Walk with M.E. reaches half way point

July 21, 2021


Dr David Strain on M.E. & long term impact of Long Covid

July 09, 2021

With Covid-19 restrictions lifting later this month, our medical advisor Dr. David Strain warns about the long-term threat Long Covid poses to young people - drawing comparations with…


​Meet our new Medical Advisor, Dr David Strain

July 01, 2021

We’re excited to announce the appointment of Dr David Strain as our Medical Advisor.Dr Strain brings a wealth of clinical and academic experience to our charity, as Senior Clinical…


Walk with M.E. 2021 has officially begun

June 23, 2021

Although we’ve got lots of teams and individuals signed up to take part this year, there’s always room for more. We’ll be running mini-competitions and raising funds and awareness…


Two weeks to send in your research ideas

June 22, 2021

A major project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your…


Letter to Sunday Times: Harmful Long Covid article

June 16, 2021

We were disappointed to read the unsubstantiated and harmful opinions of psychiatrist Jeremy Devine in The Sunday Times on 13/06/2021. We’re glad other experts disagreed with his views…


Huge thank you to our amazing volunteers

June 04, 2021

This Volunteers Week, we want to say a huge thank you to every one of our volunteers who makes a real contribution to helping us support people with M.E.We are also hugely grateful…


The difference you made this M.E. Awareness Month

June 02, 2021

“With the restrictions of having M.E. it feels like I have been in lockdown for over 30 years. Lockdown will continue for people with M.E./CFS and other chronic illnesses.” Mary, pictured,…


Walk with M.E. 2021 starts today!

June 01, 2021

Walk with M.E. launches today! The sun is shining and we have 12 teams signed up and ready to start counting their collective steps, to raise funds and awareness for people with M.E.…


Dr David Strain in latest Learn about M.E. podcast

May 28, 2021

Clinician and researcher Dr David Strain talks about working with people with M.E. and Long Covid in the latest episode of our Learn about M.E. podcast series, out today. Complementing…


Join our new Act4ME network

May 27, 2021

People with M.E., carers and supporters are working together as part of our new Act4ME Network, launching today, to contribute to lasting change for adults, young people and families…


Responding to questions about Abilify

May 21, 2021

This week there have been lots of questions and discussion on our Twitter feed about a medication called Aripiprazole, more commonly sold as Abilify.Anecdotally, some people with M.E.…


Trans-Atlantic research fellowship announced

May 12, 2021

Action for M.E. and US charity Solve ME are excited to share that Profs Chris Ponting and Liz Worthey will work with postdoctoral fellows as part of our recently announced trans-Atlantic…


Letter to NICE: concern over guideline delay

May 04, 2021

WEDNESDAY 12 MAY UPDATE Response from NICE now added, please see belowOur Chief Executive, Sonya Chowdhury, has written to the National Institute of Health and Care Excellent (NICE)…


Survey results so far: impact of Covid on M.E.

April 29, 2021

Covid-19 has a significant impact on symptoms for people with M.E., according to initial findings of the ongoing survey we're conducting with #MEAction UK and #MEAction Scotland.Gathering…


Celebrating five years of Mentor M.E.

April 28, 2021

Bringing together people with M.E. for mutual peer-support in Scotland over five years, our brilliant Mentor M.E. project has come to an end. Mentors and mentees marked the end of…


You can shape the future of M.E. research

April 19, 2021

Could your ideas shape the future of M.E. research? The M.E./CFS Priority Setting Partnership (PSP), led by a Steering Group of people with M.E./CFS, carers and health professionals,…


Captain Tom 100: do it your way

April 15, 2021

London Marathon Events have teamed up with the Captain Tom Foundation to host the Captain Tom 100, a sponsored event to celebrate Captain Tom’s life and raise vital funds for charities…


Response to Newsnight item on treatment of long Covid

April 09, 2021

Last night’s edition of Newsnight on BBC2 tackled the issue of treatment for long Covid and drew parallels with treatment options for M.E./CFS. There are some striking similarities…


APPG on M.E. to take place on 19 April

April 08, 2021

The Annual General Meeting of the All-Party Parliamentary Group on M.E. (APPGME) will take place on Monday 19 April between 11:00 – 12:00.This meeting is for MPs only and anyone can…


​DecodeME webinar on Thursday 15 April

April 07, 2021

On Thursday 15 April, from 6.00-6.45pm, the DecodeME Management Group will be hosting a live Q+A webinar on the DecodeME Facebook page. The webinar will focus primarily on the recruitment…


NICE guideline delayed until August 2021

March 30, 2021

The National Institute for Health and Care Excellence (NICE) emailed stakeholders yesterday to let us know there will be a delay in the publication of its new guideline for diagnosing…


May elections: contact your candidate about M.E.

March 29, 2021

Many areas across the United Kingdom have now entered a time of political purdah – the name given to the time between when an election campaign officially starts and when the vote is…


Get involved with the Last Photo Challenge

March 26, 2021

The ever supportive and creative Danny Redhead is back with his latest fundraising idea - the #LastPhotoChallenge. Danny (pictured centre), who we’ve featured a number of times due…


National Day of Reflection

March 23, 2021

While lockdown may be ending soon for many across the country, thousands of people with M.E. have been in lockdown for decades and will continue to live a life in lockdown even when…


​Survey: the impact of Covid on people with M.E.

March 22, 2021

Action for M.E. and its partner #MEAction UK are today launching a survey to find out the effect that Covid-19 has on people with M.E Sam Bromiley, Participation and Influencing Officer…


Today is Young Carers Action Day

March 16, 2021

This annual event, organised by Carers Trust, has taken place over the past six years to raise awareness of young carers and the contribution they make to their families and local communities.…


CEO responds to letter in The Guardian

March 15, 2021

On 11 March a letter was published in The Guardian claiming that those with post-Covid fatigue syndrome should not be discouraged from trying graded exercise therapy. Along with other…


Fundraisers of the week: Seven friends do Route 66

March 12, 2021

These amazing seven friends are raising funds for Action for M.E. by running or cycling the length of the iconic Route 66, a gruelling 2,280 miles. Jake, Chris, Dan, Ian, Matt, Paul…


Herald article warns of M.E. risks

March 09, 2021

An article in the Herald Scotland has warned of the risk of a ‘tidal wave of post-pandemic M.E’. The piece highlights how previous mistakes made with M.E. are now being repeated…


Proud to be partnering with Solve M.E.

March 08, 2021

Action for M.E. is pleased to announce its trans-Atlantic partnership with US charity Solve M.E., focused on enhancing the wellbeing of people with M.E., raising awareness, delivering…


Fundraiser of the week: Rob cycles 1,084 miles

March 05, 2021

Not everyone can say they’ve cycled from Land’s End to John O’Groats (1,084 miles) in 84 days. But our Fundraiser of the Week, Rob, can! This is not the first time Rob has been FOTW…


​Action for M.E. comment on Government Budget

March 03, 2021

Today, the Chancellor will be unveiling his Spring Budget, with the UK Government set to announce a 6-month extension to the £20 uplift to Universal Credit.  This is welcome news. However,…


Workshops for young people with M.E.

March 02, 2021

Our Breaking Isolation workshops are an exciting opportunity for children and young people who have M.E. to get to know each other and take part in fun games and creative activities.…


​Action for M.E. joins Long COVID Alliance

March 01, 2021

Action for M.E. has joined 50 international partner organisations to form the Long COVID Alliance, an organisation with aims to educate policy makers and accelerate research to transform…


BBC Horizon on M.E. and Long Covid

February 26, 2021

We were very pleased to hear Dr David Strain highlight the fight for people with M.E. to get recognition, respect and research on BBC Horizon last night. Discussing his work with people…


More than 1,000 survey responses: add yours now

February 25, 2021

More than 1,000 people have so far completed a survey which researchers from the University of Cardiff hope will help better inform healthcare workers about the needs of families and…


Clare talks M.E. on BBC Radio Tees

February 24, 2021

This morning, our Services and Communications Team Leader, Clare Ogden, appeared in place of CEO Sonya Chowdhury on the Neil Green show on BBC Radio Tees to discuss M.E. and the lack…


Sonya interviewed on BBC Radio Tees

February 23, 2021

Last week, the All-Party Parliamentary Group on Coronavirus called for Long Covid to be recognised as an occupational disease for frontline health and care workers."The long-term consequences…


CPD module to assist health professionals

February 18, 2021

“Imagine feeling viral, exhausted, unwell and in pain, confined to your bed or house, lying in a dark room for years or even decades. The world has been shocked by the damage that viruses…


Guardian article on Covid priority groups

February 15, 2021

“Sonya Chowdhury, the chief executive of Action for ME, said she was shocked that the condition (M.E./CFS) had been left out of category 6… Even mild viruses can cause flare-ups and…


Join our UK-wide self-advocacy workshop

February 11, 2021

Following the success of our recent advocacy workshops for people in Bath and North East Somerset, we’re pleased to announce that we will repeat the workshop for people across the UK…


Apply for your London Marathon 2021 place

February 05, 2021

“It means a great deal to myself, to Laura (Joe’s partner who has M.E.) and to the thousands of people who deal with this illness every day.” – Joe, who took part in the 2020 virtual…


DBC report: the pandemic and legacy benefits

February 03, 2021

The Disability Benefits Consortium (DBC), a group made up of over 100 charities including the MS Society, Parkinson’s UK, and ourselves, has published a report on how the pandemic has…


Join our free self-advocacy workshop

January 29, 2021

Following the success of our free online self-advocacy workshops in 2020, we’re pleased to announce that we will host more in February and March.Led by our experienced Advocacy Officers,…


Our CEO responds to Prof Paul Garner

January 28, 2021

Action for M.E. CEO, Sonya Chowdhury, responds to Prof Paul Garner.This morning, Prof Paul Garner appeared on BBC Breakfast to talk about his recovery from Long Covid. Building on…


​International M.E./CFS family impact study

January 26, 2021

The opportunity to take part in an international research study looking at the impact of M.E./CFS on quality of life of patients and their family members is open until 31st March 2021.…


National Strategy for Disabled People: have your say

January 25, 2021

The Disability Unit in the Cabinet Office is currently developing a National Strategy for Disabled People, scheduled for publication in spring 2021. To help inform the strategy, which…


Guardian column on M.E. and Long Covid

January 22, 2021

“If one good thing emerges from this pandemic, it could be more recognition and funding for people with ME/CFS.” Columnist George Monbiot wrote a piece in the Guardian yesterday about…


Watch 'Demystifying ME/CFS' webinar

January 19, 2021

Last week, on Thursday 14 January, Dr Charles Shepherd from the ME Association, Dr Nina Muirhead, and Caroline Kingdon from the UK ME/CFS Biobank each gave presentations at the ‘Demystifying…


Bath Half Marathon 2021

January 18, 2021

This year’s Bath Half Marathon is taking place on Sunday 5 September, with half the number of participants to adhere to social distancing measures. We're calling for people to run…


M.E. referenced in House of Commons Long Covid debate

January 15, 2021

A Long Covid debate was held yesterday in the House of Commons during which MPs highlighted M.E. and called for lessons to be learned from the illness when treating Long Covid patients.…


​Scotland consultation on Adult Disability Payment

January 14, 2021

The Scottish Government is consulting on the draft regulations for Adult Disability Payment (ADP), a new Scottish benefit that will replace Personal Independence Payment (PIP). Delivered…


Joint charity statement on Covid-19 vaccine

January 13, 2021

For up-to-date information on the vaccine, including a template letter highlighting that M.E. is an underlying neurological condition that should be in priority group 6, please visit…


'This is ME': a short film on Spoon Theory

January 11, 2021

“Back in 2019 when still in a bad flare up of M.E. I made a short film hoping to shed some light on our experiences with invisible illnesses and in particular the way in which our family/friends…


Call for UK biomedical PhD Studentships

January 07, 2021

Action for M.E. is delighted to announce a call for applications for biomedical PhD studentships. Following the success of our Big Give Christmas Challenge, and the generosity of…


Health Rising article shares info on Covid vaccines

January 05, 2021

M.E./CFS journalist Cort Johnson has written an article sharing information about Covid vaccines for people with M.E.This article lists nine vaccines that have been approved or are…


Onwards and upwards, because of you

December 24, 2020

Ruth Richardson, Operations Director, reflects on 2020 and how your support means we can be here for even more people with M.E.Some people with M.E. who have contacted us for support…


Our response to draft NICE guideline

December 23, 2020

Action for M.E. has responded to the consultation on the draft National Institute for Health and Care Excellence (NICE) guideline for M.E./CFS. While there are a number of positive…


Penguin publish Maia’s letter from lockdown

December 21, 2020

A new book from Penguin, Letters from lockdown, brings together stories sent in by BBC Radio 4 listeners for its “Covid chronicles” series – including 14-year-old Maia-Simona, who has…


Our Big Give final total is in

December 18, 2020

A big thank you to everyone who supported our Big Give Christmas Challenge campaign this year. Following a turbulent 2020, the campaign took on extra significance as a means to raise…


NICE rapid response guideline on Long Covid

December 18, 2020

NICE has published its COVID-19 rapid guideline: managing the long-term effects of COVID-19. Developed jointly by NICE, the Scottish Intercollegiate Guidelines Network and the Royal…


​Minister hears about issues facing people with M.E.

December 17, 2020

On Wed 16 Dec, as members of the Regional Stakeholder Network for Disability, Action for M.E. attended a roundtable discussion with Justin Tomlinson MP, Minister of State for Disabled…


Forward-ME call for NICE guideline warning

December 10, 2020

The Forward-ME group has called for a health warning to put added to the existing NICE guideline for M.E. to limit potential damage through graded exercise therapy (GET). This comes…


Best Patient Support award for Action for M.E.

December 08, 2020

We are pleased to announce that Action for M.E. has been named Best Patient Support Charity at the 2020 SME Southern Enterprise Awards.The annual Southern Enterprise Awards recognise…


Thank you for your Big Give support

December 08, 2020

Thank you to everyone who has contributed to our Big Give Christmas Challenge 2020. One week on from when it started, the challenge has now come to an end.In what has been an unprecedented…


Dr Nina Muirhead: take part in our new M.E. study

December 03, 2020

We are excited to promote a new international research study looking at the impact of M.E./CFS on the quality of life for people with M.E. and their family members. Dr Nina Muirhead…


The Big Give 2020 is underway!

December 01, 2020

The Big Give Christmas Challenge 2020 is officially underway!Throughout our Big Give Christmas Challenge, from noon today to noon on Tuesday 8 December, all donations to us via the…


This Big Give, help us support people like Alex

November 27, 2020

“I’m Alex, I’m 11 years old, and I’ve had M.E. for 2 and a half years. I’m mainly housebound/bedbound, a lot of people don’t understand M.E. and how one day you can look “healthy” and…


​M.E. and Covid-19 vaccine: your questions

November 23, 2020

For up-to-date information on the vaccine, including a template letter highlighting that M.E. is an underlying neurological condition that should be in priority group 6, please visit…


Fundraiser of the week: birthday fundraiser Lizzy

November 20, 2020

“It absolutely made my birthday, knowing that this would in turn help lots of other people, especially in such a difficult year.” Our fundraiser of the week is Lizzy, whose birthday…


CEO Sonya talks M.E. on BBC Radio Bristol

November 19, 2020

Our CEO Sonya Chowdhury appeared on BBC Radio Bristol’s mid-morning show with John Darvall on Thursday 19 Nov. On the show, Sonya discussed the draft NICE guideline for M.E. that was…


​Draft NICE guideline for M.E.: have your say

November 10, 2020

The National Institute for Health and Care Excellence (NICE) has published its draft guidance on the diagnosis, treatment and management of M.E./CFS. Updated guidance has been long-awaited…


Fundraiser of the week: the ChallengeME team

November 06, 2020

“Their response has been overwhelming, with challenges including a 50-minute family disco dance, 50km walks and Hiking along the Yangtze River!” Emma and her team, who are undertaking…


Invite your MP to the next APPG on M.E.

November 05, 2020

A second All-Party Parliamentary Group (APPG) meeting for M.E. in as many months is taking place in November. Following October’s APPG on welfare benefits, this meeting will focus on…


Key information following lockdown announcement

November 02, 2020

Following Saturday’s announcement that England is set to go into a second lockdown from Thurs 5 November until Wed 2 December, it’s understandable that you may have a range of concerns…


Push for extension of local welfare assistance

October 29, 2020

Have you benefitted from support from local councils to help those struggling financially during the pandemic? The Trussell Trust have published a report making the case for extending…


Reminder: NICE draft guideline to be published 10 Nov

October 27, 2020

Please note that the updated NICE draft guideline for M.E. is scheduled to be released two weeks today, on Tuesday 10 November.Following the release of the draft guideline, there will be…


​Join our Breaking Isolation workshops

October 26, 2020

Funded by BBC Children in Need, our Breaking Isolation project is being co-designed and delivered by young people with M.E. The three-year project will see our steering group come…


Casey Stoner discusses his M.E. diagnosis and 'Help Cure ME'

October 22, 2020

“As much as it’s great for me to get these warm responses, I hope that other people out there in the world can get some support.” Two time Moto GP world champion Casey Stoner has…


​BACME position paper: comment and feedback

October 21, 2020

The British Association for CFS/M.E. (BACME), a network for UK clinical M.E. professionals, aims to “champion clinically effective practice in treating CFS/ME [sic] and other primary…


Funding secured for M.E. education module in Scotland

October 20, 2020

A collaboration of M.E. charities, led by Action for M.E., has been granted funding from the Scottish Government to support M.E. education for doctors in Scotland. Last year, we…


​Join us for #DADvirtual on Sunday 25 October

October 19, 2020

To raise awareness of M.E. and the burden it places on the lives of over 250,000 people in the UK, Action for M.E. will be taking part in the Virtual Disabilities Awareness Day event…


Scottish Goverment warns against GET and CBT for M.E.

October 16, 2020

The Scottish Government has written to M.E. organisations to highlight its recent updated advice cautioning against using graded exercise therapy (GET) and cognitive behaviour therapy…


Knighthood for Professor Stephen Holgate

October 12, 2020

Professor Stephen Holgate has been knighted for services to medical research in the 2020 Queen’s Birthday Honours List. Stephen, who works as ‘Medical Research Council Clinical Professor…


Fundraiser of the week: our virtual London Marathon team

October 09, 2020

On a miserably rainy Sunday last weekend, not only did Joe, Steve, David, Jeanette, Phil and Sophie decide to head outside, they took part in the Virgin Money London Marathon: The 40th…


First PSP steering group meeting to take place today

October 09, 2020

The first meeting of the newly formed M.E./CFS Priority Setting Partnership (PSP) Steering Group is taking place later today. The project, supported by three Government-backed research…


APPG on M.E. on welfare benefits: invite your MP

October 05, 2020

One of the many people with M.E. we have supported to apply for PIP will share their experience of the welfare benefits system at this week's All Party Parliamentary Group (APPG) meeting…


Fundraiser of the week: Danny and his ink cartridge initiative

October 02, 2020

Our fundraiser of the week is Danny, who has collaborated with his local GP surgery to raise funds for Action for M.E. Through Recycle4Charity scheme, Danny has set up ink cartridge…


Learn more about the winter flu jab

October 01, 2020

If you’re unsure about what events this year have meant for getting your flu vaccine this winter, consider checking out our ‘Winter flu jab’ page on our website setting out information…


Check out Astriid's latest 'ME in the workplace' webinar

September 29, 2020

This National Inclusion Week, we’re pleased to be supporting specialist employment charity Astriid, hosting a second 'ME in the workplace' webinar following the success of their first…


Action for M.E.'s Avril presents at Self-Management Week

September 28, 2020

Join Action for M.E. as we speak at Alliance’s self-management event this Thursday (1 October) as part of Self-Management Week, running today until Sunday. This year’s ‘My Wellbeing,…


Disability tax update

September 24, 2020

The Chancellor has announced that there will no longer be an Autumn Finance Statement, within which there had been proposals to introduce a new tax on online shopping. The proposed…


Useful resources following yesterday’s Covid-19 restrictions

September 23, 2020

With yesterday’s announcement about new UK restrictions relating to Covid-19, we know lots of you may be feeling concerned, let down and frustrated. While for many with M.E., lockdown…


Fundraiser of the week: Penny's sister Eleanor

September 18, 2020

“I want Penny to live life to the fullest and to not miss out on seeing friends, travelling or even something so simple as going to school."Eleanor Braham's younger sister Penny has…


Facebook fundraiser of the week: 14-year-old Hugh

September 16, 2020

Hugh recently celebrated his 14th birthday. He was diagnosed with M.E./CFS when he was eight years old. He told us:"It was hard especially after just recovering from an excruciating…


Going to university: information, support and advice

September 14, 2020

Starting or returning to university this year presents many challenges for students. Those with M.E. may find themselves able to access remote learning more easily, given the circumstances…


Fundraiser of the week: Andrew Maybury

September 11, 2020

Our fundraiser of the week, Andrew Maybury, is taking part in the Great North Run Reimagined on Sunday.It’s a challenge that the majority of people with M.E. would be unable to even…


M.E., long Covid and getting the right support

September 10, 2020

Forward ME has published an open letter addressing concerns and highlighting best practice with regards to rehabilitation of people with long Covid who are experiencing post-viral fatigue.…


Back to school: information, support and advice

September 07, 2020

School is now back in session, though this often means something very different for young people with M.E. and their parents.We know that, while many will be pleased about schools going…