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NICE consultation feedback now open to carers

June 26, 2018

Following feedback from people affected by M.E., we have amended our survey on the NICE consultation so that you are able to indicate that you are responding as a carer.

We are asking for your views on the draft scope for the NICE guideline on M.E./CFS, which is being reviewed following changing policy and practice globally in the treatment and management of M.E. The purpose of the scope is to explain why the guideline is needed and identify what topics will be included and excluded from the guideline.

Action for M.E. will be responding to NICE’s consultation on the scope, and we want to hear from as many people affected by M.E. as possible to inform our response and to ensure your voices are heard. Our survey will close on Friday 20 July.

You can find out more about the consultation here, including details of how to apply to join NICE’s committee on the M.E./CFS guideline.