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New five year strategy announced at speaker's house event

June 30, 2016

More than 100 guests gathered at Speaker’s House yesterday evening to hear how Action for M.E. will take action to end the ignorance, injustice and neglect experienced by people with M.E.

This provided an opportunity to thank some of our supporters and donors, and raise awareness of the impact of M.E. among invited journalists, business leaders, policy-makers, parliamentarians, and research and healthcare professionals.

Hosted by Chair of Trustees, Alan Cook CBE, by kind permission of the Speaker of the House of Commons, the Right Honourable John Bercow MP, the event saw the launch of our new five-year strategy.

“I am lucky to be here this evening,” said Action for M.E. volunteer Catherine Hale, who shared her experience of M.E. in a moving and courageous speech. “Some people hit with the full ferocity of this disease as I was, or worse, make no improvement at all. They remain in that limbo existence for years, and even decades.”

Our Chief Executive Sonya Chowdhury set out some of the activities that will form part of Action for M.E.’s new five-year strategy for change.

“Firstly, we will improve the lives of people with M.E. by continuing to provide targeted information through our Online M.E. Centre and our welfare information and support service,” said Sonya. “Over the next five years, we will seek to launch a new national advocacy service and develop new services to directly reduce the isolation experienced by many people with M.E.

“Secondly, alongside responding to the direct support needs of people with M.E., we will inspire others at all levels to ensure a better understanding, gain more influence and take more action to tackle the impact of M.E. We will work at a national and international level to influence and enhance the care and support that people in the UK receive.

Thirdly, we will invest in change. We will raise more money to enable us to reach more people, have more impact and be more effective, and we will work to secure more funding in research through driving partnerships and developing new relationships.

“To make change happen at the level that’s needed, we must create a critical mass, a stronger voice to support and advocate for the change that people with M.E. so desperately need and deserve.”

We are enormously grateful to everyone who attended last night’s reception.

We also thank the Right Honourable John Bercow MP and those whose kind support created this opportunity.