Action for M.E. is an active member of Forward M.E., a group convened by the Countess of Mar, who sat in the House of Lords until her retirement in May 2020. We celebrated 10 years of Forward M.E. in 2018 (pictured above).
The group promotes effective joint working to maximise impact on behalf of people with M.E. in the UK. We meet regularly with key decision-makers in the health and social care sectors, and ensure the voices and experiences of people with M.E. are shared with professionals and policy-makers. The group also supports the work of the APPG for M.E.
The group is also a member of the International Alliance for M.E.
Minutes of recent meetings:
Older minutes of meetings can be found on the Forward M.E. website, though please note this is no longer being updated. The group is working on a new website (October 2020) which will be published soon.
Key events and activities
Forward ME has published an open letter addressing concerns and highlighting best practice with regards to rehabilitation of people with long Covid who are experiencing post-viral fatigue. An Early Day Motion for debate has also been tabled on this.
In September 2020, in response to a topic that has become of interest to some in the patient community, Forward M.E. released a joint statement on spinal surgery and M.E.
The group contributes to the ongoing review of the NICE guideline for M.E., meeting with members of the review team and responding to consultations on this hot topic. In 2019, Forward M.E. surveyed 2,274 people about their experience of graded exercise therapy (GET) and cognitive behavioural therapy (CBT), and we have shared this data with the NICE Guideline Development Group.
In 2019 and 2018, we co-hosted exhibition stand and workshops at the Royal College of General Practitioners (RCGP) conference, engaging with delegates to share best practice information about the diagnosis and management of M.E.