APPG on ME - Next meeting on Tuesday 16th June 2020
June 08, 2020
The APPG on ME will be resuming work on their report at a virtual meeting on Tuesday 16th June
This meeting will cover issues relating to children and adolescents with ME/CFS - including diagnosis, medical management, education, inappropriate social services interventions
There will be three presentations from:
- Dr Nigel Speight - Consultant Paediatrician and Medical Adviser to The ME Association and TYMES Trust
- Tony Crouch - Paediatric social worker and social work adviser to TYMES Trust, 25% ME Group, Hope 4 ME and Fibro NI.
- A parent of a child with ME
The presentations will be followed by discussion and questions from MPs.
The meeting starts at 10am - your MP will need to contact Carol Monaghan’s office for details on how to join.
Email for Carol Monaghan MP: carol.monaghan.mp@parliament.uk
Template e-mail or letter
Dear YOUR MP'S NAME
I am writing as one of your constituents to ask that you attend the next meeting of the APPG for M.E. being held on Tuesday 16 June at 10am. The group is chaired by Carol Monaghan MP.
M.E. is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. It is an often misunderstood condition that affects roughly 400 children and adults in our constituency.
At this next meeting, you can hear about how the condition affects children and what you can do to help.
If you are unable to attend this meeting, please contact Action for M.E. who are offering short Zoom sessions for MPs to find out more about the condition and what you can do to help people like me. You can email Sam Bromiley at the charity on sam@actionforme.org.uk or call on 0117 927 9551.
Kind regards
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