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An overview of M.E.

This factsheet offers an overview of M.E. including symptoms, diagnosis and management options available. For a more detailed description of the condition and its impact, please see our longer booklet, All about M.E.

What is M.E.? / Health & care professionals / Employers & teachers / Living with M.E.

Guide to welfare benefits

This factsheet offers a brief overview of key welfare benefits for people affected by M.E. We have focused on benefits that you may be eligible for if you are a disabled person or you are unable to work because of sickness. We have not covered all benefits relating to children (eg. Child Benefit) or benefits available for certain specific situations (eg. maternity or bereavement benefits).

Living with M.E.

ESA: filling in the form

This factsheet offers guidance on making a claim for Employment and Support Allowance (ESA) and filling in the capability for work questionnaire (ESA50).

Living with M.E.

ESA: reconsiderations and appeals

Anyone applying for Employment and Support Allowance (ESA) must undergo a Work Capability Assessment (WCA), the test used to assess whether you are fit for work or as the DWP call it whether you have limited capability for work. 

Living with M.E.

Permitted Work

Permitted Work allows people to try out working while still getting their incapacity related benefit. You can do Permitted Work while you are on the certain benefits, but you must be aware of the Permitted Work rules as outlined in this factsheet.

Living with M.E.

DLA: a guide to filling in the form

It is no longer possible to make a new claim for DLA but you may still be able to make a renewal claim. Your renewal form may differ in order from the following guide but most of the information should still be relevant.

Living with M.E.

DLA: revision and appeals

This guide is for people who have had their claim turned down for Disability Living Allowance (DLA) and wish to appeal the decision. It is also suitable if you have been awarded some DLA but you feel that you should be on a different rate or component. For example, you may have been awarded high rate mobility and you think you should also get the care component.

Living with M.E.

DLA face-to-face medicals for adults and children

If you are putting in your first claim for Disability Living Allowance (DLA), a renewal claim or a revision or appeal, the Department of Work and Pensions (DWP) may require you to have a medical. This factsheet details how this process will work.

Living with M.E.

DLA for children under 16

This factsheet offers guidance on applying for Disability Living Allowance (DLA) for children under 16. To qualify, they must have been disabled/sick for at least three months and likely to remain so for at least a further six months.

Living with M.E.

Blue Badge

This factsheet offers an introduction to the Blue Badge parking scheme, which allows disabled people to park close to necessary facilities and services.

Living with M.E.

PIP: filling in the form

This factsheet offers a guide to applying for Personal Independence Payment (PIP), including information about completing the form, face-to-face medical assessments and home visits.

Living with M.E.

PIP: reconsiderations and appeals

If you have not been awarded any PIP, or been awarded the benefit but at a lower rate than you think you should get, you have the right to challenge this decision. This factsheet sets out the steps you need to take to do this.

Living with M.E.

Supporting children with medical needs

Children with medical needs may receive education provision in a range of settings. They may attend school with some support. If they cannot attend school they may be educated in a medical alternative provision setting, or in a hospital school. Or they may intermittently attend school and receive education in a medical alternative provision setting, at hospital or at home. This document is designed to help schools identify the steps they should take to ensure children with medical needs receive the support that they need.

Children and young people

Supporting evidence for PIP and ESA claims

Living with M.E.

Children's services leaflet

Find out all about our services for children with M.E.

Children and young people

M.E. in the workplace

When a member of staff has a long term illness, or is a carer, employers need to understand the condition which affects their lives and the legal responsibilities they have towards them. This leaflet offers information and support for employers and colleagues of people with M.E.

Living with M.E. / Employers & teachers

Improving outcomes OT briefing 2018

This professional briefing for Occupational Therapists in Scotland was developed as part of our Inform M.E. Scotland project, funded by the Scottish Government. It offers key considerations for OTs and their patients living with M.E./CFS, including guidance on phases of care and support.

Health & care professionals

M.E. and higher education

This factsheet is provided for students with M.E. to share with the support services at their college or university, offering information about M.E., its potential impact on studying, and how tutors can help.

Employers & teachers

Are you a young carer?

Are you a young carer for someone with M.E.? CFS? Post-Viral Fatigue Syndrome? Fibromyalgia? Or do you know somebody who is? A young carer is a child or young person up to 19 years old who is caring for a family member. This leaflet outlines the help, support and advice available, with signposting to services in your area.

Living with M.E. / Employers & teachers / Health & care professionals

Supporting outcomes HCP briefing 2018

Offering primary healthcare professionals in Scotland key information on supporting patients living with M.E., this professional briefing was developed as part of our Inform M.E. Scotland project, funded by the Scottish Government.

Health & care professionals

Assessing people with M.E. under the Mental Health Act

M.E. is not a mental health condition, and so should not be used as the basis for detention under the Mental Health Act. However, a small minority of people with M.E. are being considered for assessment for detention under the Mental Health Act, or being detained, each year. This factsheet explains what assessment and detention involves, and what your rights are if detained, if you are an adult living in England and Wales.

Living with M.E. / Health & care professionals

Don't ignore M.E. poster

Download and print our Don't ignore M.E. awareness-raising poster. Don't have a printer? Contact us to order paper copies.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Make a difference

Don't ignore M.E. leaflet

Download and print our Don't ignore M.E. awareness-raising leaflet. Don't have a printer? Contact us to order paper copies. 

Make a difference / What is M.E.? / Living with M.E. / Employers & teachers / Health & care professionals