Biomedical research
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Get involved in research

Research you can get involved with

People affected by M.E. often ask us how they can get involved with research. While we are not a research organisation ourselves, we are sometimes made aware of research projects that are looking for participants who have M.E.

This page will provide an overview of any such research projects, who is running them and what taking part will involve for someone who has M.E. Each entry also includes contact information for the person you will need to speak to for more information.

Please note that by listing research projects here Action for M.E. is not endorsing them. The studies on this page have all obtained ethics approval (if such approval is required) and all are being undertaken at a medical, research or academic institution. For more information about what getting involved in research and/or clinical trials might mean, please visit NHS Choices.

An investigation into "The Experiences of Young Adults with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./CFS)"

Details of the project: The purpose of this study is to explore the experiences of young adults (aged 18-25) with M.E./CFS, with the aim of contributing to a better understanding of how it impacts their lives and what it means to be chronically ill during young adulthood. For more information, see this flyer.

Ethical approval: This project has been approved by the College of Social Sciences and International Studies Ethics Committee at the University of Exeter.

Contact details: For further information about the research, please contact Louise Toller at or by post at Sociology, Philosophy and Anthropology, University of Exeter, Amory Building, Rennes Drive, Exeter, EX4 4RJ