September 23, 2016
Working with statistics professors from the University of California and Columbia University, M.E. patient Alem Matthees has published his preliminary analysis of the anonymised PACE…
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September 21, 2016
Statistics published this month show that 56% of decisions made by the Department of Work and Pensions (DWP) regarding Employment and Support Allowance (ESA) are overturned in favour…
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September 20, 2016
In the news this month are two women with M.E. celebrating their achievements. Jude Adams, who has lived with M.E. for seven years, has released her first album, supported by Arts Council…
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September 16, 2016
"Everyday I sit helplessly and watch Claire in her constant struggle with the pain and distress caused by M.E. This is an invisible, silent condition that can only be truly appreciated…
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September 16, 2016
Action for M.E. has responded to the second independent review of the Personal Independence Payment (PIP) assessment. We are hugely grateful to the more than 300 people with M.E. who…
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September 14, 2016
The autumn 2016 issue of our membership magazine InterAction hits doorsteps this week. It’s packed with the latest M.E.-related news and features, campaigns and research updates, as…
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September 14, 2016
Our new What’s your M.E. marathon? campaign celebrates people with M.E. who take on personal fundraising challenges that, to them, feel like a marathon - even if no running is involved. Rachel…
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September 13, 2016
Queen Mary University of London (QMUL) announced on Friday that it has released anonymised data from the PACE trial to a patient with M.E. who requested it under the Freedom of Information…
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September 09, 2016
Lucy is almost 15 years old and has M.E. She hasn't been able to go to school for nearly two years."Lucy has to make decisions every day as to how she will spend her limited energy,"…
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September 08, 2016
Thousands of Lloyds Bank staff have had the opportunity to learn about M.E. and its impact, thanks to a story highlighting our Support, Empower and Employ people with M.E. (SEE M.E.)…
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September 07, 2016
The Scottish Government is consulting with people across Scotland about how best to use the new social security powers devolved to it by the Scotland Act 2016. These powers include…
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September 07, 2016
A global M.E.-awareness event is planned for Tuesday 27 September, and you can get involved. Building on the success of protests that took place across the world in May and June, the Millions…
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September 06, 2016
Action for M.E. supporter Beth French is set to embark on a huge challenge: the Oceans Seven, a gruelling series of seven long-distance, open water swims.Beth, who has recovered from…
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September 05, 2016
You are warmly invited to join Action for M.E. for our conference and AGM in London in November, focusing on the importance of collaboration. Using our new five-year strategy to inspire…
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September 05, 2016
Mentor M.E. is Action for M.E.’s new volunteer peer-mentor support network for people affected by M.E. in Scotland, funded by the Health and Social Care Alliance Scotland (the Alliance)…
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September 02, 2016
Our fundraiser of the week is Joan White, who is taking on the London Duathlon for us.Joan, plus a stalwart group of her friends, will compete either in the half London duathlon (5km…
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September 02, 2016
Findings of research facilitated by the Open Medicine Foundation could be set to rock the world of medicine, writes Action for M.E. Volunteer Pharmacist Emily Beardall.Published online…
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September 02, 2016
Last month, we asked people with M.E. to submit their designs for a handbag that will be used to collect donations for us at the Beauty Unseen event in October. Nine people with experience…
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August 31, 2016
This week Action for M.E. has been contacting members of the All Party Parliamentary Group on M.E. to encourage them to attend its Annual General Meeting next week.Taking place on Wednesday…
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August 31, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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August 26, 2016
Our fundraiser of the week is Myck Beddall, who is taking on the 84k Thames Path Challenge 2016 for us.The challenge involves walking the length of a double marathon from Oxford to…
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August 19, 2016
Our fundraiser of the week is Oli Jones, who is undertaking a 105 mile coast to coast race in Scotland for us.The race will involve running, cycling and kayaking through hilly terrain.Talking…
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August 17, 2016
A tribunal has ruled that anonymised data from the PACE trial should be released after an appeal was lodged against a prior ruling.The ruling orders Queen Mary University of London…
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August 15, 2016
The Neurological Alliance, of which Action for M.E. is a member, have published their report Neurology and primary care: Improving the transition from primary care for people with neurological…
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August 12, 2016
Our fundraiser of the week is Rachel Gill, who is running the English Half Marathon on September 18 because her nephew has had M.E. for two years.Talking about the effect the illness…
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August 11, 2016
Action for M.E.’s Welfare Advice and Support Service will re-open on Wednesday, August 17 with new opening hours.The service, which provides free confidential advice on welfare benefits,…
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August 08, 2016
Today (August 8) is Severe M.E. Day and to mark the event we’re asking people to help us raise awareness of severe M.E.Started by the 25% M.E. Group, Severe M.E. Day aims to raise awareness…
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August 05, 2016
Our fundraiser of the week is Jude Adams, who’s releasing her debut album and donating 10% of its sales to Action for M.E.Talking about her crowdfunded album This Girl, This Woman,…
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August 04, 2016
The Department for Work and Pensions (DWP) has issued a call for evidence on the Personal Independence Payment (PIP) for its second independent review of the benefit.Action for M.E.…
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August 03, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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August 01, 2016
Are you a budding designer? Could you use your skills to help highlight M.E.?Action for M.E. is thrilled to be taking part in Beauty Unseen, an event that aims to raise awareness of…
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August 01, 2016
A new legal judgement could make it easier for people with M.E. to claim Personal Independence Payment.The judgement has ruled that consideration should not only be given to whether…
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July 29, 2016
Our fundraiser of the week is Julian Head, who’s taking part in the Prudential RideLondon – Surrey 100 Mile cycling event this weekend.Julian is putting himself through the challenge…
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July 27, 2016
Going out to the theatre is just one of the things that some people with M.E. miss out on as a result of their symptoms. But what if there was a way of bringing the play to you?“As…
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July 26, 2016
Applications are still open for Action for M.E.’s 2017 London Marathon places.Our team in 2016 raised an incredible total of £26,600. We’re reliant on our fundraisers who help to make…
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July 25, 2016
Clearer information, a more consistent approach to supporting evidence and improved communication with claimants are some of the recommendations made in a report on welfare benefit…
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July 22, 2016
Our fundraiser of the week is Mark Cockburn, who is attempting to cycle 100 miles to raise money for us and awareness of M.E.By taking place in the Prudential RideLondon-Surrey 100,…
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July 22, 2016
The Department of Health is calling for evidence from informal carers who look after family members, friends, neighbours or others on how they can improve support for carers.Responses…
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July 20, 2016
The Government has responded to a petition asking it to fund more research into M.E./CFS by saying that research into the illness is currently a priority area for the Medical Research…
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July 19, 2016
Healthwatch England has launched an investigation into how long it takes disabled and unwell people to be assessed for social care support after it emerged that some people in Cambridgeshire…
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July 15, 2016
Our fundraiser of the week is Siobhan Duff, who is dying her hair blue to raise money for us.Siobhan and her friends were inspired to raise money for us because their friend Niamh has…
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July 15, 2016
Action for M.E. supported an event hosted by M.E. Support in Glamorgan (MESIG) and sponsored by Julie Morgan AM at the National Assembly for Wales this week.Christalla Bailey, Vice…
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July 12, 2016
Two Newcastle University research studies funded by Action for M.E. have concluded, having investigated immune responses and muscle dysfunction in people with M.E.Each research team…
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July 08, 2016
Our fundraiser of the week is Beth French, who is swimming the seven sea channels in one year.Speaking about her endeavour, Beth said: “Tackling the Oceans 7 means dealing with vicious…
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July 06, 2016
A growing body of research is providing more evidence that M.E./CFS is “absolutely a real, physiological illness,” says Dr. Alison Bested, a hematological pathologist who has spent…
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July 05, 2016
Action for M.E. volunteer Catherine Hale attended a roundtable discussion yesterday where she questioned Alistair Burt, Minister for Social Care. The Independent Living Strategy Group,…
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July 04, 2016
Action for M.E. has the chance to secure places for Parallel London, a new mass participation event in London designed for people with disabilities, and we’d like to found out if it…
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July 01, 2016
Our fundraiser of the week is Dana Boundy, who's doing a sponsored skydive for us this weekend.Talking about her personal reasons for supporting us, Dana said: "This is a cause close…
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July 01, 2016
The Neurological Alliance is asking people with M.E. and other neurological illnesses to help them influence policy makers and service providers by filling out their new patient experience…
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June 30, 2016
More than 100 guests gathered at Speaker’s House yesterday evening to hear how Action for M.E. will take action to end the ignorance, injustice and neglect experienced by people with…
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June 29, 2016
This evening Action for M.E.’s Chair of Trustees, Alan Cook CBE, will host a reception at Speakers House, by kind permission of the Speaker of the House of Commons, the Right Honourable…
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June 27, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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June 27, 2016
People with M.E. and other disabilities living in Scotland are being asked what policies and criteria they would like the new Independent Living Fund for Scotland to include when it…
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June 24, 2016
Our fundraiser of the week is Trevor Kay, who is entering the Ride London 100 mile cycle ride for Action for M.E.Talking about his own experiences of M.E., Trevor said: “In early 1997,…
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June 24, 2016
Action for M.E. is working with M.E. Support in Glamorgan (MESIG) to raise awareness of M.E. among parliamentarians and policy-makers in Wales.Along with MESIG’s Christalla Bailey,…
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June 23, 2016
Next week sees the launch of the Greater Manchester Neurological Alliance (GMNA), where Action for M.E. will highlight the impact of M.E. and the importance of working collaboratively…
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June 17, 2016
Our fundraiser of the week is Michelle Conner, who is running the Great North Run for us this September.Michelle hopes to raise £350 for us and to help increase awareness of the illness.…
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June 14, 2016
This week, two written parliamentary questions have been answered on M.E. The first was tabled by Alex Cunningham MP, and arose as a result of Mr Cunningham attending the recent APPG…
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June 14, 2016
The UK government is being questioned by a United Nations committee this week regarding its austerity measures and approach to anti-discrimination.From 6 to 24 June, the Committee on…
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June 10, 2016
Our fundraisers of the week are Lucy and Phil Flemming, who recently took part in a sponsored skydive to raise money for us.The pair have raised nearly £1,000 through their terrifying…
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June 08, 2016
Prof Ron Davis presented new findings from his big data study on severe M.E. at last week’s Invest in ME research conference, reports #MEAction.“Davis’s preliminary data show serious…
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June 06, 2016
“My husband’s life has had to change as drastically as my own in order to accommodate my condition, and over the years he has often had to act as my carer. Our life as a couple has…
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June 03, 2016
Our fundraiser of the week is Alan and his brother Malcolm, who are taking part in the Tough Mudder Scotland 2016 challenge to raise money for us.The gruelling and dirty event sees…
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June 02, 2016
“I only see one or two people for an hour or two at most – I can't cope with any more than that,” says Tisha Bratt, who has had M.E. for 22 years. “My husband is wonderful. We met after…
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June 01, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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June 01, 2016
More than 100,000 Scots live with a long-term neurological condition, including M.E. Like many other groups with physical health problems, they have no statutory right to an independent…
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May 27, 2016
"My Mum Patricia has suffered with M.E. for many years. I want to help rid the world of M.E. so it cannot cause anyone any more suffering or pain," says our Fundraiser of the Week, Darren…
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May 27, 2016
The programme for the UK CFS/M.E. Research Collaborative's third annual science conference has been confirmed, with a focus on big data and biomarkers.Speakers on day one include:
Dr…
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May 26, 2016
The Independent Living Strategy Group is asking people with M.E. to share their experiences of social care and support in order to present evidence to the Government.Baroness Jane Campbell,…
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May 24, 2016
Minister for Disabled People Justin Tomlinson was presented with evidence last week, including the experiences of people with M.E., highlighting the impact of the 20 metre Personal…
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May 23, 2016
M.E. was highlighted as a field that could benefit from world-class facilities as the University of Birmingham’s new £8million Phenome Centre at its official launch today.Clare Ogden,…
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May 23, 2016
Action for M.E. Chief Executive Sonya Chowdhury is in Geneva today attending the 69th World Health Assembly at the United Nations.This event brings together world leaders, health ministers…
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May 20, 2016
Our fundraiser of the week is Mia and her aunt Becky Legh, who took part in a superhero fun run in Milton Keynes this week for us.Mia dressed as speedy superhero The Flash and Becky…
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May 18, 2016
The London Marathon is the largest annual fundraising event on the planet, and Action for M.E. have been proud to support all 13 of our runners that took part this year.Together our…
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May 16, 2016
A new alliance of researchers, the M.E./CFS Epidemiology and Genomics Alliance (MEGA), has come together to advance M.E. research.Last year's UK CFS/M.E. Research Collaborative (CMRC)…
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May 16, 2016
We’re just over half way through M.E. Awareness Month 2016, and are delighted that so many local and regional newspapers are helping to spread our message: don’t ignore M.E.Our media…
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May 13, 2016
Our fundraiser of the week is Charlotte Mookpixie, who dressed as Princess Leia from Star Wars this week and gained the attention of Luke Skywalker himself, Mark Hamill.Charlotte tweeted…
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May 13, 2016
Action for M.E. is delighted to announce that we are funding two new research studies totalling £42,000, made possible by donations to our Clare Francis Research Fund and match-funding…
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May 13, 2016
Action for M.E. Chief Executive Sonya Chowdhury will give evidence at Tynwald, the parliament of the Isle of Man, this morning.She has been invited to do so by the Social Affairs Policy…
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May 12, 2016
How much do you know about M.E.?As part of our work for International M.E. Awareness Day, Action for M.E. has produced a new video in which our chief medical advisors Prof Julia Newton…
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May 12, 2016
Action for M.E.’s Head of Communications and Policy, Clare Ogden, will join scientists, doctors and patients at the London School of Hygiene and Tropical Medicine (LSHTM) this evening…
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May 11, 2016
The All Party Parliamentary Group (APPG) on M.E. hosted a drop-in session today to launch its new information resource for MPs.Supporting your constituent with M.E. features key information…
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May 11, 2016
As part of our M.E. Awareness Week campaign, our new film M.E. and social care aims to share information that will help social care professionals better support people with M.E.The…
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May 10, 2016
Already this M.E. Awareness Month our media case studies have appeared in the local press and on newspaper websites across the UK.
This year our media work is focusing on the isolation…
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May 09, 2016
It's M.E. Awareness Week, and you can take action right now to reduce the isolation experienced by so many people with M.E.“Lack of understanding is very isolating for me. It's just…
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May 06, 2016
Our fundraiser of the week is Jazz Doughty, who is doing a sponsored swim in the cold ocean around Britain.Jazz, who cares for someone who has M.E., said: “I'm hoping to raise a little…
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May 06, 2016
Action for M.E. has responded to the Work and Pensions Committee's inquiry into the Government’s commitment to halve the "disability employment gap" – the difference in employment rates…
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May 05, 2016
"Every person with M.E. – wherever they live – should have access to informed support. Will you help transform the lives of people with M.E. and their families?"That's the question…
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May 01, 2016
As we begin M.E. Awareness Month, our Chief Executive Sonya Chowdhury asks what single message the M.E. community can get behind to bring about effective change.“Diversity is about…
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April 29, 2016
The All Party Parliamentary Group (APPG) on M.E. will host an awareness-raising drop-in at Parliament during M.E. Awareness Week.This event offers MPs the opportunity to better understand…
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April 29, 2016
Our fundraiser of the week is the Bromley VoluntEARS group, who are walking 23 miles along the Thames Path for Action for M.E. on May 25.Group member Jude, whose Mum became ill with…
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April 28, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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April 26, 2016
We have been sending our M.E. matters now manifestos for Scotland, Wales and Northern Ireland to all candidates standing in the upcoming elections. Has yours pledged their support?Each…
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April 25, 2016
New awareness-raising materials are now available to download and print from our website, to coincide with the beginning of M.E. Awareness Month this Sunday.Our Don't ignore M.E. poster…
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April 25, 2016
Anorexia, Irritable Bowel Syndrome (IBS) and chronic fatigue syndrome (CFS) may have similar pathologies, and be caused by bacteria which confuse the immune system, writes Sarah Knapton…
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April 22, 2016
This Sunday will see this week's fundraisers of the week running 26 miles to support people with M.E.Katy Fallon, Leigh Hovey, Andy Leamon, Andrea Bellanti, Fraser Claughton, George…
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April 22, 2016
Action for M.E. is inviting applications for Chair of our Board of Trustees to succeed Alan Cook CBE, whose second three-year term of office ends in November this year. Alan joined…
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April 20, 2016
The First-Tier Tribunal (Information Rights) will today hear Queen Mary University of London (QMUL)’s appeal against the Information Commissioner’s recent decision regarding the release…
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April 19, 2016
This afternoon the All-Party Parliamentary Group (APPG) on M.E. is hosting a policy roundtable as part of the inquiry into the shocking lack of social care provision for people with…
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April 18, 2016
The latest contributor to the Guardian’s ‘What I’m really thinking’ series is a person with M.E. The piece explores common misconceptions about the illness, as well as issues with the…
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