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Take our survey, share your experiences

July 23, 2019

What impact does M.E. have on your life? Does your GP really understand M.E.? What treatments help – or make your symptoms worse?

If you have M.E./CFS, why not take our Big Survey on living with M.E./CFS in the UK?

You will be amongst the thousands of other men, women and children with M.E. who have shared their experiences on health and social care, education, employment and welfare benefits.

So far, we have already received an overwhelming response from a diverse group of people, who have told us things like:

“M.E. has changed my life completely; I have gone from being very active to part time school, no homework, no sports – living a very different life to my friends” - Grace

“It took me months to fill out (my universal credit) application to be turned down” - Stacy

“My daughter misses us out on us spending quality time together. I was a Graphic Designer and had dreams of setting up my own business but I’m unable to do so. I’ve lost my friends and don’t see my family as often as I’d like due to being ill.”

By completing this survey, you are helping to direct our charity’s priorities and strategy for the next five years. Your results will also inform the politicians and professionals who impact your life.

This survey take an average of 13 minutes to complete – so please take your time and pace yourself. It runs until the 2 August.

You can find the survey here.