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These factsheets are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of research and updating it would make a big difference.

Action for M.E. 2016-2021 strategy

Our purpose is to end the ignorance, injustice and neglect experienced by people with M.E. We will do this by meeting need now while taking action to secure change for the future. In August 2018, we revised our organisational strategy to include our promises to children and young people with M.E., following the launch of our Children and Young People's Services Team.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Research / Make a difference

Action for M.E. Trustee report and accounts 2017-2018

What is M.E.? / Living with M.E. / Make a difference / Children and young people / Research

Action for M.E. Trustee report and accounts 2016-2017

Reporting on Action for M.E.'s promises to improve the lives of people with M.E., inspire action at all levels, and invest in change, our Board of Trustee's annual report looks at the difference we made for people with M.E. from 1 April 2016 to 30 March 2017, and reviews how we raised and spent funds.

What is M.E.? / Living with M.E. / Make a difference / Children and young people / Research

CMRC 2017 conference report

Report of the UK CFS/M.E. Research Collaborative's fourth annual science conference, held in Bristol in September 2016. Speakers include Dr Avindra Nath, National Institutes of Health; Prof Don Staines, Griffith University; Dr Peter Rowe, John Hopkins Children’s Centre for CFS and Prof José Montoya, Stanford ME/CFS Initiative, plus MEGA Patient Advisory Group members Phil Murray & Rachel E.


M.E./CFS Research Funding report

Commissioned by the UK CFS/M.E. Research Collaborative and launched at its 2016 conference, this report highlights that M.E. research represents less than 1% of all active grants given by UK mainstream funding agencies. Based on this report, and the scientific discussions at the conference, the Medical Research Council (MRC) will review its M.E./CFS highlight notice, the mechanism by which researchers are alerted to areas that are a high priority for the MRC, with a view to encourage more applications. 

Research / What is M.E.?

Close to collapse

M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

Living with M.E. / What is M.E.? / Employers & teachers / Health & care professionals / Make a difference / Research

M.E. Time to deliver

Myalgic Encephalomyelitis (M.E.), sometimes diagnosed as Chronic Fatigue Syndrome (CFS) is a long-term (chronic) fluctuating illness that causes symptoms affecting many body systems. Between December 2013 and February 2014, 2,018 people with M.E./CFS took part in a survey run by Action for M.E., the UK’s leading charity for people affected by M.E./CFS. This report presents key initial findings.

Living with M.E. / Research / Employers & teachers / Health & care professionals / Make a difference

CMRC 2016 conference report

UK CFS/M.E. Research Collaborative report of its 2016 conference, with overviews of 26 presentations from speakers including Dr David Patrick, University of British Columbia; Dr Zaher Nahle, Solve M.E./CFS Initiative; and Prof George Davey Smith, University of Bristol. Plus summaries of three workshops and feedback from delegates.


MEGA progress update

In April 2016, experts from a number of scientific fields came together for a Grand Challenge workshop to discuss how to advance research in understanding M.E. This is a summary of that workshop.


CMRC 2015 conference report

UK CFS/M.E. Research Collaborative report of its 2015 conference, featuring overviews of 21 presentation, five workshops and feedback from delegates.


CMRC 2014 conference report

The inaugural conference of the UK CFS/ME Research Collaborative (CMRC) brought together more than 70 researchers and clinicians with an interest in CFS/ME. Some have worked in this area for many years, while others are entirely new to the field. This is hugely encouraging, as one of the key aims of the CMRC is supporting professionals not currently involved in CFS/ME research to help them develop those skills, connections and collaborations.


Research funding assessment process

This process has been developed to provide clarity, transparency and a clear governance framework for our key stakeholders including researchers, universities, donors, Action for M.E. supporting members and other people affected by M.E. It sets out our five-stage process for assessing research funding applications.