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December 06, 2023
Action for M.E. is today launching a Parliamentary Champions network which will further bolster our advocacy and ensure that the voice of the M.E. community is heard in Parliament.…
November 23, 2023
The tenth episode of our Learn about M.E. podcast series is available to listen to now. We welcome Consultant Respiratory Physician Dr Binita Kane and parent Helen Gibson, who highlight…
November 22, 2023
As a member of the Disability Benefits Consortium, Action for M.E. is calling on the Government to put a stop to their alarming benefits changes which could see many disabled people…
November 09, 2023
On 6 November, the Department of Health and Social Care (DHSC) released an update providing information about work to develop the Final Delivery Plan on ME/CFS.You can find out more…
November 07, 2023
On Monday 3 October, Carol Monaghan MP, who also serves as the Chair of the APPG on ME, visited the team at the DecodeME Study at the University of Edinburgh. The purpose of her visit…
November 06, 2023
Trustees’ Week is a time for us to come together to celebrate the achievements of nearly one million trustees across the UK. The theme for this year is: Many voices. Working Together.…
November 02, 2023
Every year, we challenge children, young people and adults across the UK to get Christmassy and creative. Whether it’s a drawing, painting, collage, photograph or even a cross-stitch,…
November 01, 2023
Action for M.E. pays tribute to the life and work of Keith Anderson, M.E. Nurse Consultant in NHS Fife who offered life-altering support for people with M.E. from the Ladybank Clinic…
October 30, 2023
We are delighted to see the final copy of BACME’s National Services Survey. As a charity, we remain forever grateful for the work of clinicians within the ME/CFS space; a space that…
October 30, 2023
The next meeting of the All-Party Parliamentary Group (APPG) on M.E. will take place on Wednesday 15 November at 1.30pm-4.30pm.The upcoming meeting will be centred around research,…
October 26, 2023
We are delighted to have received funding from The National Lottery Community Fund for a new counselling project for young people with M.E. The project will start in 2024 and will be…
October 16, 2023
In anticipation of the forthcoming UK General Election, expected to be called by the Prime Minister in 2024, we have published a Manifesto on M.E. which presents three key calls to…
October 06, 2023
The Department of Health and Social Care (DHSC) has provided an update on next steps on the Interim Delivery Plan which has now closed for consultation for submissions online. Around…
October 05, 2023
IntroductionMy full reality: the interim delivery plan on ME/CFS was published by the Department of Health and Social Care (DHSC) on 9 August 2023. Consultation on the plan was open…
October 03, 2023
Our Annual General Meeting (AGM) was held on Friday 29 September, chaired by Roger Siddle, Chair of our Board of Trustees.The AGM covered key agenda items, including the presentation…
October 02, 2023
We are thrilled to announce that the first Clare Francis Research fellowship has been awarded to Audrey Ryback.Audrey will be affiliated to the Genetics Centre of Excellence at the…
September 27, 2023
We are deeply saddened to hear that Janice Kent died peacefully in hospital on 18th September after a short illness. Janice and her husband Bill founded reMEmber, which received The…
September 25, 2023
The DecodeME study, which is the world's largest DNA study on M.E., has announced a recruitment closing date of Wednesday, 15 November at 5pm. The team are encouraging those who live…
September 18, 2023
Self Management Week 18 – 21 September 2023 #ISelfManageWe are supporting the Health and Social Care Alliance’s Self Management Week through highlighting resources we offer that people…
August 24, 2023
Today, the initial findings from the DecodeME questionnaire data collected from the first 17K participants have been published on NIHR Open Research. You can find a summary blog of…
August 21, 2023
You are invited to our 2023 Annual General Meeting (AGM), where you can hear from Action for M.E. staff and trustees, ask questions and find out how we’ve worked with and supported…
August 11, 2023
Following the launch of the much-anticipated cross-Government interim delivery plan on ME/CFS earlier this week, the Department of Health and Social Care (DHSC) have been in touch to…
August 09, 2023
Today, we welcome the release of the much-anticipated cross-Government interim delivery plan on ME/CFS which is now open for its consultation phase. The Department of Health and Social…
July 25, 2023
Following our merger with The ME Trust in February 2022, we are now able to offer a variety of Healthcare Services. As part of this, we offer a Chaplaincy service where our team of…
July 18, 2023
APPG on M.E. 10 May 2023 The All-Party Parliamentary Group (APPG) on M.E. took place on Wednesday, May 10, alongside the Annual General Meeting (AGM) of the APPG on M.E. Presentations…
July 10, 2023
Our new podcast episode in our Learn about M.E. series is now available to stream: ‘Learn about M.E. and GP Prescribing’. In this episode, we discuss why GP Prescribing is important…
June 27, 2023
Action for M.E. has become a charity partner of Charitable Travel, a travel company that allows holidaymakers to donate a portion of their holiday price to their charity of choice at…
June 14, 2023
We are delighted to announce that our CEO Sonya Chowdhury has been shortlisted as Director of the Year in the Public and Third Sector category in the Institute of Directors’ awards.…
June 01, 2023
The Annual General Meeting (AGM) of the APPG on M.E. took place on Wednesday, May 10. Presentations were given by Sonya Chowdhury, the CEO of Action for M.E., on the implementation…
May 30, 2023
Our FOI report has revealed that people with M.E. are dealing with shockingly poor and patchy provision of services in England. In 2021, the NICE Guideline (NG206) on Myalgic Encephalomyelitis/Chronic…
May 12, 2023
This World ME Day, we are calling for greater understanding in society that pushing harder can make you sicker. For people with Myalgic Encephalomyelitis, post-exertional malaise…
May 02, 2023
The next meeting of the All-Party Parliamentary Group (APPG) on M.E. with be the Annual General Meeting (AGM) on Wednesday 10 May at 2pm.In addition to reconstituting the APPG, the…
April 26, 2023
Champion fundraiser Anna Redshaw’s Blue Sunday Tea Party for M.E. is celebrating its 10th anniversary this year! Anna, who has had M.E. since 2010 and has so far raised over £70,000…
March 27, 2023
Join our Self Advocacy and Self Directed Support (SDS) Scotland Workshop to hear about how you or someone who supports or cares for you can access and advocate for Self Directed Support…
March 16, 2023
We’re delighted to launch our media guidelines to better inform media stories on Myalgic Encephalomyelitis (M.E.) For too long, people with Myalgic Encephalomyelitis (M.E.) have struggled…
February 15, 2023
We’re excited to release the next podcast episode in our Learn about M.E. series, focusing on the ground-breaking DecodeME study and why it is important to people with M.E.The episode…
February 08, 2023
The CPD accredited module on Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome (CFS), originally developed by Dr Nina Muirhead with the UK ME Research Collaborative, has been…
February 07, 2023
The World ME Alliance have announced the World ME Day 2023 theme. ME: The disease where pushing harder can make you sicker. For May 12th this year, we will be focusing on post-exertional…
February 01, 2023
We are running a Breaking Isolation workshop for young people aged 15-18, funded by BBC Children in Need.Registration to take part in this workshop is closed, as this workshop is now…
January 26, 2023
Yesterday, we joined the World ME Alliance in writing to Dr Tedros Ghebreyesus, Director General of the World Health Organization (WHO), and Dr Bente Mikkelsen, Director of the WHO…
January 25, 2023
Episode 7 of our Learn About M.E. podcast is live! In this episode, we outline how specialist physiotherapists can support people with M.E. to better manage their physical health.…
January 04, 2023
On 21 December, the Department of Health and Social Care (DHSC) released their latest update providing a summary of the activity underway since 20 September to develop the draft cross-government…
December 13, 2022
On Thursday 26th January 2023 at 2pm we are hosting an online Housing and Self-Advocacy webinar for people with M.E., including carers and supporters, in Scotland. The webinar will…
December 09, 2022
We are running a Breaking Isolation workshop for young people aged 10-14, funded by Children in Need. The workshop will take place in 3 parts, starting at 4.15pm – finishing…
November 18, 2022
We welcome measures in the Chancellor’s Autumn statement to support disabled people with additional cost of living pressures. However, while these measures go some way to recognising…
November 07, 2022
Today, Action for M.E. has joined leading Neurological charities to write a letter to Jeremy Hunt, Chancellor of the Exchequer, about how the cost of living crisis is having a greater…
November 01, 2022
Get Christmassy and creative however you like, whether it’s a drawing, painting, collage, photograph or even a cross-stitch. Your design can be of anything, as long as it fits within…
October 19, 2022
World ME Alliance calls on WHO Director General to recognise M.E. alongside long COVIDPhoto: © WHO / Pierre Albouy On Wednesday 12th October Dr Tedros Ghebreyesus, Director General…
October 05, 2022
We are hosting a Communicating with Health Professionals and Self-Advocacy Workshop for adults with M.E. in Scotland on Friday 21st of October, 2pm. Join Action for M.E.’s trained…
September 27, 2022
Our Annual General Meeting (AGM) was held on Tuesday 20 September, chaired by Roger Siddle, Chair of our Board of Trustees. The AGM covered Action for M.E.’s 2022 to 2027 strategy,…
September 21, 2022
The Department of Work & Pensions (DWP) announced that the Disability Cost of Living Payment will begin to be made available from today.Six million eligible people will receive a one-off…
September 20, 2022
In May, the Department of Health and Social Care (DHSC) shared its pioneering statement on M.E., setting out its intention to develop a cross-Government Delivery Plan on M.E. for England,…
September 15, 2022
Last month, we launched a consultation on our new media guidelines for journalists, and it closed earlier this week. We received a lot of positive feedback about the consultation,…
September 14, 2022
Following the exciting launch of DecodeME on Monday - the world’s biggest genetic study into M.E./CFS we will be hosting our M.E. Genetics Research Summit today as part of Breakthrough-ME,…
September 12, 2022
A note from the DecodeME team We want to let you know that DecodeME has launched and fully opened recruitment. In light of Her Majesty Queen Elizabeth II’s death and this period of…
September 05, 2022
Our Breaking Isolation Workshops for young people aged 15-18, funded by Children in Need are back. Do you want to learn more? The workshop will take place in 3 parts on the following…
August 18, 2022
All are welcome to attend Action for M.E.'s 2022 Annual General Meeting (AGM) where you can meet Action for M.E. staff and Trustees and hear how we’ve worked with and supported people…
August 18, 2022
This consultation seeks feedback on suggested media advice for journalists reporting on M.E. and developing a helpful handbook of best practices for distribution to media outlets. …
August 17, 2022
Today (17 August), the Department for Health and Social Care has published further information about the cross-government Delivery Plan on M.E./CFS, which was announced by the Government…
August 11, 2022
As the UK approaches an unprecedented energy crisis this Winter, the National Energy Action predicts that 8.7 million UK households will be in fuel poverty. This is double the 4.5 million…
August 04, 2022
Earlier this month we shared an exciting save the date. We now have the date of Wednesday 14th September for our M.E. Genetics Research Symposium.It will be held at the University of…
August 03, 2022
Did you know we are part of the ME Local Network? Who are MELN? The ME Local Network was set up last year to bridge together M.E. friendships and support groups across the UK. The…
August 03, 2022
Members of the World ME Alliance have worked together to reach a collective position on the Lightning Process.The Lightning Process is a commercial training programme that is promoted…
July 26, 2022
The MELN was set up in 2021 to bring together M.E. friendship and support groups across the UK.The aims of the MELN are: To create a national network of local M.E. groups to provide…
July 19, 2022
We are holding an Employment and Self-Advocacy workshop for adults with M.E. in Scotland on Thursday 28th July, 2pm.Join Action for M.E.’s trained and knowledgeable staff and volunteers…
July 18, 2022
*Please note you may find this content distressing* Earlier this morning Jo Mckee, mother of Ella Copley, appeared on Times Radio to discuss the treatment her daughter Ella, who has…
July 11, 2022
In December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholders, including national charities, local support groups, health and social care clinicians,…
July 06, 2022
Last night news broke that the Secretary of State for Health and Social Care Sajid Javid had resigned from his role. This has left people with M.E. feeling concerned because Mr Javid…
June 28, 2022
You are invited to join us for a Self-Advocacy webinar via Zoom live on Tuesday 26 July 12:30 pm-2:30 pm hosted by our friendly Advocacy team. The webinar will be centred around…
June 17, 2022
Action for M.E. is delighted to announce a second ground-breaking PhD, this time in conjunction with the University of Oxford. This comes shortly after announcing our jointly funded…
June 17, 2022
Action for M.E. and ME Research UK are delighted to announce the launch of a new ground-breaking PhD-level research project in conjunction with King’s College London. This collaborative…
June 10, 2022
As this week is Carers Week, there has never been a more important time to recognise, value and support the thousands of individuals caring for their loved ones. This is particularly…
May 19, 2022
Are you feeling lonely? Want to talk to someone who understands M.E.? Our new project, Listen to M.E., aims to help adults affected by M.E. feel less isolated. Our fully trained…
May 12, 2022
Action for M.E. welcomes the Department of Health and Social Care’s pioneering statement on Myalgic Encephalomyelitis (M.E.) on the first ever World M.E. Day.Ministers set out plans…
May 12, 2022
Today marks the first World M.E. Day and we are pleased to see National Institute of Health and Social Care Excellence (NICE) have outlined the steps needed to put the guideline for…
May 12, 2022
Over the past two years, we have been working with the M.E. community to find out the research priorities that matter most. By asking those with lived experience, carers and clinicians…
May 05, 2022
As we approach the World ME Day on 12 May, we launch Action for M.E.’s new five-year strategy, Shaping our future together. We also have a simple-text version. Developed in partnership…
May 05, 2022
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, the World ME Alliance has released a series of actions to help make…
April 21, 2022
With energy bills rising 14 times faster than wages, households this winter are predicted to see a fall in real-wage income by nearly £1,000. British Gas further estimates that energy…
April 19, 2022
After an amazing year in 2021, raising over £20,000 for M.E. charities across the world, champion fundraiser Anna Redshaw is inviting you to take part in her Blue Sunday Tea Party 2022,…
April 13, 2022
Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book was written…
April 01, 2022
Responding to the lifting of the Covid restrictions today (1 April), Action for M.E.’s Ruth Richardson, Director of Business Support and Development said:“For many people with M.E.…
March 30, 2022
Were you one of the many who attended the Learn about M.E. Social Care webinar on M.E./CFS & Long Covid? If you were unable to attend, you will be pleased to know that we have shared…
March 15, 2022
Despite the devastating impact of M.E., understanding of the disease is still woeful. While at least 250,000 people live with M.E., and even more experiencing overlapping symptoms with…
February 24, 2022
Would you like the opportunity to share your story about what it is like to live with M.E. through a photograph? Photographer and film maker, Jeremy Jeffs, is launching an inspirational…
February 22, 2022
Action for M.E. is hosting a webinar on M.E./CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) for anyone working in social care or social work at 1:30 on Thursday 17th of…
February 01, 2022
We have now completed our merger with The ME Trust and from Tuesday 1 February 2022 will be offering Healthcare Services in addition to our Information, Support & Advocacy Services.…
January 21, 2022
In September 2021 we announced our decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders of both charities.…
January 20, 2022
We were honoured to see Scottish actor Mark Bonnar appear on ITV’s popular game show Celebrity Catchphrase playing for Action for M.E last weekend. Mark is known for his roles as Max…
November 30, 2021
We are delighted to welcome actor Jennie Jacques as an Action for M.E. Ambassador. Jennie Jacques is a British actor who came to fame in the drama Desperate Romantics, which aired…
November 08, 2021
The Teachers Educational Supplement (TES) are the leading outlet for providing content, support, and resources for teachers throughout the United Kingdom at the start of their career,…
November 08, 2021
Do you like to be creative? With the festive season on the way, we are launching our Christmas e-Card Design Competition! You could do a drawing, painting, collage, digital drawing,…
November 03, 2021
On 17 September 2021, the Action for M.E. board announced a decision to merge with The ME Trust following a thorough review of the potential benefits to people with ME started in June,…
October 29, 2021
Action for M.E. is delighted, as are the other members of Forward-ME, to see the long-awaited guideline on diagnosing and treating M.E. be published by NICE. The publication follows…
October 25, 2021
The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance,…
October 22, 2021
Statement from Forward-ME: On Monday, Forward-ME and member charities attended a round table to review the new ‘NICE guideline on ME/CFS’ with representatives from NICE and clinical…
October 18, 2021
Update from Forward-ME on this afternoon’s roundtable event hosted by the National Institute for Health and Care Excellence (NICE) today. The event will aim to discuss key issues…
October 14, 2021
The Royal College of GP's annual conference is the must attend-event of the year for GPs and practice team colleagues, showcasing the latest clinical and policy developments across…
October 13, 2021
On Monday, Action for M.E. will attend a roundtable meeting hosted by the National Institute for Health and Care Excellence (NICE). NICE has invited representatives from a range of…
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