June 07, 2018
A debate on M.E. treatment and research will be held in Westminster Hall on 21 June and we need your MP to attend!
The debate comes after Carol Monaghan MP, Member of the UK Parliament for Glasgow North West, appeared before the Backbench Business Committee along with five other MPs on Tuesday 5 June to request that the debate take place.
The more MPs that attend this debate the better and so we’ve produced a template letter that you can send to your MP asking them to attend, which you can find below. If you’re not sure who your MP is or how to contact them you can use the Parliament website’s MP finder page to search for MPs by postcode, constituency or MP’s name.
This briefing, published jointly by #MEAction, Action for M.E., the ME Association and the ME Trust, has been updated since we first posted it online last week. While the first version remains a useful document, this update incorporates key feedback from organisations and individuals affected by M.E. to ensure its messages are as clear and effective as possible.
Keep an eye on our website and social media for more information on the debate as we receive it.
Dear [your MP’s name]
I am a constituent and I am getting in touch to ask you to take part in an upcoming Westminster Hall debate on Myalgic Encephalomyelitis (M.E.), taking place on Thursday 21 June.
M.E. is a long-term, fluctuating, neurological condition that affects an estimated 250,000 adults and children throughout the UK. The symptoms of M.E. have been shown to be as disabling as most other chronic conditions, including MS and congestive heart failure. But there is a widespread lack of understanding of the condition, partly because there has only been limited research and the underlying causes of M.E. are not yet understood. This means that there are no pharmaceutical cures for M.E., and patients often have to rely on self-management when tackling this serious illness.
[You can include a section here telling your MP about your experience of M.E. – you could talk about healthcare, research, social care, welfare benefits. The most effective way to engage MPs is to tell them about whichever topic is most important to you. However, we recommend keeping it to one paragraph as MPs receive a lot of letters and will only have a short time to read yours.]
To help you take part in this debate, M.E. charities have produced a comprehensive briefing covering a range of topics, so you can choose which area to focus on. You can access this via the Action for M.E. website. If you require any further information, their contact details are on page 13 of this briefing.
Please let me know whether you are able to attend.
[Your name and postal address]