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Priority Setting Partnership

M.E./CFS Priority Setting Partnership

The ME/CFS Priority Setting Partnership (PSP) aims to identify the top research priorities to influence research funding in the future.

It is led by an independent group of people with M.E./CFS, carers and clinicians, and facilitated by non-profit making initiative, the James Lind Alliance (JLA). Our Chief Executive, Sonya Chowdhury, is the PSP Lead, and therefore accountable and responsible for the funding for the project which comes from the National Institute for Health Research, the Medical Research Council and the Scottish Chief Scientist’s Office.

Using an approach tried and tested with a range of other illnesses, including MS and fibromyalgia., the project will:

  • bring patients, carers and clinicians together to identify research uncertainties in the field of M.E./CFS
  • agree by consensus a prioritised 'Top 10' list of those uncertainties for research
  • publicise the methods and results of the exercise
  • publicise and disseminate the results to research funders, independently of the JLA.

We are asking you to take part now - there is a survey to share your views, closing 5pm Monday 5 July - and then keep the conversation going with us once the priorities are identified. Action for M.E. will then look to use some of its own resources, and work with the project funders and other potential research funders to drive forward high quality research in the areas identified.

Find out more and get involved in the project on its dedicated www.psp-me.co.uk website, which has lots of free, downloadable resources to help you share the project with others, and follow updates on Twitter @PSPforMECFS.