M.E. in parliament
We work collaboratively to inspire action in order to end the ignorance, injustice and neglect experienced by people with M.E.
We do this by meeting with parliamentarians and policymakers, providing written evidence and supporting them to raise issues important to people with M.E. In doing so, we aim to facilitate more influence and create a better understanding of M.E. at local, national and international level.
Evidence and consultations
Action for M.E. frequently provides evidence to government to highlight how proposed policy changes would impact on people with M.E. Our responses draw on a range of evidence from our previous reports, professionals, and people with M.E. and their carers. We often call for evidence through surveys or case studies, which can be instrumental in forming our responses.
In April 2020, we responded to inquiries by the Women and Equalities Committee and the Environment, Food and Rural Affairs Committee focusing on the impact Covid-19 and the lockdown has had on people with M.E. We highlighted several important recommendations which should be adopted by the Government, including introducing:
- commitments that no one with a disability should go hungry due to difficulties in accessing food. This can be achieved through widening existing support to include those who are housebound or have mobility issues.
- commitments to ensure people with a health condition are not further disabled by society through the removal of essential safeguards and support.
- dedicated support by phone and email for those who are at increased risk of severe illness and/or are housebound with a disability to access timely advice and information relating to Covid-19.
Keep an eye on our news page for current opportunities to contribute evidence and feed into our responses.
APPG on M.E.
All-Party Parliamentary Groups (APPGs) are informal cross-party groups of MPs and Members of the House of Lords. They meet regularly to discuss, campaign and promote certain issues, in this case M.E. When effective, they are a great means of spreading awareness of an issue within Parliament and the media.
At the inaugural meeting of the APPG for M.E. in January 2020, the group agreed to focus on the following key issues, and produce a report which can be used to lobby the Government to improve the lives of people with M.E.
How can I get my MP involved?
You can email your MP or call their office by using the details found on the Parliament website. We've provided a template as follows for those that need it.
Dear YOUR MP'S NAME
As one of your constituents, please can I ask that you attend the next meeting of the APPG for M.E. The group is chaired by Carol Monaghan MP.
M.E. is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. It is an often misunderstood condition that affects roughly 400 children and adults in our constituency.
If you are unable to attend these meetings, please contact Action for M.E. to find out more about the condition and what you can do to help people like me. You can email Sam Bromiley at the charity on email@example.com or call on 0117 927 9551.
ADD YOUR NAME and ADDRESS
Action for M.E. is a member of Forward M.E., a group convened by the Countess of Mar who sat in the House of Lords until May 2020, with the aim of promoting effective joint working to maximise impact on behalf of people with M.E. in the UK. The group meets regularly with key decision-makers in the health and social care sectors.
The group's work includes:
Minutes of meetings and further details about the group can be found on the Forward M.E. website.