January 25, 2019
"It’s actually quite remarkable to consider how little is being sent on research, it's something like 0.02% of all active grants given by mainstream funding agencies going to support research. Without this research there is no hope of improved treatments." Kevin Foster MP
MPs came together in the House of Commons chamber yesterday to highlight the stories of many people in their constituencies who have M.E./CFS. During the debate, MPs talked about the lack of research funding, poor treatment options and medical education. You can read a transcription in Hansard. One area we would have liked to see more discussion on was the challenges facing those severely affected, and children with M.E. In relation to the latter, we are still seeking experiences of applying to receive Individual Health and Care Plans; please share yours before Monday 18 February.
We will be following up on yesterday’s debate as follows;
Additionally, we were pleased to hear the discussion that was held during the Scottish Parliament Petition Committee. We will be posting a full summary about this next week.
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