.E.
Fundraiser of the week: Rob Norris
PACE data released to M.E. patient via FOI request
Fundraising campaign asks: what's your M.E. marathon?
InterAction 93 is now out: got your copy?
Action for M.E. responds to independent PIP review
Fundraiser of the week – Neil Robinson
M.E. in the media: new challenges for Jude and Beth
Latest ESA statistics show 56% success rate on appeal
Preliminary analysis of newly released PACE data
Winter is coming: the flu vaccine and M.E.
Third CMRC conference starts tomorrow
Action for M.E. attends Millions Missing event in Bristol
MEGA research for M.E./CFS: pledge your support
Clear need for M.E. research investment, says report
Fundraiser of the week - Vikki Howell
New employment resources for people with M.E.
M.E. in the limelight at Beauty Unseen
Fundraiser of the week - Margaret Nightingale
Sonya Chowdhury responds to ‘psychosomatic’ comment
Action for M.E. attends Disability Fight Back Seminar
Calling all artists - InterAction needs you
Registration open for our 2016 annual conference and AGM
Fundraiser of the week - John and Sonia
Post-exertional malaise: our latest research round-up
Fundraiser of the week - Dan Henning
New M.E. technologies: our AGM and conference
Action for M.E. CEO attends IACFS conference
Fundraiser of the week - Northumberland Ghostbusters
Got experience of M.E.? Take part in our new project
Social world podcast: the reality of M.E.
MEGA update: blogs by Profs Perry and Ponting
Action for M.E. respond to Scottish Government consultation
New FITNET trial announced for young people with M.E.
UK Government publishes Work, Health and Disability Green Paper
New MEGA website to feature improved accessibility and engagement
Fundraiser of the week - Matt Robinson
Celebrating SEE M.E. project success today in Bristol
Christmas Angels wanted: get in touch today
ME/CFS International Alliance protests Shorter lecture
2016 conference and AGM registration closes Friday
Employment project nominated for second national award
Fundraiser of the week - Jane Marlene Lowe
Watch our conference from home: just four days to go
National Institutes of Health responds on M.E. lecture
Improve, inspire and invest: our strategy for change
Action for M.E. signs letter against £30 ESA cut
Have your say on benefit sanctions today
Why we are supporting the MEGA research project
PhDs and postdoc M.E. research funding: apply now
New Chair and Trustees welcomed to our Board
Fundraiser of the Week - Danny O'Donnell
New MEGA research website now live
Bath Half Marathon - help us support people with M.E.
Raising awareness with the Department of Work and Pensions
Chance for people with M.E. to shape Scottish benefits
Stop M.E. stealing lives: donate to our Research Appeal
Fundraiser of the week - Jade Turner
Fundraiser of the week - Louise Fuller
Share how M.E. has affected your employment
Mentor M.E. peer support project needs volunteers
Using your experience of M.E. to support others
Christmas 2016 InterAction out now
M.E. and social care inquiry: can your MP attend?
Fundraiser of the week - Linda Hammick
December research news: biobank, CMRC report and more
Fundraisers of the Week: too many to name!
We could not achieve what we do without you: thank you
Bath Half Marathon - help us support people who have M.E.
Fundraiser of the week - Simon Dooley
Help shape DWP policy at London disability event
Fundraiser of the week - Lynsey Gow
Fundraiser of the week - Caroline Skinner
Work, health and disability survey: thank you!
Fundraiser of the week - Natalie Heron
Could you benefit from peer mentor support?
Raising awareness of M.E. at Naidex care and disability event
Evidence for benefit cuts is "ambiguous at best"
Fundraiser of the week - Georgia Pearce
Take part in the Big Benefits Survey
Fundraiser of the week - Susan and Brian
Highlighting the need for greater understanding of M.E.
Fundraiser of the week - Karen Risidore
Research finds link to dysfunctional immune system
Help us raise another record-breaking total in the Ride London 100
Educating GPs about M.E. at top neurology conference
Fundraiser of the week - Class 9ML
Information and support line - new opening hours
Survey into false accusations against families of young people with M.E/CFS launched
Working with Naidex to raise awareness of M.E.
Fundraiser of the week - Peter Vaiders
Ask your MP to oppose PIP changes and ESA cuts
Free prescriptions campaign for long-term conditions launched
Action for M.E. responds to 2017 budget
Impact of M.E. highlighted in Welsh Assembly
Fundraiser of the week - Tania Parfitt
Action for M.E. launches new Children’s Services Team
Letter to Psychological Medicine re the PACE trial
Survey highlights need for greater understanding of M.E. among GPs
Fundraiser of the week - Bill Haywood Smith
GPs enthusiastic to learn more about M.E.
Experiences of PIP claimants needed for new inquiry
Fundraiser of the week - Salli Murray
Children’s Services Team to pick up AYME survey data
Action for M.E. launches Children's Services Team today
New project to improve health and social care in Scotland
Would you send an email to help educate GPs about M.E.?
Action for M.E. submits evidence to PIP review
Fundraiser of the week - Amelia Crawford
Information and support: how to contact us
Could you be our new Senior Fundraiser?
Fundraiser of the week - Amanda Wanless
Forums for carers, parents and young adults launched
Severely affected in MEGA are "absolutely essential"
Beth French to host Gala dinner for Action for M.E.
Do you want your GP to learn more about M.E.?
Research round-up: potential biomarker for M.E.
Launch of new private forums delayed
Fundraiser of the week - Claire Spake
Your guide to Employment and Support Allowance changes
Fundraiser of the week London Marathon runners
M.E. must continue to be classified as neurological
CMRC conference comes to Bristol - tickets available
Action for M.E. submits evidence to PIP inquiry
Fundraiser of the week - Phil Guy
May is M.E. Awareness Month: get involved
PLOS ONE issues Expression of Concern on PACE
One million steps in 100 days for people with M.E.
Fundraiser of the week - Pippa Stacey
Will you pledge to show the world that #MEmatters?
New project to lead change launched in Scotland
Action for M.E. informs Scot parliament debate on M.E.
New M.E. resource for pharmacists coming this month
Raising awareness for M.E. Awareness Day
Fundraiser of the week - Yasmin
Opposing cuts to disability benefits
Holly walks 13.6 miles to school for M.E. awareness
Our Board of Trustees on CBT, GET and PACE
Paediatric conference today: sharing our concerns
Research round-up: faulty pain receptors and more
Fundraiser of the week - Newby family
Our CEO talks about being parent to a child with M.E.
Action for M.E. raising awareness on BBC Radio today
Our London Marathon runners raise over £22,000
Action for M.E. launches pharmacy resource
M.E. Awareness Month 2017 - the difference you made
Reablement not appropriate for people with M.E.
PIP change could help people with M.E.
Fundraiser of the week - Rachel Ephgrave
General Election 2017: how will you be affected?
M.E. pharmacy guide sent to over 10,000 professionals
GPs report greater understanding of M.E. after webinar
Next government must do more to help people with M.E.
Fundraisers of the week – Elizabeth and Sally Keyworth
Support available for carers of people with M.E.
New scheme to help you get a seat on London transport
Action for M.E. closed Thursday for staff training
Fundraiser of the week - Alice Jones
Families affected by M.E. coming to BBC’s File on Four
Bristol patients learn about M.E. and welfare benefits
Action for M.E. comment on GETSET study in Lancet
Fundraiser of the week - The BoneShakers
BBC highlights Action for M.E. survey
Action for M.E. to call for review of NICE guidelines
Families affected by M.E. speak out on File on 4
Families talk M.E. and child services on BBC Radio
Research round-up: genetics, comorbidities and more
Fundraiser of the week - Wil Collins
Visit Drayton Manor Park and help support our work
Holiday advice for parents of people with M.E.
Fundraiser of the week - Wendy Fisher
Action for M.E. to NICE: guideline must be reviewed
Fundraiser of the week - Matthew Driver
Attend both days of CMRC conference: register now
Fundraiser of the week - Alistair Houghton
Tell NHS Wales about your access to health services
M.E. healthcare in Scotland: share your views
NICE guideline on CFS/M.E. must be reviewed
New report: specialist NHS services for M.E. in the UK
Help shape our work in Scotland: event in August
Fundraiser of the week - Clive and Gina
Blood biomarkers may help diagnose CFS
Fundraiser of the week - Kelly Hooper
Research symposium to stream live this Saturday
Action for M.E. calls for improved Scot health service
Fundraiser of the week - Tim Reynolds
Severe M.E. focus on BBC Radio Suffolk tomorrow
CMRC conference update: filming presentations
M.E. in Northern Ireland: our NVTV interview
#CMRC2017 update: Prof Jose Montoya confirmed
Fundraiser of the week - Emma Dixon
Guide to severe M.E. now available in our store
All Party Parliamentary Group on M.E. update
Fundraiser of the week - Wendy Tideswell
Latest research: hunting for biomarkers
Research conference registration closing soon
Do you know how to support an employee with M.E.?
Fundraiser of the Week - Siobhan Mays
Updated information for teachers and school staff
Join Action for M.E. for the Great Birmingham Run
Our 2017 AGM and conference: programme confirmed
Fundraiser of the week - Great North Run team
Motion calls for review of the NICE guideline
Add your voice to those calling for action on PIP
Senior social workers to learn about impact of M.E.
Researchers from the UK, US and beyond at #CMRC2017
Fundraiser of the week - Ruth Johns
NICE must recognise M.E. is not functional
NICE guidelines on CFS/M.E. to be reviewed
SMILE Trial results published: Action for M.E. comment
Fundraiser of the week: Matthew Lindley
Julia Newton to hold Q&A on M.E.
SEN magazine features report into false accusations
Updates on NICE review of CFS/M.E. guidelines
M.E. costs UK economy over £3 billion
Fundraiser of the week - Sam Wilkins
Your chance to take part in PIP and ESA inquiry
Fundraiser of the week - Adele Currie
Should I get a flu jab if I have M.E.?
Call for biomedical PhD research proposals now open
Join us for M.E. event at the Royal Free Hospital
Applying for PIP and ESA: share your story
Fundraiser of the Week - Amanda Wanless
Exclusion from re-assessment: ESA criteria released
CMRC Board meeting: conference and next steps
See award-winning M.E. doc Unrest at our events
How can we best support children with M.E.?
Fundraiser of the Week: Jon Winter
Campaigning for M.E. at Safe in School lobby day
Research round-up: defining M.E., recovery and more
Your chance to help shape our children's services
Teachers, your opinions are needed
Fundraiser of the Week - Ben Brockway
One week left to share your experience of PIP or ESA
Could you be a Christmas Angel for someone with M.E.?
Double your donation: the Big Give Christmas Challenge
Unrest screening plus Q&A in Bath on 14 November
Fundraiser of the week: Matthew Inge
Latest research: M.E. cellular bioenergetics impaired
PIP changes could benefit people with M.E./CFS
Action for M.E. attending launch of Oceans 7
New webinar for healthcare professionals coming soon
Fundraiser of the week - Chelsea Higgott
Join Team Action for M.E. for the Bath Half
Raising concerns about M.E. in Scottish Parliament
Watch our AGM live tomorrow morning from 10.25
Finance, children's services and Unrest film at AGM
Fundraiser of the Week - David Fisher
Webinar for healthcare professionals next Thursday
Autumn Budget 2017: what to expect
Fundraiser of the week - Meike Scheller
Your donations doubled for Big Give next week
#GiveBig for M.E. and see your donation doubled
"Action for M.E. has helped me massively"
"It's hard seeing all your friends living their lives"
Big Give donations top £100,000
"I have lost all friends now"
Fundraiser of the week - Sean Weller
"I feel like I walk a tightrope with my energy levels"
Big Give Christmas Challenge raises over £121,000
Updating the NICE guideline: next steps
Christmas card competition: send your festive photos
Fundraiser of the week: Manus Noble
Webinar recording now online
Government sets out disability employment strategy
InterAction 97 is now out: got your copy?
Families affected by M.E. attend Downing Street
Fundraiser of the Week - Lauren Kendrick
DWP drops target for upholding benefit decisions
Unrest now available to buy on DVD
Fundraiser of the Week: James Reay and Simon Dooley
New webinar for health professionals coming this month
Fundraiser of the week: Hayley Bosley
#CMRC2017 conference report now online
Join us for Walk with M.E. 2018
InterAction needs you: share your ideas and tips
Paediatric M.E. research study: alternative funding
Fundraiser of the week - Bethany and team
International M.E. advocacy: our latest project
NICE guideline: Action for M.E. at scoping meeting
Walk with M.E. - Natalie's story
Unrest to be screened at Scottish Parliament
Fundraiser of the week - Liese
Welfare line gets new opening hours 29 January
Office closed for staff training Tuesday and Wednesday
Latest research: criteria, course of illness and more
Fundraiser of the week - Gill
Share your experience of chronic pain
Bethany’s Walk with M.E. challenge
Welfare line closed today
Fundraiser of the week - Libby
Views on PIP needed in Northern Ireland
PACE trial to be debated at Westminster
Fundraiser of the Week - Rotary Club of Baldock
PIP and ESA report: "Process needs urgent change"
Fundraiser of the week - Nick Biddle
NICE announces next steps in guideline update
PACE trial Westminster debate - our summary
New PhD funding for biomedical M.E. research
Better support needed for M.E. in schools
Discussing M.E. on BBC Five Live today
Keeping in touch with Action for M.E.
CMRC update: new purpose, objectives and values
Scotland survey needs your input
The Big Give keeps on giving: thank you!
Fundraiser of the week - Jemma Storey
Our CEO named in Top 100 West Women of the Year 2018
Action for M.E. on BBC Radio Bristol today
Fundraiser of the week - Chloe Salanson
Raising awareness of M.E. at JobCentre Plus
What impact has claiming benefits had on your life?
PACE update: latest analysis and comment
Dangers of GET highlighted in letter to The Times
Fundraiser of the Week - Ella Walters
Our latest Cheers update, by and for Young Members
Your experience of health and social care for M.E.
Research round-up: autoimmune disease and M.E./CFS
Call for Science Media Centre to retract factsheet
Fundraiser of the Week - Katie Howell
Welfare line temporarily closed
Millions Missing Protest coming to Geneva
Fundraiser of the week - Myurah Nathan
"I was desperate to talk to someone who understood"
Info and Support Line update: revised hours
Fundraisers of the week: our London Marathon team
What was the impact of your benefit sanction?
Invite your MSP to Scottish Parliament event
International advocacy work "very encouraging"
Fundraiser of the week - Julia Ferguson
Helping you explain your health care needs
Action for M.E. meeting with Minister for Children
Registration now open for 2018 CMRC conference
Fundraiser of the week - Sophie Funnell
Your chance to show the world that #ThisisME
National Mass Observation Day needs your diaries
Patients and professionals show MSPs: This is M.E.
Ask your MP to show support for M.E. Awareness Week
Fundraiser of the week - Walk with M.E.
IAME's letter to the WHO for M.E. Awareness Day
Walk with M.E. raises over £3,300
Fundraiser of the week - Leanne Toward
Have you received SEND support in school?
M.E. highlighted at the 71st World Health Assembly
New biomedical research PhD launched in Scotland
Taking action on Personal Independence Payment
Action for M.E. attending NICE guideline meeting
Fundraiser of the Week - Lucy Goodwill
People with M.E. must be heard, says NICE committee
Welfare line to re-open soon
Fundraiser of the week - Claire Green
Our latest funded PhD: brain function in M.E.
Scottish Parliament event recording now online
Westminster treatment and research debate confirmed
Commons debate on M.E. confirmed for 24 January
Commons debate on M.E. at 2pm today
Latest research roundup: Rituximab effects and more
Fundraiser of the week - Leanne Towart
InterAction now available in audio format
Experiences of M.E. featured in Dear Chronic Illness
Fundraiser of the week - Rob Bold
Financial help for students to attend CMRC 2018
Action for M.E. to sign open letter to Lancet
Parliamentary debate on M.E. - our summary
NICE ask for input on guideline on M.E./CFS
Fundraiser of the week - Adam Chivers
Correcting some inaccuracies about us and our work
NICE consultation feedback now open to carers
2018 research conference programme announced
Fundraiser of the week - Haywoods Group
First episode of M.E., myself and I out now
Raising awareness with Work and Pensions Committee
Fundraiser of the week - Katie Collins
Support available for students with M.E.
New study brings M.E. test closer
Action for M.E. launches advocacy service
Fundraiser of the week - Peter Wharton
Fundraiser of the Week - Devonshire House
Notts County FC to help raise awareness of M.E.
Action for M.E. responds to NICE consultation
GP system updated to reflect M.E. as neurological
Fundraisers of the week - National Citizens Service
Today is Severe M.E. Day
Meet others with M.E. in Glasgow at our taster session
Fundraiser of the week - supporting severely affected
Tributes paid to Professor Norman E. Booth
Fundraiser of the week - Elizabeth Carswell
Book now: UK CMRC conference 2018
Raising awareness of M.E. in a school near you
M.E. on BBC Radio London Drivetime show today
Our promises to children and young people with M.E.
Fundraiser of the week: Renée de Nève
Closure of phone lines - Friday 31 August
Fundraiser of the week: David Furness
Come on, you Pies! Action for M.E. and Notts County FC
Join us at Notts County FC this month
InterAction 99 has been released
Fundraiser of the week: Rob Findlow
Scottish Liberal Democrats adopt new policy on M.E.
Action for M.E.'s 2018 AGM and Conference
Fundraiser of the week: Notts County FC
Saying thank you to the Notts County FC community
Managing type 2 diabetes alongside M.E.
The 2018 CMRC conference is underway
Fundraiser of the Week: Robert Godsell
Action for M.E. and Forward M.E. at GP conference
British 10k total
Out and about with M.E.
Fundraiser of the Week: Scarlett Tomes
Action for M.E. and Notts County FC: the last match
Highlighting M.E. at RCGP conference today and Friday
Didn't get a London Marathon ballot place? Run for us!
CMRC2018 conference: first films now available
Fundraiser of the week - Francis and Liza
InterAction 99 available now on Soundcloud
Applications invited for CMRC Patient Advisory Group
Welfare line update: temporary two-week closure
Fundraiser of the week: Grant Watling
Welfare debate: Let us contact your MP
NICE publishes final scope for M.E./CFS guideline
Fundraiser of the week- Lizzie Carswell
Celebrating ten years of Forward M.E.
NICE guideline scope and committee: update & comment
Fundraiser of the week- Leigh Walker
Regional Advocacy Service
Be an angel this Christmas: Join now
Action for M.E. annual AGM conference: Get involved
Welfare Advice and Support Service update
Mentor M.E. confirmed funding from ALLIANCE
Great North Run 2019 (Charity fundraising places)
Fundraiser of the week- Clare Wills
Have your say: new Standards for Neurological Care
Latest Research: post-exertional malaise & more
Thank you to everyone who participated in RideLondon
Welfare Advice and Support Service now open
NICE guideline development committee update
Can you help? Run a stall this Christmas
Fundraisers of the week - Bowls Cornwall club
Temporary phone-line maintenance
We need your help! Connect M.E. survey
Big Give Christmas Challenge- what you need to know
Improving lives, inspiring change: AGM & annual report
CMRC Board meeting: latest update
IAFME submits trans-national consensus document to WHO
ME Highland and Islands Network partnership
Aged 13 to 23 and have M.E./CFS in Scotland?
Info and Support Service: welfare benefits referrals
Commons' Science and Technology Committee enquiry
Fundraiser of the week - Rebecca
Fundraiser of the week - Emily
Our new years resolutions
Fundraiser of the week - Alice
Action for M.E. hosts DWP spotlight training
Forward ME's CBT and GET patient survey
Join us for Walk with M.E. 2019
Fundraisers of the week - EHU Marvel Society
LGO ruling on access to education
Scottish government launches National Action Plan
Have your say - support for your M.E. in school
InterAction 100 now available in audio format
Parliamentary debates on M.E. on 24 January
Important update: our Information and Support Service
Minutes now available: CMRC January board meeting
Scottish Parliament discussion of M.E. during Petitions Committee
What you need to know about Winter Fuel payments
Fundraisers of the week - Walk with M.E. teams
InterAction needs you: managing sleep
Health Research Authority on the PACE trial
Educate M.E. awareness raising session South Ayrshire
Fundraiser of the week - Bron's Vegan Brownies
Scottish National Action Plan consultation - our response
NICE guideline review: for children and young people
Latest research: Onset patterns and more
Department of Transport Blue Badge eligibility workshop
Have you received good or poor care?
M.E./CFS in Parliament: more written questions
Combating isolation - our new young people's forum
Fundraiser of the week: Alice, in honour of Katie
Fundraiser of the week - Oliver Vaughan-Jone
M.E. inspiration on International Women's Day
Educate M.E. reflection and development meeting
Aged up to 19 and living with M.E.? Join our new forum
Commons M.E. debate discussed on BBC Radio Bristol
Patients and researchers moving M.E. research forward
Fundraiser of the week - Nick West
#ShareGoodScience in response to The Sunday Times
Walk with M.E. – Bethan’s story
Medication law changes to pregabalin and gabapentin
Fundraiser of the week - Sally
Bath Half Marathon 2019 - Thank you
M.E. in Sunday Times: "I've been made to feel a burden"
InterAction feature - 'M.E. in the workplace Q&A'
Become a volunteer advocate
Fundraisers of the week - Holly's Team
Office closure - Monday 1 and Tuesday 2 April 2019
Results of the Forward ME survey for CBT and GET
Our new regional advocacy service: what you need to know
Fundraiser of the week - Charles Vaughan-jones
Action for M.E.'s response to the Ofsted Consulation
Information and welfare benefits: our services
Our fundraiser of the week - Martyn
Our staff Walk with M.E. team – in honour of the SAMS
Our welfare benefits adviser highlights issues of WCA
Office closure for Easter Bank Holidays 19 and 22 April 2019
Fundraisers of the week - London Marathon 2019 Runners
Work Capability Assessment debate -"It's the system that is flawed”
Millions Missing Bristol 2019 - 11 May
Walk with M.E. - Paige's Story
Changes to our Information and Support and Welfare services
May is M.E. Awareness Month
Are you missing M.E.? - Martin's story
Action for M.E.'s 'Big survey'
Social media takeover with Evan
Fundraiser of the week - Miyah
A day in the life of Ev
Meet M.E. drop-in day, Inverness: book your free place
Are you missing M.E.? - Naomi's story
Fundraiser of the week - Rebecca Almodovar
M.E. awareness month - what we've achieved so far and what's next
Are you missing M.E.? Jo's story
Social media takeover with Rose
Fundraiser of the week - Anne Roche
'How can I help?' - our new resources for teachers
#AreYouMissingMen?
Man with M.E. - #AreYouMissingMen?
"Great misery has been inflicted" says UN reporter
#AreYouMissingMe? - Alice's story
Fundraiser of the week - Jo in honour of Meg
Office closure on Monday 27 May
Scottish Petitions Committee discussion on M.E./CFS
What your support has achieved this M.E. awareness month
To all of our dedicated volunteers – thank you.
Information support and welfare benefits service temporary closure
Craig's story - "More could be done for carers"
Fundraisers of the week - Liz and Helen
How digital art has made painting accessible for Mathilde Vhargon
What support is available for carers in the UK?
Meet M.E. - our drop in event in Inverness
Walk with M.E. 2019 – conclusions and successes.
Carers week - Graham's story
Happy Birthday Miyah - Our fundraiser of the week
Tools to help you talk about your M.E./CFS
How can I get connected this Loneliness Awareness Week?
Fundraiser of the week - Gemma and her dog Walter
How can you can support your students with M.E./CFS?
Fundraiser of the week - Nicola's skydive
Info and support opening hours: today to Mon 29 July
Office closure on Thursday 4 July
Fundraisers of the week - Clive and Chrissie
Save the date: Action for M.E.'s 2019 AGM and conference
Our fundraisers of the week - Ride London 2019
New report launched on the impact of welfare changes
Fundraiser of the week: Joanne Watkinson
Two weeks left to take our Big Survey
Take our survey, share your experiences
Campaign success – Blue Badge Guidance improved
Drawing invisible illnesses
Managing your M.E./CFS on the hottest day of the year
Fundraiser of the week - Alan Coates
Do you have M.E. and Fibromyalgia?
Fundraiser of the week - Thunderbolt Bristol
Fundraiser of the week - Hope
Lia Pas - finding creativity in the symptoms
Today is Severe M.E. Understanding and Remembrance Day
International Youth Day: support Hannah's petition
The back to school rush - how we can help
Fundraisers of the week: our Ride London 2019 team
M.E. charities come together for better care in Scotland
You can't see my illness - that doesn't mean it's not real
Voices from our Big Survey: book your conference place
Our AGM and conference - meet the panel
Involving young people in the NICE guideline development
Calling all knitters – gift an angel this Christmas
Pass on something wonderful - Your legacy of hope
Fundraiser of the week - Melanie Claxton
Products to help when showering feels like running a marathon
I am Caitlin - not my disability
'How can I help?' - M.E. awareness raising in schools
Fundraiser of the week - Sam's cycle ride
My body is a “mask” covering up my symptoms and pain.
Do you need an advocate? Empowering you to have your voice heard
Fundraiser of the week - Lauren's hook a duck stall
Our AGM and conference - what workshops you can attend
Run for us - London Marathon 2020
Bella Magazine - Please Believe ME
Fundraiser of the week - Tim takes on Hadrian's Wall
Cochrane review of GET: our concerns
National Poetry Day 2019 - Truth
Fundraiser of the week - Chelsea
Watch our AGM and conference live online next week
How to attend our AGM and Conference via Webinar
Fundraisers of the week - Team Banana
Fundraiser of the week - Sal
Early-bird registration now open: CMRC 2020
M.E. research: HRA reviews ethical concerns
Attending the RCGP annual conference as part of Forward-ME
Our submission to the NICE call for evidence
Fundraisers of the week - Paige and Hamish
Watch our AGM & conference 2019 on YouTube
InterAction needs you: Christmas customs
Temporary office closure on 31 October
Fundraiser of the week - Amber
House of Commons Petitions Committee report on fireworks
Meet M.E. - our second drop-in event in Inverness
December general election - key dates
Edinburgh ME Self Help Group's AGM and open meeting
ME/CFS Biomedical Partnership to apply for funding
Fundraiser of the week - David's half marathon
Fundraisers of the week: Andrew and Rob
GP home visits under threat
Fundraiser of the week - Elinor's 21st Birthday
M.E. and school: how can I help? Awareness raising session.
The Big Give Christmas Challenge 2019 - FAQ
No Isolation - AV1 Robot steering group
Only one week to go until the Big Give!
ME/CFS Biomedical Partnership PPI Steering Group Update
Parliamentary engagement: taking a stand for M.E.
Fundraiser of the week - Big Give 2019 pledges
The Big Give Christmas Challenge 2019 is here!
Because of you... we've reached our matchpot
Because of you, our Big Give total tops £140,300
General election: next steps
Fundraiser of the week: Rachel's coffee morning
General election: looking forward
Attending the CMRC’s sixth conference
M.E./CFS Biomedical Partnership: share your ideas
Say yes to biomedical research: show your support
Information and support over Christmas and New Year
Mum Sarah: "It completely turned our situation around"
MPs come together to support M.E. Is yours on board?
CMRC conference: Physios for M.E. & medical education
Holly: "Walk with M.E. seemed like the perfect fit"
Fundraiser of the week: Genevieve Miles
Update on M.E. in WHO's latest disease classification
Fundraiser of the week: Sarah Middleton and friends
Michael: "Mentor M.E. meant I was less isolated."
Team Action for M.E. seeks Bath Half runners
Fundraiser of the week: Bethan Jones
Neurological care and support in Scotland update
Fundraiser of the week: Sarah and her team mates
International #WomenInScience Day: CMRC speakers
Meet M.E. drop-in in Fife on 12 March: all welcome
Fundraiser of the week: beer can man Nick West
Scottish Health Council survey of M.E. in Scotland
Updated resource: pacing for people with M.E.
Free research workshop in Bristol: all welcome
Will your MP attend the APPG for M.E. in March?
Fundraiser of the week: Belinda and her handmade cards
Fundraiser of the week: Hazel Wilcox and team
Roger Siddle appointed Chair of Board of Trustees
Update on Coronavirus and M.E.
Fundraiser of the week: Marathon-running Tanya
Research conference this week: follow online
Exciting new project to set M.E. research priorities
2020 CMRC conference videos now available
Fundraiser of the week: Our Bath Half Team
APPG on M.E. update: biomedical research meeting
Fundraiser of the week: The Thunderbolt
Coronavirus Bill and Care Act concerns: tell your MP
Action on urgent need for priority shopping
Fundraiser of the week: birthday girl Jo
Priority shopping campaign UPDATE
UPDATE Priority shopping: "extremely vulnerable" list

Neurological Alliance seeking views of people with M.E.

July 01, 2016

The Neurological Alliance is asking people with M.E. and other neurological illnesses to help them influence policy makers and service providers by filling out their new patient experience survey.

The Alliance, of which Action for M.E. is a member, hopes to collect vital information about the experiences of care received by people affected by neurological conditions to help them understand how much progress has been made in improving neurological services.

The survey is open until September 30 and the Alliance welcomes responses from anyone with a neurological condition living in England.

They will be using the survey findings to feed into a report early next year. The report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.

News

Neurological Alliance seeking views of people with M.E.

Categories