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May 19, 2022
Are you feeling lonely? Want to talk to someone who understands M.E.? Our new project, Listen to M.E., aims to help adults affected by M.E. feel less isolated. Our fully trained…
May 12, 2022
Action for M.E. welcomes the Department of Health and Social Care’s pioneering statement on Myalgic Encephalomyelitis (M.E.) on the first ever World M.E. Day.Ministers set out plans…
May 12, 2022
Today marks the first World M.E. Day and we are pleased to see National Institute of Health and Social Care Excellence (NICE) have outlined the steps needed to put the guideline for…
May 12, 2022
Over the past two years, we have been working with the M.E. community to find out the research priorities that matter most. By asking those with lived experience, carers and clinicians…
May 05, 2022
As we approach the World ME Day on 12 May, we launch Action for M.E.’s new five-year strategy, Shaping our future together. We also have a simple-text version. Developed in partnership…
May 05, 2022
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, the World ME Alliance has released a series of actions to help make…
April 28, 2022
What will you create?The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out…
April 21, 2022
With energy bills rising 14 times faster than wages, households this winter are predicted to see a fall in real-wage income by nearly £1,000. British Gas further estimates that energy…
April 19, 2022
After an amazing year in 2021, raising over £20,000 for M.E. charities across the world, champion fundraiser Anna Redshaw is inviting you to take part in her Blue Sunday Tea Party 2022,…
April 13, 2022
Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book was written…
April 04, 2022
ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact…
April 01, 2022
Responding to the lifting of the Covid restrictions today (1 April), Action for M.E.’s Ruth Richardson, Director of Business Support and Development said:“For many people with M.E.…
March 30, 2022
Were you one of the many who attended the Learn about M.E. Social Care webinar on M.E./CFS & Long Covid? If you were unable to attend, you will be pleased to know that we have shared…
March 16, 2022
The Annual General Meeting (AGM) of the All-Parliamentary Party Group (APPG) on M.E. has been set for Tuesday 29 March 10:00 – 10:30 via Zoom. As always, we’re encouraging you to invite…
March 15, 2022
Despite the devastating impact of M.E., understanding of the disease is still woeful. While at least 250,000 people live with M.E., and even more experiencing overlapping symptoms with…
March 04, 2022
Funded by BBC Children in Need, our Breaking Isolation project - which began in 2020 - brings together a steering group to design and deliver a series of isolation-busting workshops…
March 01, 2022
You are invited to join us for a Self-Advocacy workshop online via Zoom live on Friday 18th March 2022 12:30 pm-2:30 pm hosted by our team of Advocacy officers. The workshops will…
February 28, 2022
The World ME Alliance, a collaborative of organisations from across the globe, is launching World ME Day on 12th May this year. This new initiative aims to bring together organisations…
February 24, 2022
Would you like the opportunity to share your story about what it is like to live with M.E. through a photograph? Photographer and film maker, Jeremy Jeffs, is launching an inspirational…
February 22, 2022
Action for M.E. is hosting a webinar on M.E./CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) for anyone working in social care or social work at 1:30 on Thursday 17th of…
February 01, 2022
We have now completed our merger with The ME Trust and from Tuesday 1 February 2022 will be offering Healthcare Services in addition to our Information, Support & Advocacy Services.…
January 21, 2022
In September 2021 we announced our decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders of both charities.…
January 20, 2022
We were honoured to see Scottish actor Mark Bonnar appear on ITV’s popular game show Celebrity Catchphrase playing for Action for M.E last weekend. Mark is known for his roles as Max…
December 17, 2021
Over the past few weeks, we have been collecting design entries for our Christmas e-card competition. We are delighted to announce that Jen was voted the winner for the competition,…
December 16, 2021
Over 2,000 people with M.E./CFS, carers and health professionals in the UK engaged with the recent survey from the M.E./CFS Priority Setting Partnership. Through three stages of participation,…
December 09, 2021
The M.E./CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future M.E./CFS research.Over 1,700 people have now voted for their…
November 30, 2021
We are delighted to welcome actor Jennie Jacques as an Action for M.E. Ambassador. Jennie Jacques is a British actor who came to fame in the drama Desperate Romantics, which aired…
November 26, 2021
Nominate Action for M.E. in the My Favourite Voucher Codes Charity Poll this December and help us win 20% of the company’s profits!We are excited to announce that we are taking part…
November 23, 2021
Over 1,000 people have now voted for their M.E./CFS research priorities. People with M.E./CFS, carers and clinicians are all asked to take part. The M.E./CFS Priority Setting Partnership…
November 15, 2021
The next All-Party Parliamentary Group (APPG) meeting for M.E. will take place Wednesday 24th November between 2pm-3pm. The meeting will focus on the new National Institute for Health…
November 09, 2021
To shine a light on the difference in M.E. experiences, we want to invite you to describe your experience of the disease for a new art project. The responses will be collated by Alec…
November 08, 2021
The Teachers Educational Supplement (TES) are the leading outlet for providing content, support, and resources for teachers throughout the United Kingdom at the start of their career,…
November 08, 2021
Do you like to be creative? With the festive season on the way, we are launching our Christmas e-Card Design Competition! You could do a drawing, painting, collage, digital drawing,…
November 03, 2021
On 17 September 2021, the Action for M.E. board announced a decision to merge with The ME Trust following a thorough review of the potential benefits to people with ME started in June,…
October 29, 2021
Action for M.E. is delighted, as are the other members of Forward-ME, to see the long-awaited guideline on diagnosing and treating M.E. be published by NICE. The publication follows…
October 25, 2021
The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance,…
October 22, 2021
Statement from Forward-ME: On Monday, Forward-ME and member charities attended a round table to review the new ‘NICE guideline on ME/CFS’ with representatives from NICE and clinical…
October 18, 2021
Update from Forward-ME on this afternoon’s roundtable event hosted by the National Institute for Health and Care Excellence (NICE) today. The event will aim to discuss key issues…
October 14, 2021
The Royal College of GP's annual conference is the must attend-event of the year for GPs and practice team colleagues, showcasing the latest clinical and policy developments across…
October 13, 2021
On Monday, Action for M.E. will attend a roundtable meeting hosted by the National Institute for Health and Care Excellence (NICE). NICE has invited representatives from a range of…
October 11, 2021
Update from Forward-ME on the upcoming round table event, hosted by the National Institute for Health and Care Excellence (NICE) next Monday (18 October), to "discuss key issues raised…
October 07, 2021
We are deeply saddened to learn of the death of Graham McPhee, citizen scientist and champion for people with M.E./CFS. A former maths teacher, Graham took a forensic approach to…
October 05, 2021
Formerly known as the International Alliance for M.E., the World M.E. Alliance has re-launched today with a new website and renewed purpose.There are two strands to its work:bringing…
September 23, 2021
Action for M.E. is saddened to learn of the death of M.E. campaigner Dr Richard Sykes, aged 89 years. Based in Bristol, Richard founded Westcare in 1990, offering counselling services,…
September 23, 2021
Bringing people together to share learning, the ALLIANCE's Self-Management Week 2021 starts on Monday.Avril McLean, Action for M.E.'s Advocacy Senior Practitioner in Scotland, will…
September 22, 2021
Improving lives, inspiring action and investing in change: how can we do more and do better over the next five years? Our most recent annual report says: "We have asked ourselves: what…
September 21, 2021
Special Educational Needs staff and other education professionals will hear about the impact of M.E., and how they can best support students, at nasen Live 2021 this week. Action…
September 17, 2021
On 16 September 2021, the Action for M.E. board approved a decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders…
September 16, 2021
Action for M.E. is among more than 100 UK and international charities, organisations and support groups, alongside 150 scientific and clinical experts, who have co-signed a letter from…
September 11, 2021
Last night, our Chief Executive Sonya Chowdhury and our Medical Adviser Dr David Strain appeared on Kait Borsay’s Times Radio Show to discuss M.E. and Long Covid. A recording of the…
September 09, 2021
Thank you so much to those that have shared the views, questions and concerns about the potential merger between Action for M.E. and The ME Trust. There is still time to let us know…
September 08, 2021
Would you like to share your experience and develop skills to advocate for your needs at work?Led by our experienced Advocacy Officers, our Self-Advocacy in Employment Workshop webinar…
September 07, 2021
For the past month, our Board of Trustees have been exploring a potential merger with UK charity The ME Trust, with a view to making a decision in mid-September. To inform this process…
August 31, 2021
Last week, the National Institute of Health and Care Excellence (NICE) announced that, following the pause to the publication of it guideline on diagnosing and managing M.E./CFS, it…
August 25, 2021
You are invited to our 2021 AGM where you can meet Action for M.E. staff and Trustees, and hear how we've worked with and supported people with M.E. over the past financial year, along…
August 25, 2021
In the three weeks since our press briefing to journalists, we’ve received an unprecedented amount of coverage from all kinds of news outlets. Our intention from the briefing was to…
August 24, 2021
Today, BBC Radio 4’s Woman’s Hour programme featured a 13-minute segment on M.E. and Long Covid, as requested by multiple listeners as part of Listener Week 2021. The two guests were…
August 24, 2021
We understand that many people in the community may be angry or anxious because of NICE’s decision to delay publication of their new guideline. We have been working with other M.E./CFS…
August 20, 2021
On Wednesday 25 August our server will be undergoing an essential upgrade to ensure our website continues to perform as effectively as possible, and keep any data you share with us…
August 18, 2021
Interviewed on BBC Radio 4’s Today programme this morning (listen again online from 07.53) our Chief Executive Sonya Chowdhury urged the National Institute for Health and Care Excellence…
August 17, 2021
Statement on the delay to publication of the NICE guideline on diagnosis and management of M.E., on behalf of Forward ME, Action for ME, ME Association, Doctors for ME, and ME Research…
August 04, 2021
Today we're launching a petition calling for the UK Governments to commit the same level of research funding and recognition to M.E. as we have seen with Long Covid. Hundreds of thousands…
August 04, 2021
On 3 August 2021, the Action for M.E. board approved a decision to explore a merger with The ME Trust after a process of due diligence started in June. The ME Trust is a UK charity…
July 26, 2021
The Act4ME Network, which brings together people with M.E./CFS to amplify our voice and increase our influence, take part in a collective action once a month. For July, we have asked…
July 26, 2021
With just three weeks until the new NICE Guideline is published we are aware that many people with M.E./CFS may be feeling anxious about what is included. Since its consultation…
July 26, 2021
Last week the Department for Work and Pensions (DWP) published the Health and Disability Green Paper. During the past year we have been able to meet representatives of the DWP and Cabinet…
July 26, 2021
Supporting by BBC Children in Need, our free Breaking Isolation workshops are an exciting opportunity to meet other children and young people who have M.E., to get to know each other…
July 25, 2021
On Friday 23 July 2021, Action for M.E. was contacted by a journalist from The Sunday Telegraph and asked to provide comment on a complaint reportedly lodged with the Charity Commission…
July 09, 2021
With Covid-19 restrictions lifting later this month, our medical advisor Dr. David Strain warns about the long-term threat Long Covid poses to young people - drawing comparations with…
July 01, 2021
We’re excited to announce the appointment of Dr David Strain as our Medical Advisor.Dr Strain brings a wealth of clinical and academic experience to our charity, as Senior Clinical…
June 23, 2021
Although we’ve got lots of teams and individuals signed up to take part this year, there’s always room for more. We’ll be running mini-competitions and raising funds and awareness…
June 22, 2021
A major project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your…
June 16, 2021
We were disappointed to read the unsubstantiated and harmful opinions of psychiatrist Jeremy Devine in The Sunday Times on 13/06/2021. We’re glad other experts disagreed with his views…
June 04, 2021
This Volunteers Week, we want to say a huge thank you to every one of our volunteers who makes a real contribution to helping us support people with M.E.We are also hugely grateful…
June 02, 2021
“With the restrictions of having M.E. it feels like I have been in lockdown for over 30 years. Lockdown will continue for people with M.E./CFS and other chronic illnesses.” Mary, pictured,…
June 01, 2021
Walk with M.E. launches today! The sun is shining and we have 12 teams signed up and ready to start counting their collective steps, to raise funds and awareness for people with M.E.…
May 28, 2021
Clinician and researcher Dr David Strain talks about working with people with M.E. and Long Covid in the latest episode of our Learn about M.E. podcast series, out today. Complementing…
May 27, 2021
People with M.E., carers and supporters are working together as part of our new Act4ME Network, launching today, to contribute to lasting change for adults, young people and families…
May 21, 2021
This week there have been lots of questions and discussion on our Twitter feed about a medication called Aripiprazole, more commonly sold as Abilify.Anecdotally, some people with M.E.…
May 12, 2021
Action for M.E. and US charity Solve ME are excited to share that Profs Chris Ponting and Liz Worthey will work with postdoctoral fellows as part of our recently announced trans-Atlantic…
May 04, 2021
WEDNESDAY 12 MAY UPDATE Response from NICE now added, please see belowOur Chief Executive, Sonya Chowdhury, has written to the National Institute of Health and Care Excellent (NICE)…
April 29, 2021
Covid-19 has a significant impact on symptoms for people with M.E., according to initial findings of the ongoing survey we're conducting with #MEAction UK and #MEAction Scotland.Gathering…
April 28, 2021
Bringing together people with M.E. for mutual peer-support in Scotland over five years, our brilliant Mentor M.E. project has come to an end. Mentors and mentees marked the end of…
April 19, 2021
Could your ideas shape the future of M.E. research? The M.E./CFS Priority Setting Partnership (PSP), led by a Steering Group of people with M.E./CFS, carers and health professionals,…
April 15, 2021
London Marathon Events have teamed up with the Captain Tom Foundation to host the Captain Tom 100, a sponsored event to celebrate Captain Tom’s life and raise vital funds for charities…
April 09, 2021
Last night’s edition of Newsnight on BBC2 tackled the issue of treatment for long Covid and drew parallels with treatment options for M.E./CFS. There are some striking similarities…
April 08, 2021
The Annual General Meeting of the All-Party Parliamentary Group on M.E. (APPGME) will take place on Monday 19 April between 11:00 – 12:00.This meeting is for MPs only and anyone can…
April 07, 2021
On Thursday 15 April, from 6.00-6.45pm, the DecodeME Management Group will be hosting a live Q+A webinar on the DecodeME Facebook page. The webinar will focus primarily on the recruitment…
March 30, 2021
The National Institute for Health and Care Excellence (NICE) emailed stakeholders yesterday to let us know there will be a delay in the publication of its new guideline for diagnosing…
March 29, 2021
Many areas across the United Kingdom have now entered a time of political purdah – the name given to the time between when an election campaign officially starts and when the vote is…
March 26, 2021
The ever supportive and creative Danny Redhead is back with his latest fundraising idea - the #LastPhotoChallenge. Danny (pictured centre), who we’ve featured a number of times due…
March 23, 2021
While lockdown may be ending soon for many across the country, thousands of people with M.E. have been in lockdown for decades and will continue to live a life in lockdown even when…
March 22, 2021
Action for M.E. and its partner #MEAction UK are today launching a survey to find out the effect that Covid-19 has on people with M.E Sam Bromiley, Participation and Influencing Officer…
March 16, 2021
This annual event, organised by Carers Trust, has taken place over the past six years to raise awareness of young carers and the contribution they make to their families and local communities.…
March 15, 2021
On 11 March a letter was published in The Guardian claiming that those with post-Covid fatigue syndrome should not be discouraged from trying graded exercise therapy. Along with other…
March 12, 2021
These amazing seven friends are raising funds for Action for M.E. by running or cycling the length of the iconic Route 66, a gruelling 2,280 miles. Jake, Chris, Dan, Ian, Matt, Paul…
March 09, 2021
An article in the Herald Scotland has warned of the risk of a ‘tidal wave of post-pandemic M.E’. The piece highlights how previous mistakes made with M.E. are now being repeated…
March 08, 2021
Action for M.E. is pleased to announce its trans-Atlantic partnership with US charity Solve M.E., focused on enhancing the wellbeing of people with M.E., raising awareness, delivering…
March 05, 2021
Not everyone can say they’ve cycled from Land’s End to John O’Groats (1,084 miles) in 84 days. But our Fundraiser of the Week, Rob, can! This is not the first time Rob has been FOTW…
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