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Breaking isolation project

Breaking isolation project

Funded by BBC Children in Need, our Breaking Isolation project is being co-designed and delivered by young people with M.E.

The three-year project will see our steering group come together online to design and deliver a series of isolation-busting workshops for children and young people with M.E.

Currently the plan is to hold workshops in November 2020 and spring 2021 (subject to any Covid-19 restrictions at that time). They will be open to anyone with M.E. aged 10 to 18 years.

By participating in these workshops, we hope young people will feel less lonely, have improved self-esteem and build positive relationships.


Take part in our workshops

Our free Breaking Isolation workshops are an exciting opportunity to meet other children and young people who have M.E., to get to know each other and to take part in fun games and creative activities. We hope you will also gain confidence in talking about your M.E. in a safe and understanding environment.

The first workshop will be held in three parts via Zoom on:

  • Thursday 26 November
  • Thursday 3 December
  • Thursday 10 December

All workshops will take place from 4pm to 5:30pm.

  • Open to all young people with M.E. who are under 19.
  • Maximum of 12 young people per workshop.
  • Workshops will be co-facilitated by other young people with M.E. and two Action for M.E. staff members.
  • There will be a break, and you will be able to turn your camera or sound off and/or mute yourself at any point.
  • It will be fun, and has been designed by young people not to be too demanding!
  • You can opt in or out of activities and there is no pressure to speak!

Please register to take part by Monday 16 November. If you are under 16, we will require your parent/guardian permission to attend (there is a space for this on the registration form).

If you would like more information about the workshops or our project overall, or would like to register your interest in future workshops, please send us an email.


Your feedback

Thank you to everyone who completed our September 2020 online survey. Results from this are helping the Steering Group plan what activities we should include, and what support young people with M.E. might need to take part.

Some comments from respondents include:

"I don't think that my friends realise that it's not just being tired, and there are so many other symptoms that come with M.E."

Another said:

"I think the workshops would help massively because young people with M.E. can get together, form friendships and just be in a room where no one judges them for needing to lie down or take a break."

We will keep you updated on this page with information about how to get involved with the project as it progresses: watch this space.