September 19, 2017
Action for M.E. has responded to a National Institute of Health and Care Excellence (NICE) guideline on Suspected neurological conditions stating that M.E. must not be considered a…
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September 15, 2017
Our fundraiser of the week is Ruth Johns, who has donated the proceeds from her book St Ann’s Nottingham: Inner City Voices, along with Tony Miller, founder of the St Ann’s Well Road…
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September 14, 2017
“I was too unwell to appeal, knowing that the extra stress would cause further relapse.”That’s the experience of just one person with M.E. who inputted into the Disability Benefits…
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September 13, 2017
"Any physician will tell you that you learn a lot more from talking to patients than you do from reading any kind of text book."These are the words of leading US M.E. researcher Dr…
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September 12, 2017
The impact of M.E. will be brought to the attention of senior social workers today when Action for M.E.’s report into families facing false accusations is shared with them at a conference…
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September 11, 2017
Labour MP for East Ham Stephen Timms has tabled an Early Day Motion (EDM) asking MPs to support a review of the NICE guideline for M.E., after being contacted by constituent and M.E.…
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September 08, 2017
Our fundraiser of the week is our Great North Run team!Danny O'Donnell, Sarah Perkin, Matthew Theobald, Selina Jervis, Lynne Blakey and Kelly Hooper will be all be taking part in…
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September 07, 2017
Action for M.E.’s 2017 conference and Annual General Meeting will take place this November and features a screening of Jennifer Brea’s award-winning M.E. documentary, Unrest.The event…
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September 06, 2017
Action for M.E. has helped ensure the needs of people with M.E. are taken into account for a parliamentary meeting about the impact of Brexit on disabled people.We have provided a briefing…
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September 05, 2017
Join Action for M.E. for the Great Birmingham Run 2017 and help raise funds and awareness for a little understood, life stealing neurological condition affecting thousands of men, women…
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September 04, 2017
With many schools starting back today, now is the ideal time to educate yourself about how M.E. can affect young people.If you're a teacher or member of staff working in a school setting,…
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August 31, 2017
Our fundraiser of the week is Siobhan Mays, who is walking and jogging 50 miles as part of a “run at your pace” event.The distance will be covered between September 1 and September…
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August 31, 2017
Many people with M.E. aren’t well enough to stay in employment but for those who are able to manage, it’s vital that their employer understands M.E. and the effect it has on their employee.Our…
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August 31, 2017
If you're hoping to attend the 2017 UK CFS/M.E. Research Collaborative (CMRC) conference featuring Prof Jose Montoya on Wednesday 13 and Thursday 14 September, it's worth bearing in…
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August 25, 2017
Supporting you to stay informed about M.E. research, we publish regular round-ups by Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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August 25, 2017
Our fundraiser of the week is Wendy Tideswell, who is testing her head for heights by taking part in a sponsored wing walk for Action for M.E.Wing walking is exactly what the name suggests…
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August 22, 2017
Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time.…
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August 21, 2017
With the kind permission of Emily Collingridge's family, Action for M.E. has begun selling physical copies of Severe M.E./CFS - a guide to living through our online store.Severe M.E./CFS…
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August 18, 2017
Our fundraiser of the week is Emma Dixon, who is swimming the length of Coniston Water for Action for M.E.Emma raised a fantastic £1,000 in sponsorship in just 24 hours and has raised…
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August 18, 2017
The UK CFS/M.E. Research Collaborative is delighted to announce that Prof Jose Montoya will present his recent findings, linking M.E. to variations in the immune system, at its conference…
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August 17, 2017
Less than half of UK NHS boards commission a specialist service for M.E., and Northern Ireland has no provision at all, leaving thousands of desperately ill people unable to access…
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August 16, 2017
Experts in neurovirology and orthostatic intolerance take the lead at the fourth annual UK CFS/ME Research Collaborative (CMRC) conference next month, which will be filmed by Action…
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August 14, 2017
M.E. will be the focus of Mark Murphy's programme on BBC Radio Suffolk from 7am tomorrow, with a local mum talking about her family's experience of severe M.E.Action for M.E.’s Head…
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August 11, 2017
Our fundraiser of the week is Tim Reynolds, who is taking part in the Thames Path Challenge for us.The Thames Path Challenge involves walking, jogging or running 100km from Putney Bridge…
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August 09, 2017
Action for M.E. has called for improvements to Scottish health services in response to an inquiry into the culture of the NHS in Scotland.In our response to the Health and Sport Committee’s…
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August 07, 2017
A research symposium that includes the latest research by Stanford Genome Technology Center Director Ronald W. Davis will be livestreamed on Saturday, August 12.The symposium, which…
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August 04, 2017
Our fundraiser of the week is Kelly Hooper, who is taking part in the Great North Run for us.Talking about her reasons for supporting us, Kelly said: “18 months ago our daughter Fifi…
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August 01, 2017
New research from Stanford University has found that blood biomarkers may help diagnose Chronic Fatigue Syndrome.The inflammation biomarkers could also give new clues to what causes…
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July 27, 2017
Our fundraisers of the week are Clive and Gina, who are taking part in the Prudential RideLondon 100 event for us this Sunday.Talking about their reasons for supporting us, Clive said:…
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July 25, 2017
A new report by Action for M.E. into specialist services has confirmed that vast numbers of people with M.E. do not have any specialist services in their local area.The report, titled…
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July 25, 2017
If you have experience of living with M.E. or are a professional with an interest in the illness living in Scotland, we'd like to invite you to attend a meeting to help shape our Scottish…
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July 24, 2017
Action for M.E. has told the National Institute for Health and Care Excellence (NICE) that the guideline CFS/M.E.: diagnosis and management must be reviewed in full and updated.NICE…
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July 21, 2017
Our fundraiser of the week is Alistair Houghton, who is taking part in the AJ Bell London Triathlon for us.Taking in several famous London landmarks, the triathlon is considered the…
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July 21, 2017
What treatment or management approaches for M.E. have you been offered by healthcare professionals? Did they listen to your views and treat you with respect?Action for M.E. is asking…
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July 20, 2017
How could services and support for people in Wales be improved, including for children, families and adults with M.E.?If you live in Wales, you can register to take part in research…
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July 18, 2017
Following requests from people with M.E., this year’s CFS/ME Research Collaborative (CMRC) conference is now open to people with M.E., carers and M.E. advocates on both days.Taking…
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July 14, 2017
Our fundraiser of the week is Matthew Driver, who is cycling 100 miles in the Prudential Ride London event for us on July 30 along with his girlfriend Ani.Matthew said: “M.E. is a condition…
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July 10, 2017
Action for M.E. will respond to a National Institute of Health and Care Excellence (NICE) consultation to say that the clinical guideline for M.E. must be reviewed in full.Having considered…
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July 07, 2017
Our fundraiser of the week is Wendy Fisher, who is running the Great North Run for us.Wendy said: “I didn't get a place in the ballot, so thought that was it. Then I spotted the charity…
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July 06, 2017
If you're the parent of a young person with M.E. (or you have M.E. yourself) and are thinking of going on holiday during half-term, it’s worth knowing that at European airports you…
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July 04, 2017
With the school holidays approaching we have a chance for you to treat the family and raise money for Action for M.E.We’ve partnered with Drayton Manor Park to offer tickets to all…
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June 30, 2017
Our fundraiser of the week is Wil Collins, who is combining motorbiking and mountain trekking to raise money for us and awareness of M.E.Explaining the origins of his idea, Wil said:…
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June 30, 2017
Each month Action for M.E. publishes a round-up of research-related news written by our volunteer Emily Beardall, covering a selection of papers published in peer-reviewed journals.Please…
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June 29, 2017
More families that have been helped by our Children's Services Team have been speaking out about false accusations that have been made against them despite the threat of continued action…
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June 28, 2017
The findings of our national survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness were revealed last…
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June 27, 2017
Action for M.E. will be calling for a review of the National Institute for Health and Care Excellence (NICE) clinical guideline on M.E.NICE has announced it will be holding a consultation…
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June 27, 2017
The results of an Action for M.E. survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness will be revealed…
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June 23, 2017
Our fundraiser of the week is the BoneShakers group, who have driven from Calais to Monte Carlo in an old donated car.Family members Gill, Matt, Rhiannon and Jane (who is also an Action…
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June 23, 2017
Some people with M.E. report that using a guided self-help version of graded exercise therapy (GET) helps improve symptoms, says a study published yesterday in the Lancet.Two hundred…
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June 22, 2017
Action for M.E.’s Welfare Rights Adviser is hosting a free welfare benefits seminar in Bristol today for patients and their carers who attend the North Bristol NHS Trust CFS/M.E. and…
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June 21, 2017
The results of an Action for M.E. survey into the experiences of families affected by M.E. who’ve faced false accusations of abuse, neglect and fabricated/induced illness will be revealed…
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June 16, 2017
Our fundraiser of the week is Alice Jones, who ran the Sydney Half Marathon for us in two hours and 22 minutes!Alice decided to raise money for us in aid of her little sister El, who…
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June 14, 2017
The Action for M.E. office will be closed tomorrow (Thursday) for staff training.That means our Information and Support line, Welfare Advice and Support Service, and other services…
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June 14, 2017
If you have M.E., live in London and find yourself having to stand when using public transport, you may benefit from the Please Offer Me a Seat campaign.The scheme by Transport for…
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June 13, 2017
Do you help look after someone with M.E.? Do you give support and assistance to a partner, family member or friend who's living with the condition? If so, that makes you a carer.Action…
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June 09, 2017
Our fundraisers of the week are mother and daughter team, Elizabeth and Sally Keyworth, who are helping us celebrate 30 years of Action for M.E. with some simple, fun challenges you…
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June 09, 2017
In the lead up to the general election, Action for M.E. ran a pledge campaign asking you to contact your parliamentary candidates, and joined 80 other charities in calling for an end…
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June 08, 2017
Increased awareness of M.E. symptoms, a greater understanding of the impact the illness has on patients’ lives and the importance of listening to patients are among the things GPs say…
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June 06, 2017
Our new guide for pharmacists on how best to help people with M.E. has been included in the monthly email alert from the Pharmaceutical Services Negotiating Committee (PSNC), which…
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June 05, 2017
All of the main parties have now released their manifestos for the upcoming General Election on Thursday. We’ve summarised how some of the key policies outlined in the manifestos are…
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June 02, 2017
Our fundraiser of the week is Rachel Ephgrave, who is organising a series of events and activities for Action for M.E. Rachel’s first challenge involved giving up a treat for a week…
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June 02, 2017
A new change to the way Personal Independence Payment (PIP) applications are processed could be helpful to people with M.E.In a recent PIP decision, the tribunal decided that when considering…
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June 01, 2017
Action for M.E. has responded to a National Institute for Health and Care Excellence (NICE) consultation on Intermediate care including reablement stating that reablement is inappropriate…
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May 31, 2017
As M.E. Awareness Month 2017 draws to a close, we’d like to thank everyone who helped us raise awareness and share some information on the difference you helped us make.Some of you…
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May 26, 2017
Action for M.E. has launched an M.E. information resource for community pharmacy teams across the UK, M.E./CFS: a guide for pharmacy teams. In response to the growing need for community…
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May 24, 2017
The totals are now in and we can confirm that our amazing London Marathon runners have raised an incredible £22,016 for us this year!We’d like to say a massive thank you to Michael…
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May 24, 2017
Action for M.E. will be raising awareness of M.E. on BBC Radio Shropshire today from around 10.30am today.Our CEO Sonya Chowdhury will be joining a woman who has had M.E. for nine years…
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May 23, 2017
"I am so fed up of having to explain to people that Danny is not just tired; if only that were the case. We have lost friends, good friends, when we ran out of patience with explaining…
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May 19, 2017
Our fundraiser of the week is the Newby family - Joanne, Lydia and Marcus and Max, who held a bingo and raffle fundraising event at Howard Park Community School.Colleagues and local…
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May 18, 2017
Each month, Action for M.E. volunteer and Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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May 18, 2017
A paediatrics conference hosted today by Royal Devon and Exeter NHS Foundation Trust's South West Paediatric Club has been given the title A Day with the MUPP(ET)S – Medically Unexplained…
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May 16, 2017
In April, our Board of Trustees met to discuss Action for M.E.’s position on a range of key issues relating to our work.This includes a number of serious concerns raised by our supporters…
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May 15, 2017
M.E. Awareness Week may be over but that hasn’t stopped people like Holly from helping us raise awareness for M.E. Awareness Month!Holly has just finished an impressive 13.6 mile walk…
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May 15, 2017
Action for M.E. is urging the next Government to make no more cuts to disability benefits and have partnered with other charities in the Disability Benefits Consortium (DBC) to make…
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May 12, 2017
Our very special fundraiser of the week for M.E. Awareness Week is eight-year-old Yasmin, who is the youngest team leader to have taken part in Walk with M.E.Natalie Heron, one of the…
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May 12, 2017
The Department of Work and Pensions is encouraging its staff to read our toolkit for professionals for M.E. Awareness Day today, which tells employers how best to support people with…
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May 10, 2017
Action for M.E. will continue to educate healthcare professionals by launching a new resource for pharmacy professionals by the end of M.E. Awareness Month.“I spotted a gap in learning…
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May 09, 2017
Action for M.E. has provided briefings for parliamentarians taking part in a debate in the Scottish parliament this week, following a motion from Gail Ross MSP for the Parliament to…
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May 09, 2017
Action for M.E. has launched a new 12-month, Scottish Government-funded project as part of M.E. Awareness Month that will allow us to lead change in Scotland by reaching out to health…
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May 08, 2017
People with M.E. often tell us that the lack of understanding and empathy they receive from the professionals that can make a difference to their lives and members of the public is…
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May 05, 2017
Our fundraiser of the week is Pippa Stacey, who has been selling a special edition Spoonie Survival Kit for M.E Awareness Month 2017.These kits include items specially designed for…
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May 04, 2017
Action for M.E. is pleased to announce the launch of two new forums, offering peer-support to families with M.E.Our young member’s forum is open to Action for M.E. members aged under…
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May 04, 2017
For the past three months, staff here in the Action for M.E. office have got used to having meetings on the hoof – quite literally – as two team members walk one million steps in 100…
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May 03, 2017
The journal PLOS ONE has issued an Expression of Concern about the PACE trial paper it published in 2012.“Several readers have raised concerns about some of the analyses reported in…
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May 02, 2017
We know that people with M.E. score lower on health-related quality of life tests than most other chronic conditions. One in four is house or bedbound, unable to care for themselves…
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April 28, 2017
Our fundraiser of the week is Phil Guy, who organised a concert as a way to support his younger sister Jasmine, who has been living with M.E. for over three years.Talking about his…
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April 28, 2017
Action for M.E. hopes to launch our new closed, private forums early next week.The forums – one for under 18s, and one for parents of children with M.E. – will be accessed through our…
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April 27, 2017
Action for M.E. has submitted evidence to the Work and Pensions Committee inquiry into Personal Independence Payment (PIP).Frank Field MP, Chair of the Committee, wrote to Action for…
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April 25, 2017
Experts in neurovirology, imaging and orthostatic intolerance will take the lead for the fourth annual UK CFS/M.E. Research Collaborative (CMRC) conference, which will this year be…
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April 24, 2017
Action for M.E. has collaborated with other Forward M.E. charities to strongly support the call for M.E. to continue being classified as a neurological condition by the World Health…
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April 21, 2017
This Sunday will see thousands of runners taking to the streets for the Virgin Money London Marathon and we'd like to give a massive thank you to our London Marathon runners.Amelia…
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April 19, 2017
Our Welfare Rights Adviser Anna Nash explains the recent changes to Employment and Support Allowance.From April 2017, the Government has introduced changes to Employment and Support…
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April 13, 2017
Our fundraiser of the week Claire Spake had an interesting idea of how to raise money for us - painting 100 things from the 90s in 100 days!For 100 days from April 10, Claire will be…
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April 12, 2017
Work is progressing well on the planned launch of two new Action for M.E. forums, but technical issues mean that we aren’t able to launch them today as planned.The closed, private forums…
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April 11, 2017
A potential biomarker, and the effect of exercise on the brains and bodies of people with M.E., are the highlights of our monthly research round-up for April. Researched and written…
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April 10, 2017
Record breaking open water swimmer Beth French is to host a gala dinner in Somerset to raise awareness and vital funds for Action for M.E.Beth aims to become the first person to complete…
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April 06, 2017
Our fundraiser of the week is Amanda Wanless, who is raising money for us because her sister has M.E."After taking part in the 10k Winter run I managed to get talked into entering the…
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April 06, 2017
Action for M.E. is looking to recruit a new Senior Fundraiser to work full-time (35 hours per week) in our Keynsham office.You will lead our income generation work alongside colleagues…
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April 05, 2017
The Second Independent Review of the Personal Independence Payment (PIP) Assessment was published last week after Action for M.E. submitted evidence to the review, based on survey responses…
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April 04, 2017
Would you be willing to send an email to help educate GPs about M.E.?Our Medical Advisor, Prof Julia Newton, will host an Action for M.E. educational webinar for GPs and healthcare…
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Registered in Scotland: SC040452.
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