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Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. How can my GP help?

A. In order to diagnose you as having M.E., your GP will need to know what symptoms you've been experiencing. It can be hard to remember every symptom when you're put on the spot, especially because…
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Living with M.E.


Q. What treatment approach is right for me?

A. We do not recommend any individual treatments or management approaches for people with M.E. Instead, we offer key information to allow people with M.E. to make informed decisions.When health…
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Living with M.E.


Q. How do other parents with M.E. cope?

A. Action for M.E. often hears from parents who have found ways to cope with their M.E. at the same time as raising children.Here’s some of the things mums and dads have told us: “Knowing others…
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Living with M.E.


Q. Is there an M.E. support group near me?

A. You can use our services directory to search for a local M.E. support group near you.These groups can be an invaluable source of information, advice, strength and support. They are run by volunteers,…
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Living with M.E.


Q. My colleague has M.E., how will this affect me?

A. When someone you work with has M.E., you need to understand the illness and the impact it can have on them.The fluctuating nature of M.E. can make it difficult for someone with the illness to…
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Living with M.E. / Employers & teachers


Q. Should I tell my employer I have M.E.?

A. Potential employers are not allowed to ask health-related questions, except in specific circumstances.You don’t have to disclose a health issue or disability to an employer, unless it could cause…
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Living with M.E. / Employers & teachers


Q. What about alternative and holistic therapies?

A. Many people with M.E. try different approaches to help them manage their illness and their symptoms. Most alternative and complementary therapists are competent, ethical and caring.Provided there…
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Living with M.E. / Health & care professionals


Q. What about emotional support?

A. M.E. will probably have a dramatic effect on your life. It may affect your relationships, career or education, family life and friendships. Dealing with the mental and emotional impact of the…
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Living with M.E.


Q. What support is there for parents who have M.E.

A. You may think of yourself as ill rather than disabled but having a long-term fluctuating illness which adversely affects daily life is classified as a disability under the Equality Act 2010.This…
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Living with M.E.


Q. What helps other people with M.E.?

A. Everyone with M.E. has to find a way of managing that works for them. We asked people with M.E. what they have found useful.Brenda told us:“Individual differences make it hard to suggest a uniform…
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Living with M.E.


Q. What should I do if I'm too ill to work?

A. It may become apparent that your health is not getting any better or that your employer is unwilling or unable to support you.If you have to stop working, you may be eligible for welfare benefits.Before…
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Living with M.E.


Q. What support is there for people with severe M.E.?

A. There have been almost no biomedical research studies on severe M.E, so we know very little about its biology, and what treatment or management approaches might be helpful.The NICE guideline…
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Living with M.E.