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Tell UK Gov your experience of COVID-19 support

April 16, 2020

Can you share your experience to help the UK Government understand the impact of the lockdown and Coronavirus situation on people with M.E. and other long-term conditions?

We are asking people with M.E. to contribute to two surveys being run by two House of Commons committees.

  • The Equalities Committee is seeking the views of disabled people about disproportionate impact Covid-19 has had on them. They are accepting evidence until Thursday 30 April and we believe it is vital that people with M.E. are considered here.
  • The Environment, Food and Rural Affairs Committee is looking specifically at whether the crisis has affected your ability to get food. The survey is open until Tuesday 28 April and will take roughly five to 10 minutes to complete.

Action for M.E. will be submitting an official response to both enquiries, highlighting that:

  • people with M.E. are being challenged when trying to shop at dedicated shopping times because of a lack of understanding of non-visible disabilities
  • many of those housebound with M.E., who have relied on regular booked delivery services for years, have seen these taken away without warning, and must now compete with able people for delivery slots from supermarkets
  • vulnerable people severely affected by M.E. have seen a reduction in social care support which has had a serious and negative impact on their health.

Your experiences matter, and any examples you can share directly through the survey links above will help these committees, made up of cross-bench MPs and peers, hold the Government to account.

If you need any help submitting your views then please give us a call on 0117 927 9551 and ask to speak to Sam Bromiley, our Policy Officer, or send an email.