Severe ME/CFS - A Guide to Living

by Emily Collingridge

Comprehensive reference book was written by Emily Collingridge, a patient with more than 12 twelve years’ experience of severe M.E.

Purchase for postage to the UK

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About the Book

Do you have severe M.E. or care for someone who does?

Published in 2010, this invaluable book was written by the late Emily Collingridge, a patient with more than 12 years’ experience of severe M.E., in consultation with more than 30 patients, carers, friends, relatives and health professionals.

“Emily’s book is the legacy she left behind to support us all. I don’t know how I’d have coped without it. It has been my M.E. bible. I wish I could thank her, but no thanks could ever convey the depth of my gratitude.” Kara, severe M.E. patient

The book’s 144 pages offer guidance on every conceivable area of life with severe M.E. at any age, as well as specific help for carers, loved ones, health and social care professionals and home tutors. It sets out to answer questions like:

• “Washing makes me feel ill; what should I do?”
• “I’m struggling to eat; how can I avoid malnutrition?”
• “My medical team doesn’t know anything about severe M.E.; how can I get them to understand?”
• “Some of my symptoms are very frightening; what can I do about them?”
• “I’m finding basic daily activities really difficult; is there any equipment that could help me?”

Following the update to the NICE guidelines for ME in 2021, Action for M.E. has been honoured to work with Emily’s mother, Jane, and her friends, Naomi and Victoria, to update Severe ME/CFS: A Guide to Living in line with the updated guidance and revised information about welfare benefits. Jane is also responsible for the www.severeme.info website while Naomi and Victoria manage the guide’s Facebook page.

We have chosen a printing company which uses only vegetable-based inks, water-based chemistry and FSC accredited paper and board, and a sample has been tested for smell-sensitivity.

In accordance with Emily’s wishes, we sell the book at cost price. Increased paper/printing charges mean that this has risen to £9.25, which includes postage to anywhere in the UK. Extra postage will be added to international orders.

Purchase for postage to the UK

Purchase for postage outside of the UK