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Invite your MP to the Next Meeting of the APPG on M.E.

May 02, 2023

The next meeting of the All-Party Parliamentary Group (APPG) on M.E. with be the Annual General Meeting (AGM) on Wednesday 10 May at 2pm.

In addition to reconstituting the APPG, the AGM will include:

  • a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information request regarding the implementation of the revised NICE Guideline responded to by 106 ICB’s and NHS Trusts.
  • a discussion of support for those with severe M.E.
  • consideration of our workplan for the coming year.
  • Minutes of the AGM will be shared in accordance with APPG rules.

We kindly encourage you to invite your MP to attend and participate in the AGM by using the email template letter below.

You can locate your MPs contact details on the UK Parliament website.


Template Letter

Dear [YOUR MPS NAME]

I am writing to invite you to the Annual General Meeting (AGM) of the All-Party Parliamentary Group (APPG) on Myalgic Encephalomyelitis (M.E.) scheduled for Wednesday, May 10th, 2023, from 2-3pm. As one of your constituents, I am hoping you can attend this meeting.

The APPG on M.E. is chaired by Carol Monaghan, MP, and you can contact her office at carol.monaghan.mp@parliament.uk.

In addition to reconstituting the APPG, the AGM will discuss a range of important matters, including a one-year review of the implementation of the new NICE guideline. Action for M.E. will be presenting the results of their Freedom of Information request regarding the implementation of the revised NICE guideline, which has been responded to by 106 ICB's and NHS Trusts.

Additionally, there will be a discussion on support for individuals with severe M.E., as well as the consideration of the APPG's work plan for the upcoming year.

M.E. is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. The physical symptoms of M.E. can be as disabling as multiple sclerosis, systemic lupus erythematosus, rheumatoid arthritis, congestive heart failure and other chronic conditions. Other research shows that people with M.E. score lower overall on health-related quality-of-life tests than most other chronic conditions. This often misunderstood condition affects roughly 400 children and adults in your constituency.

If you'd like to find out more about this AGM, please contact Caitlin at Action for M.E. via policy@actionforme.org.uk.

Kind regards

[ADD YOUR NAME and ADDRESS]