People affected by M.E. often ask us how they can get involved with research. While we are not a research organisation ourselves, we are sometimes made aware of research projects that are looking for participants who have M.E.
This page will provide an overview of any such research projects, who is running them and what taking part will involve for someone who has M.E. Each entry also includes contact information for the person you will need to speak to for more information.
Please note that by listing research projects here Action for M.E. is not endorsing them. The studies on this page have all obtained ethics approval (if such approval is required) and all are being undertaken at a medical, research or academic institution. For more information about what getting involved in research and/or clinical trials might mean, please visit NHS Choices.
If you are interested in taking part, you will be invited to have a telephone screening conversation to determine if you are suitable to take part in the study.
What does the study involve?
The study involves three visits on separate occasions. Each visit approximately lasts between 3 and 5.5 hours and will include breaks. The first study visit takes place at the Clinical Investigation and Research Unit at Royal Sussex County Hospital, Brighton and involves heart rate and blood pressure measurements. The other two study visits take place at the Clinical Imaging Sciences Centre at Brighton and Sussex Medical School at The University of Sussex, Falmer and involves going in the brain scanner and receiving a Typhoid injection or placebo (a dummy injection) which are randomised between visits. All study visits also involve blood tests, questionnaires and performing some simple tasks.
Who can participate?
1. Adults aged 18 or over, who have a diagnosis of M.E./CFS and/or Fibromyalgia and meet the study criteria.
2. Healthy adults (aged 18 or over) with no history of Fibromyalgia and/or M.E./CFS Syndrome and meet the study criteria.
If you are interested in taking part or have any questions, please contact Dr Kristy Themelis for further information at firstname.lastname@example.org
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