Recognising the priorities identified by people with M.E. in our 2010 election manifesto, Action for M.E. is calling for robust scientific evidence of the biology of this disease to be obtained and disseminated across all Government departments.
We want to see:
- Substantial resources be committed to identify the cause of this marginalized condition once and for all.
- The Medical Research Council (MRC) update its highlight notice on M.E., in response to the findings of the Gibson Inquiry which said that more funding should be allocated to “research into potential causes, which might lead to better diagnostic tests... Investigating potential sub-groups must be a strong priority.”
- Advice given to those with significant infections in order to prevent them from developing M.E. This should include the possibility of establishing testing and treatment for Xenotropic Murine Leukemia Retrovirus (XMRV), herpes and enteroviruses and other infections which may be found in people with M.E.
- Clinical trials of medications which have been found to be helpful to people with M.E.
- M.E. designated as a reportable health condition to enable the robust collection of data on the number of children, adults and young people with M.E. in the UK, the degrees of severity experienced by different groups, demographic data, and any family history of the condition.