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Results of the Forward ME survey for CBT and GET

April 03, 2019

We are pleased to be able to let you see the results of the recent survey conducted on behalf of Forward ME. All the raw data was analysed and inserted into a comprehensive report by Professor Helen Dawes and Her team at Oxford Brookes University.

Bearing in mind that this survey was organised at very short notice and that we are aware that there are some shortcomings such as a selective bias in that only people with on-line access and the ability to complete the questionnaire were included, we are very grateful to all who responded so quickly.

The results have been well received by the Chairman of the NICE Guideline Development Group (GDG) and will, we hope, be helpful to the Group as they develop the new guideline for ME/CFS.

This survey, which was requested by the GDG, was an opportunity for people with M.E. to detail their experience of cognitive behavioural therapy (CBT) and graded exercise therapy (GET). It is important that the new guideline is patient led and takes into account these results, as well as those from previous surveys. The Forward ME executive summary details some of the key findings which the group are looking to raise with the GDG.

It was great to see the amount of people who took the time to share their experience. We will be looking to expand on these results and find out more about the treatment people receive in a further survey we will be launching in May as part of M.E. awareness month.