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Raising concerns about M.E. in Scottish Parliament

November 14, 2017

Action for M.E. has raised concerns about the lack of awareness and understanding of M.E./CFS among health professionals at the Scottish Parliament today.

Clare Ogden, Head of Communications and Policy at Action for M.E., appeared alongside other representatives from the voluntary sector to give evidence to the Health and Sport Committee as part of their inquiry into clinical governance in the NHS.

She spoke about the need for more systematic and wide-spread implementation of the Scottish Good Practice Statement, a guideline produced in Scotland in 2008 to ensure professionals had adequate guidance for appropriate practice for patients with M.E.

Other issues highlighted include:

  • People with M.E. had been seen by health professionals without a proper understanding of the condition, and then failed to treat them with dignity and respect.
  • Families affected by M.E. are disproportionately referred for child protection proceedings, due to a lack of awareness from health and education professionals of the symptoms of M.E. and the limitations these place on what activities a child can take part in.
  • Patients must be involved from the earliest point of service planning, as well as ensuring there’s an accessible and transparent procedure for feedback on services.

Action for M.E. were invited to the evidence session by the Committee, following our submission of written evidence which was based on survey responses from people with M.E. in Scotland.

The Committee will also consider evidence from patients and clinicians, before announcing its findings.