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These booklets, factsheets, toolkits and reports are free for you to download. We are committed to provide free information on our website but we are a small charity and if you are able to make a donation to help cover costs of producing and revising our publications, it would make a big difference.

All about M.E.: symptoms and management

Myalgic Encephalomyelitis (M.E.) is a chronic fluctuating illness. It is commonly also known as Chronic Fatigue Syndrome (CFS or CFS/M.E.). Sometimes it is diagnosed as Post Viral Fatigue Syndrome (PVFS).

The onset of M.E. can be gradual or sudden. The symptoms vary from person to person and they may be mild, moderate or severe. Whatever your experience, you share something in common with every other person with M.E. – you want to make sure you’re doing all the right things to help you get better. Coping with M.E. is a challenge but there are ways in which you can take control and learn to manage the illness effectively.

This booklet has been developed with the input of professionals and people with the illness to help you find out about M.E. We hope you find it useful.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers

Newly diagnosed with M.E.

Healthcare professionals and people with M.E. alike tell us they would like more information and support about the diagnosis, symptoms and management of M.E. This resource is intended to do just that. We hope that patients will share it with GPs, and that GPs will share it with colleagues.

Living with M.E. / What is M.E.? / Health & care professionals

Action for M.E. Trustee report and accounts 2014–2015

People with M.E. deserve better. That has been a message that we, and others, have been pushing for many years. Read our Trustee report and accounts 2014–2015 to find out how we are making a difference to the lives of those affected by M.E. 

What is M.E.? / Make a difference

An overview of M.E.

This factsheet offers an overview of M.E. including symptoms, diagnosis and management options available. For a more detailed description of the condition and its impact, please see our longer booklet, All about M.E.

What is M.E.? / Health & care professionals / Employers & teachers / Living with M.E.

Our statement of strategic intent 2013-2016

This Statement of strategic intent sets out a bold and ambitious agenda for change and reflects our willingness to engage with local and national challenges and make a difference to the lives of people affected by M.E. 

What is M.E.? / Make a difference

Action for M.E. research strategy 2014-2016

Research into M.E. remains a key priority for many in the M.E. community and it is widely accepted the there has been considerable under-investment by mainstream funders. There is a desperate need for a step-change in the research field and, over the past couple of years, we have seen momentum gaining. This strategy has been developed after extensive consultation with more than 1,000 people affected by M.E.

What is M.E.? / Research

Close to collapse

M.E. is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from our 2015 survey, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

Living with M.E. / What is M.E.? / Employers & teachers / Health & care professionals / Make a difference / Research

Action for M.E. empower support inform influence strategy 2014-2016

This Strategy sets out what we will do over the next couple of years to move closer to realising our aspirations, with an overview of our approach to empowering and supporting people with M.E. while informing and influencing others about the condition and its impact.

What is M.E.?

“My life stopped...”

This report focuses on the experiences of 298 people identifying themselves as severely affected (out of 2,081 total respondents with M.E.) who took part in Action for M.E.’s 2014 health, welfare, employment and education survey.

Living with M.E. / What is M.E.? / Make a difference

Don't ignore M.E. poster

Download and print our new 'Don't ignore M.E.' awareness-raising poster. Don't have a printer? Contact us to order paper copies.

What is M.E.? / Living with M.E. / Health & care professionals / Employers & teachers / Make a difference

Don't ignore M.E. leaflet

Download and print our new 'Don't ignore M.E.' awareness-raising leaflet. Don't have a printer? Contact us to order paper copies. 

Make a difference / What is M.E.? / Living with M.E. / Employers & teachers / Health & care professionals

CMRC 2014 conference report

The inaugural conference of the UK CFS/ME Research Collaborative (CMRC) brought together more than 70 researchers and clinicians with an interest in CFS/ME. Some have worked in this area for many years, while others are entirely new to the field. This is hugely encouraging, as one of the key aims of the CMRC is supporting professionals not currently involved in CFS/ME research to help them develop those skills, connections and collaborations.

Research / What is M.E.?