April 23, 2018
The Work and Pensions Committee has opened an inquiry into the use of benefit sanctions, and Action for M.E. wants to hear from you so we can tell them how the use of sanctions impact…
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April 20, 2018
The sun is expected to shine on the 50,000 runners taking part in this Sunday's 2018 London Marathon - and among them are 17 very special fundraisers. Action for M.E.'s 17-strong team…
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April 19, 2018
Given current demands on staff capacity in the office, we are slightly reducing the hours that our Information and Support Line is open each day.This means that, from today, our Information…
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April 17, 2018
"When my son Lewis, now 11, caught a bug he seemed unable to shake off in 2016, his symptoms seemed worryingly familiar. Although I tried to convince myself he would soon be back to…
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April 13, 2018
Our fundraiser of the week is Myurah Nathan, who is running the 2018 London Marathon for us on 22 April.Talking about her reasons for taking part in the 26.2 mile run, Myurah said:…
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April 10, 2018
Action for M.E. is supporting the Millions Missing campaign with our Millions Missing event in Geneva on Saturday 12 May – and you can get involved at home, online or in person.Millions…
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April 09, 2018
Welfare benefits advice and information: important newsFrom Monday 9 April, Action for M.E.’s Welfare Rights Line will be temporarily closed while we recruit a new advisor. Our current…
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April 06, 2018
Our fundraiser of the week is Katie Howell, who is one of the organisers of the Spring Performance Car Action Day at Castle Combe on Saturday 7 April.The event, which will be helping…
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April 05, 2018
The Countess of Mar has written to the Science Media Centre, asking them to retract and replace their recently published factsheet on M.E.Her letter, sent on behalf of Forward M.E.,…
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March 29, 2018
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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March 28, 2018
Working with charity Disability Rights UK, the Care Quality Commission (CQC) wants to hear feedback from disabled people, including those with long-term conditions such as M.E., about…
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March 27, 2018
Action for M.E.'s Children and Young People's Service Team are delighted to re-launch Cheers, a regular update by and for our Young Members.This online update is currently being shared…
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March 23, 2018
Our fundraiser of the week is Ella Walters, who is taking part in Walk With M.E. on behalf of her friend Kate, who has M.E.Ella and the other members of Team Kate - Sophie Hassell,…
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March 23, 2018
Action for M.E. has signed a letter written by the Countess of Mar and Forward M.E. that has been published in The Times newspaper today.The letter, which you can read in full below,…
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March 22, 2018
A study published today in the journal BMC Psychology, which examines data from the PACE trial and evaluates the conclusions from the trial as a whole, raises "serious concerns about…
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March 21, 2018
Research is now being carried out by the Disability Benefits Consortium (DBC) into the impact of welfare reform on disabled people’s lives – and they want to make sure people with M.E.…
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March 20, 2018
People with M.E. who feel able to stay in - or return to - some form of employment need support tailored to their individual needs.One of the ways Action for M.E. has been supporting…
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March 16, 2018
Our fundraiser of the week is Chloe Salanson, who is raising money for us on her birthday.Chloe, who has M.E. herself, said: “I was diagnosed about a year and a half ago after years…
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March 16, 2018
Our CEO Sonya Chowdhury will be on BBC Radio Bristol this morning at around 11am to speak with presenter John Darvall about young people with M.E.Sonya will speak to John about the…
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March 12, 2018
Sonya Chowdhury, Chief Executive, Action for M.E., has been named in the 2018 West Women of the Year Top 100 list.The Bristol Post, who publish the list, says: “We asked you for your…
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March 09, 2018
Our fundraiser of the week is Jemma Storey, who is running the London Marathon for us.Jemma is raising money for us and awareness of M.E. because someone close to her is severely affected…
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March 08, 2018
The Alliance Scotland are seeking your views on living with M.E., and what health and social care you’ve received for the condition. The Alliance is a membership organisation representing…
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March 06, 2018
A new, ambitious, scientific strategy has been developed by the UK CFS/ME Research Collaborative (CMRC), of which Action for M.E. is an active Executive Board member.The Executive Board…
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March 05, 2018
The law is changing for charities, which means that we will no longer be able to contact our supporters unless we have consent to do so – we need your permission to keep in touch.We…
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March 01, 2018
At the end of last year, donations from our brilliant supporters raised more than £121,110 for our Big Give Christmas Challenge.Now, a few months on, we are delighted to win one of…
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February 28, 2018
"Why do we know so little about M.E.?" asks Gary Burgess, guest editor on today's Afternoon Edition on BBC Five Live.Very recently diagnosed, and aiming to explore issues around diagnosis…
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February 27, 2018
Action for M.E. have responded to two consultations highlighting the need for better support to be in place in schools for children and young people with M.E.The Department for Education…
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February 23, 2018
There's just over a week to go until the Bath Half Marathon, and our Fundraiser of the Week is feeling fighting fit."I have been doing my training two or three times a week to build…
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February 22, 2018
Action for M.E. and the Scottish Government Chief Scientist Office are pleased to launch a joint funding call for Scottish Universities to host a PhD studentship in biomedical research…
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February 20, 2018
A parliamentary debate on the PACE trial has highlighted the flaws of the trial and called for greater education among the public and medical practitioners.Carol Monaghan MP (Glasgow…
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February 19, 2018
The National Institute for Health and Care Excellence has announced its next steps in updating its guideline on M.E./CFSAfter a workshop was held last month for stakeholders, including…
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February 16, 2018
Our fundraiser of the week is Nick Biddle, who is running the London Marathon for us this year because his son has M.E.Talking about his son Bud’s experiences, Nick said: “He spent…
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February 14, 2018
“No one should have any doubt the process needs urgent change.”Frank Field MP, Chair of the Work and Pensions Select Committee, has spoken out today about the consistent failings of…
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February 09, 2018
Our fundraiser of the week is the Rotary Club of Baldock, who donated to us after our trustee Sue gave a talk there sharing her own experiences of M.E.The Rotary Club of Baldock is…
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February 08, 2018
A Westminster Hall debate about the PACE trial, and its impact on people with M.E., will be held on Tuesday 20 February.Leading the debate, Carol Monaghan, SNP MP for Glasgow North…
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February 05, 2018
The Department for Communities in Northern Ireland is looking to hear from people who have claimed Personal Independence Payment (PIP), as they launch an Independent Review of the benefit.People…
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February 02, 2018
Our fundraiser of the week is Libby, who raised over £600 for us in one week.Libby is taking part in Walk With M.E., only walking as many steps as she can safely manage, which will…
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February 02, 2018
Our Welfare Advice and Support Service is closed today (2 February) due to our welfare rights advisor being off sick.The line will be open as usual again on Tuesday.We apologise for…
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January 30, 2018
“I went from leading a very active and fun life to being constantly stuck at home isolated and confused. The life I'm living now is not what I thought my early 20s would be like. I…
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January 29, 2018
What would you would like health professionals to understand about living with pain and the ways they can help you?Pharmacist and Action for M.E. volunteer Emily Beardall will give…
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January 26, 2018
Our fundraiser of the week is Gill, who sold jewellery with her son Paul at a Christmas Fair in December.The pair raised £77 from the event and Gill has previously sold jewellery to…
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January 25, 2018
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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January 22, 2018
The Action for M.E. office will be closed this Tuesday 23 January and Wednesday 24 January for staff training. Our Information and Support Service will be unavailable during this time.Our Welfare…
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January 22, 2018
Our Welfare Advice and Support Service will be getting new and extended opening hours from the end of January.The service, which offers free confidential advice on welfare benefits…
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January 19, 2018
Our fundraiser of the week is Liese, who is holding a special Twitch gaming stream for us throughout the year.Lisa said: “Two years ago I was active, bright and happy. I walked across…
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January 18, 2018
Ben Macpherson MSP is hosting a special screening of the award-winning M.E. documentary, Unrest, at the Scottish Parliament this month, on behalf of Shella Films and one of the film's…
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January 17, 2018
“I can’t count the number of times I cried wanting to be out with my friends and having other outside company besides the TV. All I wanted was to have a future that was positive and…
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January 16, 2018
Action for M.E. are attending a National Institute of Health and Care Excellence (NICE) meeting today to inform the scope of the updated NICE guideline on M.E.The NICE guideline offers…
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January 15, 2018
Action for M.E. is delighted to announce the launch of our international advocacy project. Our aim is that, as a result, the World Health Organisation (WHO) and its member states –…
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January 12, 2018
Our fundraiser of the week is Bethany Ollier and her team, who are taking part in this year's Walk With M.E. event.Walk with M.E. is a sponsored team walk, specially designed for people…
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January 11, 2018
A paediatric M.E. research study that Action for M.E. was supporting has found alternative funding, allowing us to use the money to support children and families with M.E. in other…
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January 10, 2018
Our readers' ideas, feedback, stories and experiences are the lifeblood of our Membership magazine, InterAction – and we have two opportunities for people affected by M.E. to contribute…
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January 09, 2018
Walking one million steps over 100 days is a sizeable challenge, even if you don't have M.E.That's why Action for M.E. supporter Natalie asked her friends and family to help - and the Walk…
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January 08, 2018
Thanks to a dedicated team of volunteers, a full report of the fourth annual UK CFS/M.E. Research Collaborative (CMRC) science annual conference, held in Bristol in September 2017,…
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January 05, 2018
"I got to know Sandra when I was her carer for seven years. Although I don’t care for her any more, we remain good friends, messaging each other and I visit her now and then. Sandra…
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January 04, 2018
The latest webinar in Action for M.E.’s series for health professionals will go live on Tuesday 16 January from 8pm to 9pm.Titled M.E./CFS: Management principles for health professionals,…
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December 22, 2017
Our fundraisers of the week are James Reay and his partner Simon Dooley, owners of the Clarendon Showtel in Blackpool who are looking to raise an ambitious target of £250,000 in support…
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December 19, 2017
Award-winning M.E. documentary Unrest is now available to buy on DVD.As a charity partner for the film, Action for M.E. has supported a number of screenings and taken part in Q&As accompanying…
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December 18, 2017
Sarah Newton MP, Minister for Disabled People, Health and Work, has announced that the Department for Work and Pensions (DWP) has dropped its target for 80% of benefit decisions to…
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December 15, 2017
Our fundraiser of the week is Lauren Kendrick, who took part in the Equinox 24 hour race at Belvoir Castle back in September.Lauren was joined by members of her family and friends,…
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December 13, 2017
Five families affected by M.E. attended the 10 Downing Street children's Christmas party this week, accompanied by Mary-Jane Willows, Head of Children's Services at Action for M.E. We…
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December 12, 2017
The Christmas 2017 issue of our membership magazine InterAction is out now. It’s packed with the latest M.E.-related news and features, campaigns and research updates, as well as medical…
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December 11, 2017
The UK Government has announced a strategy to improve employment for disabled people. Action for M.E. responded to the consultation that informed this strategy, highlighting how some…
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December 11, 2017
A recording and the slides from our latest educational webinar for primary healthcare professionals are now available to view in the Health and Care Professionals section of our website.‘Meeting…
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December 08, 2017
Our fundraiser of the week is Manus Noble, a fantastic contemporary guitarist who is putting his considerable skills to great use.We love his Covers for others project, which offers…
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December 06, 2017
The review of the National Institute of Health and Care Excellence (NICE) guideline for M.E. will pay careful attention to the experiences and views of patients and clinicians, a Director…
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December 05, 2017
The Big Give Christmas Challenge has drawn to a close today and thanks to your incredible support we’ve raised an amazing £121,116 including Gift Aid!The support we’ve received from…
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December 05, 2017
We are looking for a fantastic festive photograph to turn into Christmas card to be sold as part of our 2018 Christmas card range. This year, our winner was Christmas Fir by John Wright.Please…
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December 04, 2017
“Action for M.E.'s resources, including their guides about coping with M.E. at work, have been brilliant and really useful” says Hattie, age 27. “I have had a lot of sick days in the…
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December 01, 2017
Our fundraiser of the week is Sean Weller, who’s been hosting a gaming livestream today.Sean, who describes himself as a YouTube gamer from England, has kindly decided to donate half…
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December 01, 2017
"Fatigue and widespread pain are my worst problems. I'm in a wheelchair, bed-bound for days at a time and in pain 24 hours a day. It means I can't leave the house very often and feel…
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November 30, 2017
Thanks to our brilliant supporters, donations to our Big Give Christmas Challenge have just topped £100,000 - which means our match-funding pot has run out, and donations can no longer…
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November 30, 2017
"I was working for a property developer in London at the time, always the one to stay for one more drink at the end of the night and putting in the hours to try and progress my career"…
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November 29, 2017
"The worst thing is feeling so helpless, that I can’t find anything to work for Abbi, or help her – and battling with other people and the school, and close family and friends, who…
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November 28, 2017
Today marks the start of The Big Give Christmas Challenge 2017, which runs from noon on Tuesday 28 November to noon on Tuesday 5 December. During this time, every donation we receive…
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November 24, 2017
“M.E. is not just tiredness, it is pain, confusion, image changes physically and mentally, we hurt, some may argue more than others. M.E. is a life-changing disability and it slows…
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November 24, 2017
Our fundraiser of the week is Meike Scheller, who raised £54.27 for us during a screening of Unrest at Bath University.Meike organized the screening of Jen Brea’s film and put out collection…
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November 22, 2017
Philip Hammond, Chancellor of the Exchequer, will deliver the UK Budget today and outline planned changes to spending, some of which are likely to affect people with M.E.One area where…
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November 21, 2017
There's just over a week to go until our new webinar aimed at educating healthcare professionals about M.E. launches online.Meeting the needs of people with M.E./CFS – essential facts…
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November 17, 2017
Our fundraiser of the week is David Fisher, who’s raised over £900 for us through collection tins at his local rugby club.David has been leaving our collection tins at The Annan Rugby…
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November 16, 2017
People with M.E., their carers and professionals shared their views and experiences of the illness with staff, Trustees and volunteers at our 2017 Annual General Meeting (AGM) and conference…
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November 15, 2017
Action for M.E.'s Annual General Meeting (AGM) will be held tomorrow morning in London, and you are invited to watch live via our Ustream channel. A film of the AGM will also be uploaded…
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November 14, 2017
Action for M.E. has raised concerns about the lack of awareness and understanding of M.E./CFS among health professionals at the Scottish Parliament today.Clare Ogden, Head of Communications…
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November 13, 2017
General entry places have now SOLD OUT for the Bath Half, but there’s still time to join Team Action for M.E. We’re looking for a record-breaking year in 2018, and we need your help…
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November 10, 2017
Our fundraiser of the week is Chelsea Higgott, who held a quiz night at her local pub, The Chadwick Arms.Chelsea has held the event in previous years to raise money for the charity…
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November 09, 2017
A new webinar aimed at educating healthcare professionals about M.E. will be launched later this month.Meeting the needs of people with M.E./CFS – essential facts and practical tips…
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November 08, 2017
Action for M.E. is delighted to support a new film, currently in production, that tells the story of Beth French, who set out to swim the seven most dangerous sea-channels in the world…
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November 08, 2017
New changes have been made to Personal Independence Payment (PIP) that could make it easier for people with M.E./CFS to claim the benefit. Describing the changes, our Welfare Benefits…
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November 06, 2017
Research co-funded by Action for M.E., showing that cellular bioenergetics is impaired in patients with M.E., has been published in the journal PlosOne.Also co-funded by the Medical…
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November 03, 2017
"We cannot remember a day that she was not in pain on some level. It is difficult to imagine and people often don't see us at her worst."This is our fundraiser of the week, Matthew…
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November 03, 2017
As charity partner of the award-winning M.E. documentary Unrest, Action for M.E. is delighted to support a community screening in Bath later this month, where our Chief Executive, Sonya…
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November 01, 2017
The children and adults that Action for M.E. supports rely on services funded by your generous donations. We are absolutely thrilled that, for one week only, those donations will be…
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October 31, 2017
Action for M.E.’s Christmas Angels project – now in its seventh year – enables people with M.E. to send Christmas cards to each other via the Action for M.E. office.If you would like…
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October 30, 2017
"It has been a distressing time for me. By the time I was at tribunal, I was given a five-year award due to the severe impact all of this has had on my health."This is the experience…
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October 27, 2017
Our fundraiser of the week is Ben Brockway, who took part in the Great South Run 2017 along with team members John Spanner, Lewis Rule, Mark Hills, Liz Sinclair and Pete Sinclair.Talking…
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October 26, 2017
We’ve had a great reaction to our consultation on the future of our support services for children and young people but there’s still one group of people we haven’t heard much from –…
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October 25, 2017
People with M.E. who are too ill or unable to attend our AGM and conference next month will be able to join in with discussions about our children’s services from home.Action for M.E.…
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October 24, 2017
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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October 23, 2017
Action for M.E. is campaigning with children who have M.E. and their parents at Westminster today to highlight the challenges they face in accessing education that meets their needs.As…
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October 20, 2017
This week's Fundraiser of the Week is one of our 2018 London Marathon runners, Jon Winter. We are absolutely delighted that he has already raised more then £1,000 for our vital work,…
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Registered in Scotland: SC040452.
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