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These factsheets are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of research and updating it would make a big difference.

Action for M.E. 2016-2021 strategy

Over the next five years, our purpose is to end the ignorance, injustice and neglect experienced by people with M.E. We will do this by meeting need now while taking action to secure change for the future. Starting in 2016, everything we do over the next five years will be in service of achieving three goals, which we call our strategic touchstones, to tackle these challenges.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Research / Make a difference


M.E./CFS Research Funding report

Commissioned by the UK CFS/M.E. Research Collaborative conference and launched at its 2016 conference, this report highlights that M.E. research represents less than 1% of all active grants given by UK mainstream funding agencies. Based on this report, and the scientific discussions at the conference, the Medical Research Council (MRC) will review its M.E./CFS highlight notice, the mechanism by which researchers are alerted to areas that are a high priority for the MRC, with a view to encourage more applications. 

Research


Close to collapse

M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

Living with M.E. / What is M.E.? / Employers & teachers / Health & care professionals / Make a difference / Research


MEGA progress update

Research


Action for M.E. research strategy 2014-2016

Research into M.E. remains a key priority for many in the M.E. community and it is widely accepted the there has been considerable under-investment by mainstream funders. There is a desperate need for a step-change in the research field and, over the past couple of years, we have seen momentum gaining. This strategy has been developed after extensive consultation with more than 1,000 people affected by M.E.

What is M.E.? / Research


M.E. Time to deliver

Myalgic Encephalomyelitis (M.E.), sometimes diagnosed as Chronic Fatigue Syndrome (CFS) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems. Between December 2013 and February 2014, 2,018 people with M.E./CFS took part in a survey run by Action for M.E., the UK’s leading charity for people affected by M.E./CFS. This report presents key initial findings.

Living with M.E. / Research / Employers & teachers / Health & care professionals / Make a difference


2016 CMRC conference schedule

Research


Call for PhD/postdoctoral research proposals 2016-2017

As part of our 2016-2021 strategy, we promised to bring new researchers to the field by investing in at least one three-year postdoctoral or PhD studentship at any one time for projects focused on biomedical M.E. research. This call is open to UK-based researchers, who should apply by downloading this information and application form. The closing date is 4pm Monday 6 February 2017.

Health & care professionals / Research


CMRC Board meeting minutes 11 November 2015

Draft minutes from the 11 November 2015 meeting of the UK CFS/M.E. Research Collaborative.

Research


CMRC Board meeting minutes 15 Jan 2016

Draft minutes from the 15 January 2016 meeting of the Executive Board of the UK CFS/M.E. Research Collaborative.

Research


CMRC membership form

To join the UK CFS/M.E. Research Collaborative (CMRC) as an Professional, Student or Associate Member, please download and complete this form.

Research


CMRC 2015 conference report

UK CFS/M.E. Research Collaborative report of its 2015 conference, featuring overviews of 21 presentation, five workshops and feedback from delegates.

Research


CMRC 2015 report George Davey Smith

Presentation by Prof George Davey Smith, given at the Uk CFS/M.E. Research Collaborative's 2015 conference. 

Research


CMRC 2014 conference report

The inaugural conference of the UK CFS/ME Research Collaborative (CMRC) brought together more than 70 researchers and clinicians with an interest in CFS/ME. Some have worked in this area for many years, while others are entirely new to the field. This is hugely encouraging, as one of the key aims of the CMRC is supporting professionals not currently involved in CFS/ME research to help them develop those skills, connections and collaborations.

Research / What is M.E.?


Research funding assessment process

This process has been developed to provide clarity, transparency and a clear governance framework for our key stakeholders including researchers, universities, donors, Action for M.E. supporting members and other people affected by M.E. It sets out our five-stage process for assessing research funding applications.

Research


CMRC charter

This charter explains the purpose, aims and objectives of the UK CFS/M.E. Research Collaborative (CMRC), and outlines membership and membership requirements. Action for M.E. is an Executive Board member of the CMRC.

Research