June 02, 2020
Anyone who has M.E. will know the illness isn’t just there for an awareness month, week or day, and we support people with M.E. to get their stories out there throughout the year.We…
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June 01, 2020
From writing articles for InterAction to raising money through fundraising events, our fabulous volunteers are crucial in helping us to support thousands of people living with M.E.…
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May 29, 2020
To everyone who took the time and energy to share their story with us this M.E. Awareness Month, allowing us to bring it to a wider audience on our social media channels, in newspapers,…
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May 28, 2020
We know from our Big Survey last year that most carers of people with M.E. are family members or close friends. A recent survey by Carers UK found that 70% of unpaid carers are providing…
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May 26, 2020
Has your local M.E. support group been trying to move meetings online? Simon, who appears in our latest short film about living with M.E. and lockdown, has shared some information and…
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May 22, 2020
This week, we say a huge thank you to Nat who took on her own 2.6 Challenge to raise money for Action for M.E. Despite having no hairdressing experience and going at this challenge…
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May 22, 2020
A new training course has been produced for health professionals by Dr Nina Muirhead and the Medical Education Working Group. The working group was formed from members of the UK CFS…
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May 21, 2020
Avril, our Project Officer in Scotland, shares her thoughts on self-management in a new blog for Health and Social Care Alliance Scotland. She says:"Normally I work on the Mentor M.E.…
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May 19, 2020
Action for M.E. is delighted to feature in one of the latest podcasts from Spoonie Village. Clare Ogden, our Head of Communications and Engagement, shot the breeze with Hayley and…
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May 18, 2020
Living with M.E. can often force people to become experts at self-care, careful planning, energy-management, learning to say no, living with uncertainty, coping with isolation… the…
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May 18, 2020
A paper has been published, reporting on an unsuccessful feasibility study of early intervention to prevent CFS in adults.It concludes: "A randomised controlled trial to test an early…
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May 13, 2020
Sue Hardy was working as a nurse when she began struggling with her health. After gallbladder surgery that she believes "was the final nail in the coffin." Sue was diagnosed with M.E."There…
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May 12, 2020
Today, M.E. Awareness Day, marks the end of this year’s Walk with M.E. challenge. We want to say an enormous thank you to all our Walk with M.E. fundraisers for raising awareness, walking…
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May 11, 2020
This week is M.E. Awareness Week.We are sharing stories of people with M.E. each day, like this one from a supporter in the North West:“This is a serious and long-term illness that…
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May 04, 2020
Action for M.E. would like to extend our sincere and grateful thanks to the Countess of Mar, who has announced her retirement from the House of Lords following almost 45 years of service.…
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May 01, 2020
This week, we have three amazing fundraisers of the week: our 2.6 Challengers.Like so many charities, we rely on our brilliant supporters taking part in fundraising events to support…
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April 30, 2020
M.E. Awareness Month is almost upon us, with M.E. Awareness Day on Tuesday 12 May - and it's going to be an M.E. Awareness Month quite unlike any other.While the world has changed in…
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April 30, 2020
Action for M.E. has responded to two important House of Commons inquiries focusing on the impact Covid-19 and the lockdown has had on people with M.E. Over the past few months we…
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April 28, 2020
We would like to say a huge thank you to everyone who has supported our CEO Sonya Chowdhury's 2.6 Challenge. Her take on this UK-wide campaign is Curry for M.E., walking 2.6 miles to…
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April 23, 2020
Like so many other charities, Action for M.E. relies on our brilliant fundraisers taking part in fundraising events to support our vital work.The cancellation of these events due to…
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April 20, 2020
Action for M.E. Chief Executive, Sonya Chowdhury, has signed an open letter calling for the withdrawal of an inaccurate and potentially harmful NHS Trust resource. Oxford Health…
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April 16, 2020
Can you share your experience to help the UK Government understand the impact of the lockdown and Coronavirus situation on people with M.E. and other long-term conditions? We are asking…
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April 15, 2020
An exciting opportunity has opened up for people to join the steering group for the new Priority Setting Partnership (PSP) which is being run by Action for M.E. and the James Lind Alliance.…
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April 09, 2020
Following the steps taken by Action for M.E. and other UK charities over the last few weeks, representatives from various supermarkets have responded detailing the steps they are taking…
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April 03, 2020
On Friday 27 March, we wrote a letter to the UK Government and major supermarket chains, signed by members of Forward-ME and the All Party Parliamentary Group for M.E. We highlighted…
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March 27, 2020
Jo Bradley who was diagnosed with M.E. in 2014 while working as a Retail Manager. She told us: “I wanted to raise money for Action for M.E. because of the support you’ve provided me…
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March 27, 2020
Action for M.E. has joined with other others to highlight the immediate challenge faced by people with M.E. in accessing food and essential supplies, and ask for immediate action. …
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March 23, 2020
Yesterday, Disability Rights UK shared its serious concerns about the implications of the Coronavirus Bill on human rights, particularly for disabled people and those with long-term…
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March 20, 2020
This week’s fundraiser of the week is the team at the Thunderbolt pub in Totterdown, Bristol.Dave, landlord of the Thunderbolt, very charitably hosted an Action for M.E. fundraiser…
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March 17, 2020
The All-Party Parliamentary Group (APPG) on M.E. held its first meeting on Tuesday 3 March, where biomedical research was discussed.Twenty MPs attended or sent staff to hear about the…
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March 13, 2020
This week’s fundraisers of the week are our brilliant Bath Half team who will be taking on 13.1 miles this Sunday! A huge thank you to Tom, Katie, Sophie and Ed who have so far raised…
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March 12, 2020
On Tuesday 10 and Wednesday 11 March the UK CFS and M.E. Research Collaborative (CMRC) held its annual conference in Bristol. Despite several international speakers being unable to…
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March 10, 2020
A new project, supported by three Government-backed research funders, has been launched to help ensure that the M.E. research priorities that matter most to the people affected by the…
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March 09, 2020
The sixth annual UK CFS/M.E. Research Collaborative (CMRC) conference will take place in Bristol tomorrow and Wednesday 11 March. Due to concerns over Coronavirus (COVID-19), a number…
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March 06, 2020
This week’s fundraiser of the week is Tanya Jackson. Tanya’s daughter, Danielle, was diagnosed with severe M.E. 20 years ago at the age of 7, while Tanya experienced Chronic Fatigue…
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March 04, 2020
The UK Chief Medical Officers have raised the Coronavirus (COVID-19) risk to the public from low to moderate. We appreciate that this may be especially worrying for those already…
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March 02, 2020
Action for M.E. is delighted to announce the appointment of Roger Siddle as our new Chair of Board of Trustees. Roger says: “Like many others, I have been struck and frustrated by…
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February 28, 2020
This week’s fundraisers of the week are Hazel Wilcox and her team. Hazel, whose sister has M.E., is taking part in Walk with M.E. with her team in order to support Action for M.E. and…
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February 21, 2020
Our fundraiser of the week is Belinda, who is donating money from sales of her handmade greeting cards.Belinda was diagnosed with M.E. and Fibromyalgia four years ago. She says:"In…
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February 20, 2020
The next meeting of the All Party Parliamentary Group for M.E. is taking place on Tuesday 3 March where the focus will be on biomedical research. You can still invite your MP to…
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February 20, 2020
What big research questions do people with M.E., their carers and clinicians want answered?You are invited to a free workshop on Tuesday 10 March to start a conversation about addressing…
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February 18, 2020
Fully
revised for 2020, our comprehensive pacing guide is based on the insight and
experience of people with M.E.Pacing
is a an approach that can help people with M.E. take control…
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February 14, 2020
The Scottish Health Council (SHC) has launched a survey to gather the views and lived experience of people with M.E./CFS in Scotland. The survey was commissioned in response to questions…
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February 14, 2020
We’re saying a hearty cheers and thank “brew” very much to
today’s fundraiser of the week, beer can fan Nick West.Last year, Nick made
it into the news when he donated part of his…
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February 12, 2020
We asked Zara, who attended one of our Meet M.E. drop-in events, what she loved about the session. She said:"Meeting other people with M.E... Knowing that people are interested in supporting…
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February 11, 2020
“It’s shocking that so many people are living with this debilitating illness and there is so little attention on it," says Dr Sadie Whittaker. "I feel strongly that increasing recognition…
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February 07, 2020
"Together as a team we hope to raise awareness and funds for
Action for M.E. so that they can make a difference to the lives of those with
this invisible and greatly misunderstood…
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February 03, 2020
Last month the Scottish Government launched the Neurological care and support: Framework for action 2020-2025. This framework sets out their vision for driving improvement in the care…
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January 31, 2020
Bethan took part in Walk with M.E. 2019, in honour of her friend who has M.E. Bethan raised a brilliant £362 and raised awareness of the condition which has taken so much from her friend.…
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January 29, 2020
Last year, Daniel and our Bath Half team raised more than £2,522 to help us reach even more people with M.E. Daniel told us:“I was watching telly and came across a person with M.E.…
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January 28, 2020
Michael has M.E. and lives in Stirling, Scotland.“Before, I found it difficult to accept my illness. Other people didn’t believe I was ill, as I looked OK to them. This made me not…
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January 24, 2020
Our fundraiser of the week is Sarah and her intrepid friends Catherine, Fran and Liz, undertaking the Yorkshire Three Peaks Challenge in April. "I’ve grown up with the Yorkshire Dales…
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January 20, 2020
After years of hard work by M.E. advocate Suzy Chapman, the World Health Organisation (WHO) has doubled back on plans which would have made it even harder for people with M.E./CFS to…
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January 17, 2020
“When I was 14 I became ill and never really got better," recalls our fundraiser of the week, Genevieve Miles. "Turns out I have M.E. It was boring, frustrating and so sad, I definitely…
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January 14, 2020
Holly has been unable to leave her house since 2012. She told us:“M.E. has dramatically altered my life and the lives of those around me, especially my parents, who had to also become…
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January 13, 2020
A representative from Physios for M.E. has joined the Medical Education Working Group as part of the UK CFS/M.E. Research Collaborative (CMRC), which aims to identify the most effective…
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January 10, 2020
Carol Monaghan MP will meet with MPs next week to reform the All Party Parliamentary Group for M.E. The group is holding a brief AGM on Tuesday 14 January, and MPs can put themselves…
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January 07, 2020
It's two years since Sarah's son Finlay, now 10, became ill with the flu, but didn't seem to be getting better. Four months later, Finlay was diagnosed with M.E.Sarah, who had the illness…
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January 03, 2020
More than 1,500 people with M.E., carers, family members and friends have already shown their support for a potentially game-changing genetic study - but we need thousands more.You…
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December 19, 2019
Action for M.E.'s Information and Support Service is now closed for the Christmas break, earlier than expected due to staff sickness. It will reopen on Monday 6 January 2020. We will…
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December 19, 2019
In November, the newly established M.E./CFS Biomedical Partnership met with Medical Research Council and the National Institute for Health Research to discuss an application for funding…
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December 18, 2019
The UK CFS/ME Research Collaborative (CMRC)’s sixth conference will take place in Bristol, Tuesday 10 and Wednesday 11 March 2020. You can now view the conference’s draft programme…
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December 16, 2019
We know that many of our supporters have questions about how the election result will impact their lives and those of others in the community. We have looked at the Conservative manifesto…
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December 13, 2019
We’d like to say a huge thank you to our fundraiser of the week Rachel who recently hosted a coffee morning in aid of Action for M.E. Over the last month Rachel has hosted a stall…
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December 13, 2019
After the results of the general election, you may have some questions about how the result will affect you and your family. As part of our work, we will be looking at the promises…
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December 11, 2019
We are thrilled to report that, with your support, our Big Give Christmas Challenge raised an incredible £140,313. From all of us here at Action for M.E., and on behalf of those…
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December 08, 2019
Incredible! Thanks to the support of our amazing community we have reached our Big Give Christmas Challenge jackpot!Everyone at Action for M.E. would like to say a massive thank you…
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December 03, 2019
The Big Give Christmas Challenge 2019 is here! Every donation we receive through the Big Give website between now and 10 December will be doubled whilst our match pot lasts.*Update…
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December 02, 2019
The Big Give Christmas Challenge 2019 starts at noon on the 3 December, and will run until noon on Tuesday the 10 December. Throughout this week any donation made to us through the…
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November 29, 2019
We would like to use our fundraiser of the week to say a huge thank you to everyone who has already pledged to donate to us during the Big Give Christmas Challenge 2019. The Big Give…
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November 29, 2019
This election we have written to 1,500 General Election candidates asking them to stand up for M.E. if they are elected.In our letters, we have shared information about the condition…
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November 28, 2019
SummaryOn Monday, the ME/CFS Biomedical Partnership met with Medical Research Council (MRC) and the National Institute for Health Research (NIHR) to discuss an application for funding…
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November 26, 2019
With only one week to go until the Big Give Christmas Challenge 2019 we wanted to share the Big Give official video, featuring Alexander Armstrong:
The Big Give Christmas…
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November 25, 2019
On Friday we attended a steering group for No Isolation government funded AV1 robot project. No isolation are reducing loneliness and isolation through ‘warm’ technology. Their AV1…
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November 22, 2019
Yesterday over 60 education professionals who specialise in a variety of areas such as safeguarding, child protection, teaching and managing students with complex conditions attended…
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November 22, 2019
We’d like to say happy birthday to our fundraiser of the week Elinor who is turning 21 today! She has generously asked her friends and family to donate to her Facebook birthday fundraiser…
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November 20, 2019
Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by Kent LMC to stop home visits by GPs.…
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November 15, 2019
We’d like to say a huge thank you to our fundraisers of the week, father and son duo, Andrew and Rob who have just completed the Men’s 10K Edinburgh 2019.When explaining their reasons…
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November 08, 2019
Our fundraiser of the week is David who has recently taken part in the Hever Castle Half Marathon. When speaking about his reasons for supporting our charity, David tells us : “I'm…
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November 07, 2019
Led by biomedical researchers and patient representatives, including Action for M.E. Chief Executive Sonya Chowdhury, a newly established group called the ME/CFS Biomedical Partnership…
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November 07, 2019
Open meeting - ‘ Sharing experiences of living (a better life) with M.E.’ On 26 October, we were invited to attend the Edinburgh ME Self Help Group’s (EDMESH) Annual General Meeting…
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November 07, 2019
Yesterday signified the first day of political purdah, meaning the time between when a UK election is announced and when that election is held. Over the next few weeks there will be…
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November 06, 2019
On 26 October, we . co-hosted our second drop-in event for people with M.E. in Inverness. This was in partnership with M.E. Highlands and Islands Network and The Oxygen Works. Based…
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November 05, 2019
Events such as bonfire night aren’t events that are celebrated by everyone. For people with conditions such as M.E./CFS it can be a very distressing and difficult time. Earlier this…
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November 01, 2019
We'd like to say a huge thank you to our fundraiser of the week Amber. Today she has cut off 16 inches of her hair (which will be donated to The Little Princess Trust) in order to raise…
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October 30, 2019
“If it falls on a day the salon is open, I have my hair done on Christmas Eve. I am always the last customer of the day, just before they have a little staff party. The atmosphere is…
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October 30, 2019
Our office and phone lines will not be open tomorrow due to staff training. Normal office hours will resume on Friday 1 November.If you need information and support whilst we are away,…
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October 28, 2019
Recorded videos from our AGM and conference 'Are you listening to M.E.? Voices from Action for M.E.'s Big Survey' are now available to watch on YouTube. We have uploaded recordings…
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October 25, 2019
We'd like to thank our fundraisers of the week Paige and Hamish for raising awareness of M.E./CFS and supporting our charity.When speaking about their fundraiser Paige told us:"Hamish…
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October 24, 2019
Last month, the National Guideline Centre opened a call for evidence for studies into M.E./CFS. Commissioned by the National Institute for Clinical Excellence (NICE), this evidence…
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October 24, 2019
This week is the Royal College of GPs annual conference. Along with other charity representatives, our Policy Officer Sam Bromiley will host a Forward ME information stand, with the…
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October 22, 2019
The Health Research Authority (HRA) has published a report on its investigation into concerns relating to 11 M.E./CFS research papers. With a remit from the UK government to “protect…
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October 21, 2019
Early bird tickets are now available for the 2020 UK CFS/M.E. Research Collaborative conference, which takes place in Bristol on Tuesday 10 and Wednesday 11 March.These tickets are…
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October 18, 2019
Our Fundraiser of the week Sal who is currently climbing Mount Kilimanjaro in Tanzania - Africa's highest freestanding dormant volcano. She is completing this over the course of eight…
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October 14, 2019
As promised, we will be live streaming our AGM and conference, which is taking place tomorrow. There will be two separate webinars on the day, one in the morning and one in the afternoon.…
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October 11, 2019
Our fundraisers of the week are Team Banana, a group of eight friends who completed the 26 mile ‘Walk the Test Way’ challenge on Sunday. The group chose to support our charity in honour…
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October 07, 2019
Registration for our annual AGM and conference is now closed. If you are unable to attend in person but would still like to watch – don’t miss out! We will be live streaming the event,…
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October 04, 2019
We’d like to thank Chelsea, our fundraiser of the week, who has raised an amazing £140 for us at her quiz night last week. We asked Chelsea to share a little bit about herself and her…
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October 03, 2019
3 October is National poetry day - 2019's theme is Truth. Today, we share a small collection of poetry created by those in our community talking about their every day truth of living…
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October 03, 2019
Cochrane Reviews, the gold-standard of systematic healthcare research reviews, has published an update of its review of graded exercise therapy (GET) for M.E./CFS. This comes under…
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Registered in Scotland: SC040452.
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