May 26, 2016
The Independent Living Strategy Group is asking people with M.E. to share their experiences of social care and support in order to present evidence to the Government.
Baroness Jane Campbell, who convenes the group, says: “We want to find out about your experiences in order to share them with the government and the public in the hope that it will help bring about improvements.”
A similar survey last year found that, despite emphasis on wellbeing, choice and control within the Care Act, nearly half of respondents felt their quality of life had reduced and 30% experienced a reduction in choice and control.
You, or a person acting with your permission on your behalf, is invited to complete a survey about your experiences of choice and control when it comes to social care support.
Action for M.E. volunteer Catherine Hale, lead author of our Close to collapse report, was asked to input into the survey design to help it better capture the experiences of people with fluctuating conditions such as M.E.
Emerging findings will be presented to Minister of State for Community and Social Care Alistair Burt in July, with a full survey report most likely launched at the National Children and Adult Services Conference in October.
If you have any questions or comments about the survey, please contact John Waters, Research & Evaluation Lead at In Control. Thank you for contributing to this important research.