Action for M.E. is an active member of Forward M.E., a group founded by Countess of Mar, who recently stepped down as chair but is still heavily involved in the group. Andrew Morris has stepped into the role as Chair and, with his vast experience in coaching and mentoring in growing organisations, aims to lead with a clear vision and core purpose.
Our CEO Sonya Chowdhury is the Head of Support and Care for Forward M.E. and is a member of the core Steering Group.
Forward ME was established to provide a unified and louder voice for the ME community, in particular to reach key influences and stakeholders – such as by supporting the APPG for ME. The main objective of the group is to ensure that the needs of people with ME/CFS are better met by facilitating unity across the ME field.
The group is also a member of the International Alliance for M.E.
Forward ME has been successful in many areas and one key example of this is their coordinated response to the recent NICE guideline drafts, and subsequent delays on the new guideline. In 2019, Forward M.E. also surveyed 2,274 people about their experience of graded exercise therapy (GET) and cognitive behavioural therapy (CBT), and we have shared this data with the NICE Guideline Development Group.
You can read the response to the delays on the NICE guideline here.
You can also access the minutes to any meetings here.
Key events and activities
Forward ME has published an open letter addressing concerns and highlighting best practice with regards to rehabilitation of people with long Covid who are experiencing post-viral fatigue. An Early Day Motion for debate has also been tabled on this.
In September 2020, in response to a topic that has become of interest to some in the patient community, Forward M.E. released a joint statement on spinal surgery and M.E.
In 2019 and 2018, we co-hosted exhibition stands and workshops at the Royal College of General Practitioners (RCGP) conference, engaging with delegates to share best practice information about the diagnosis and management of M.E.