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Voices from our Big Survey: book your conference place

August 07, 2019

The Action for M.E. team warmly invites you to join us at our 2019 AGM and conference, Are you listening to M.E.? Voices from Action for M.E.'s Big Survey.

In the past three months, more than 4,000 children, young people and adults with M.E. shared their insight and experience in our Big Survey. We are using what they’ve told us to further develop the services and support we offer, to raise more awareness and increase understanding of M.E., and to work with professionals and policy-makers to improve the lives of people with M.E.

“If I’m not in my wheelchair, people don’t think I have a disability. If I am in the wheelchair, people treat me as though I’m invisible. The ironic thing about this disorder being called M.E. is that I’ve lost me. We need change.”

Book your free place at our 2019 AGM and conference now for the launch of our Big Survey results, focusing on diagnosis, symptom management and access to healthcare (we will share results on other aspects of living with M.E. in due course) and hear how Action for M.E. is working collaboratively to improve the lives of children, young people and adults. You can take part in a delegate workshop to learn and share skills; and hear updates from the biomedical PhD students we are funding to look at brain function and immunity in people with M.E.

You will also have the opportunity to put questions to our discussion panel chaired by Jane Stacey, Trustee, Action for M.E. Joining Sonya Chowdhury, Chief Executive, we are delighted to welcome

  • Dr Nina Muirhead, Buckinghamshire Healthcare NHS Trust; and Medical Education lead, UK CFS/M.E. Research Collaborative
  • Ed Scully, Deputy Director, Primary Care Policy, Department of Health
  • Ben Howlett, Managing Director, Public Policy Projects.

When? 10am to 4.30pm on Tuesday 15 October
Where? Allen and Overy, Bishops Square, London E1 6AD. The venue is fully accessible, with a quiet space for resting; and lunch is provided
Who can attend? All are welcome, whether you are personally affected by M.E., have a professional interest, or simply want to find out more


See the full programme, and book your free place now on our Are you listening to M.E.? Voices from Action for M.E.'s Big Survey event page. For those unable to attend in person, we hope to film the Big Survey presentation and panel discussion for live or later broadcast. Please watch this space for further details.