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What we do

Read our ambitious plans.

Our vision is a world without M.E.

Action for M.E. is an organisation led by people with M.E., for people with M.E.

M.E. (Myalgic Encephalomyelitis) affects an estimated 250,000 men, women and children in the UK. Symptoms can include post-exertional malaise (a period of intense exhaustion that lasts for more than 24 hours following exertion) and chronic pain. M.E. affects different people in different ways and symptoms can fluctuate and change over time.

M.E. is defined by the World Health Organisation as a neurological condition. It may be diagnosed as Chronic Fatigue Syndrome (CFS) or Post Viral Fatigue Syndrome (PVFS).This should not be confused with chronic fatigue, which is a different illness.

There are a range of views about M.E. Find out more about the illness and our position.

Action for M.E.’s mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure.


RSS: Latest
M.E. Awareness Month: two weeks to go
Patient record sharing trials plan
Daily press summary
24 April 2014
Showcase for M.E. storytelling project
Daily press summary
23 April 2014
Disabled trapped in benefits
Disabled trapped in benefits "nightmare"
Daily press summary
22 April 2014
Fundraiser of the week - Siobhan Pirie
Teacher’s case shows need for support
Daily press summary
17 April 2014

Help us continue vital work

Action for M.E. offers support and information to people affected by M.E. while campaigning hard for better public services and more biomedical research into the illness.

To enable is to do this vital work we rely totally on gifts and donations. Apart from a small grant in Scotland, we receive no Government funding.

Action for M.E. is the UK’s leading charity for people affected by M.E., but remains a small team that thinks and achieves big. We have a full time equivalent staff of 11.

If you have found this website useful, or have used any of our other services, there are many ways that you can give a gift to make sure we can continue our work, help others and achieve the ambitious plans we have set ourselves in our Statement of Strategic Intent between now and 2016.

Any gift, however large or small, is gratefully received. You can donate a one off gift or set up a regular donation. We also have a range of easy giving options.

If you’d like to get more involved, there are many ways you can help us raise vital funds including low energy M.E. friendly ideas and many ways to enjoy with family and friends.

We have places in prestigious running events and our Dressing Gown Days offer a novel twist on fundraising dressing down (or up) days in your school.

Download our Fundraising pack or visit our fundraising pages for more information and ideas. Emily and Georgina, our fundraising team, are always happy to offer extra help and advice. Email or call them on 0117 930 7293.

Welfare Advice and Support Service

Welfare rights helplineOur Welfare Advice and Support Service offers information and advice by telephone and email on welfare benefits (including Employment Support Allowance, Personal Independence Payments and Disability Living Allowance), disability discrimination, employment and insurance issues. We also publish a range of welfare benefit factsheets.

By phone: 0845 122 8648 (Costs just over 2p per minute from a BT landline. Mobile and other landline charges will vary.)

Mon 10am to 12.30pm and 2pm to 4pm
Tue 10am to 12.30pm and 2pm to 4pm
Wed 2pm to 4pm
Thu 10am to 12.30pm and 2pm to 4pm
Fri and bank holidays closed

By email: our new online enquiries facility should only be used for brief, specific welfare benefits questions which can be dealt with quickly. For detailed enquiries, please use the telephone advice line.

fundraising standards board

Regional information

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