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Scientific debate around PACE continues
New self-advocacy resource out now!
Close to collapse report on M.E. and social care
Our new website is live: what do you think?
Action for M.E. helps inform BBC Doctors script
Action for M.E. project shortlisted for national award
Services for people with neurological conditions
Martine raises £5,000 for Action for M.E.
Rachel's lamp-post challenge for M.E.
Future Delivery of Social Security in Scotland report
Newly diagnosed booklet endorsed by NICE
Lancet publishes PACE trial letters & authors response
Fundraiser of the week - Ryan Meade
BBC and Times report on CFS in 16-year-olds
Action for M.E. calls on Govt to stop cut to ESA
Share your ESA or PIP experience with the PAC
The Sun prints AFME letter about ‘yuppie flu’ headline
Sleep, symptoms and more: research round-up
CMRC conference 2015 report available in full
Could you be an Action for M.E. Trustee?
Study finds CFS patients six times more likely to commit suicide
Sharing research data: Board states our position
Blue Badge consultation in Wales: Action for M.E. responds
Ride London and London Marathon: run or cycle for us
Support parliamentary inquiry on M.E.
ESA WRAG update
Action for M.E. helps educate local councils on needs of people with M.E.
Our letter in support of PACE trial data release
Fundraiser of the week - Geoff Jackson
Are you feeling creative?
Last chance to stop the cuts to ESA WRAG
Brain activity, sub-groups and more: research round-up
M.E. matters now: a manifesto for Scotland
PIP failing to meet needs of people with M.E.
Mandatory reconsideration: share your views
Fundraiser of the week – Teri Howson
Live show to help raise awareness of M.E.
Fundraiser of the week - Bath Half Marathon runners
Stuart Murdoch to give talk at launch of our new resource
Registration now open for 2016 CMRC conference
Meeting with disability minister Justin Tomlinson today
Budget 2016: opposing cuts to welfare benefits
Fundraiser of the week - Fraser Claughton
Britannia’s £2,500 donation kick-starts year of support
Alliance funds our new five-year project
APPG to host awareness-raising drop-in: invite your MP
CEO blog: Prof George Davey Smith on the Grand Challenge
Update on QMUL and sharing research data
New self-management resource for people with M.E. launched
Fundraiser of the week - Katy Fallon
M.E. in the media: ways of living with the illness
Election campaign: our M.E. Matters Now manifesto
The Equality Act 2010: the impact on disabled people
BBC Panorama on disability benefits: can you help?
Potential M.E. biomarkers: research round-up
Fundraiser of the week - Leigh Hovey
Share you story to raise awareness of M.E.
M.E. in the media: Montoya and Hornig on research
M.E. matters now: Scotland, Wales and Northern Ireland elections
Our Speakers House reception in June
Fundraiser of the week - Laura Matthews
InterAction 92 is out this week
Fundraiser of the week - Tom Martin
M.E. in the media: misnomers, poverty and disabled darts
Daniel Zeichner MP chairs policy roundtable into social care for M.E.
Tribunal hearing re release of PACE data starts today
Applications now open for Chair of Board of Trustees
Please support our London Marathon runners this Sunday
M.E. in the media: immune system confused by bacteria?
M.E. manifesto: has your candidate pledged their support?
Don't ignore M.E.: our new leaflet and poster
Comparing M.E. and MS: April research round-up
CEO blog: walking through this world together
Want your MP to understand M.E. better?
Fundraiser of the week - Bromley VoluntEARS
It's polling day: has your candidate seen our M.E. manifesto?
Disability employment gap inquiry: Action for M.E. responds
Fundraiser of the week - Jazz Doughty
Don't ignore M.E. this M.E. Awareness Week: take action now
M.E. in the media: M.E. Awareness Month so far
APPG on M.E. invites MPs to learn more about M.E.
M.E. and social care: new film for professionals
UK M.E./CFS Biobank launches today, M.E. Awareness Day
Watch our new awareness raising film 'What is M.E.?'
Presenting evidence to Isle of Man government committee
Latest research projects announced, plus new funding available
Fundraiser of the week - Princess Leia
M.E. in the media: raising awareness, reducing isolation
MEGA M.E. research project: first of its kind in UK
London Marathon - over £26,600 raised
Fundraiser of the week - Mia and Becky
Highlighting M.E. on the global health agenda
M.E. highlighted at new Phenome Centre launch event
Tell us about the impact of the 20m PIP rule
Wellbeing, choice and control: what's your social care experience?
Big data and biomarkers at the CMRC 2016 conference
Fundraiser of the Week: ultra marathon runner Darren Philips
New self-advocacy guide for people with M.E. in Scotland
Brain changes and killer cells: research round-up
M.E. in the media: the double whammy of isolation
Fundraiser of the week - Alan and Malcolm
Taking care of carers: Carers Week 2016
Prof Ron Davis' severe M.E. study: initial findings presented
Fundraiser of the week - Lucy and Phil
Government questioned by UN over austerity measures
Ministers answer parliamentary questions on M.E.
Fundraiser of the week - Michelle Conner
Greater Manchester Neurological Alliance launches
Taking action to raise awareness of M.E. in Wales
Fundraiser of the week - Trevor Kay
Your chance to help shape the new Independent Living Fund for Scotland
June Research Round-up
Speaker's House event to thank and influence tonight
New five year strategy announced at speaker's house event
Neurological Alliance seeking views of people with M.E.
Fundraiser of the week - Dana Boundy
Mass participation event for disabled people launched in London
Minister Alistair Burt responds to question on M.E. and social care
M.E. in the media roundup
Fundraiser of the week - Beth French
Our funded research: latest muscle dysfunction and immune findings
Highlighting lack of support for people with M.E. in Wales
Fundraiser of the week - Siobhan Duff
Has your social care assessment been delayed?
Government encourages more high-quality M.E. research proposals
How can the Government improve support for carers?
Fundraiser of the week - Mark Cockburn
Action for M.E. informs report on welfare benefit entitlement
London Marathon 2017 - your chance to support our work
Bringing M.E.-friendly theatre to your sofa
Fundraiser of the week - Julian Head
PIP change could make claiming easier for people with M.E.
Action for M.E. needs budding designers
New theory on neuro: our latest research round-up
Do you claim PIP? Share your experience
Fundraiser of the week - Jude Adams
Help us raise awareness for Severe M.E. Day today
Welfare support line open again from next week
Fundraiser of the week - Rachel Gill
Neurological Alliance publishes report on primary care
Tribunal rules in favour of releasing PACE trial data
Fundraiser of the week - Oli Jones
Fundraiser of the week - Myck Beddall
Professional versus peer support: August research round-up
Will your MP be at next week's APPG on M.E. meeting?
Highlighting M.E. at the Beauty Unseen event
New research: distinct biological differences in M.E.
Epic swim challenge for supporter Beth French
Fundraiser of the week – Joan White
Collaborating for change: conference booking now open
Millions missing: add your voice to the campaign
New peer-mentoring support network seeks volunteers
Control of welfare benefits in Scotland: have your say
Lloyds Bank staff learn about M.E.
Fundraiser of the week: Rob Norris
PACE data released to M.E. patient via FOI request
Fundraising campaign asks: what's your M.E. marathon?
InterAction 93 is now out: got your copy?
Action for M.E. responds to independent PIP review
Fundraiser of the week – Neil Robinson
M.E. in the media: new challenges for Jude and Beth
Latest ESA statistics show 56% success rate on appeal
Preliminary analysis of newly released PACE data

Neurological Alliance seeking views of people with M.E.

July 01, 2016

The Neurological Alliance is asking people with M.E. and other neurological illnesses to help them influence policy makers and service providers by filling out their new patient experience survey.

The Alliance, of which Action for M.E. is a member, hopes to collect vital information about the experiences of care received by people affected by neurological conditions to help them understand how much progress has been made in improving neurological services.

The survey is open until September 30 and the Alliance welcomes responses from anyone with a neurological condition living in England.

They will be using the survey findings to feed into a report early next year. The report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.

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Neurological Alliance seeking views of people with M.E.

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