Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological condition that affects an estimated 250,000 people in the UK, including around 21,000 children and young people.
If you are one of them, this section of the website is just for you and your family. We want to make sure you have the information you need about M.E. so that you can make decisions about living with M.E. in the way that works best for you.
Our Children and Young People's Service offers a range of support to young people who have M.E. and their parents/carers who have joined as Supporting Members or as Young Members - find out more about how to join us.
The Children and Young People's Service currently runs the following services (if you are already a young Action for M.E. member, and would like to ask about using any of these services, please get in touch with our Peer Support Manager):
Dedicated information and helpline service
We run a dedicated information and helpline service for young members and their parents/carers. The service gives advice on health and education and supports families in crisis. You can access it by calling our Information and Support Officers.
Young Members forum
Our young member’s moderated forum is open to Action for M.E. members aged under 18 years. Here you can find friendship, support and advice from fellow forum members. Please note this is for Action for M.E.'s under 18 members only - and you can join for free today.
An online space where parents and carers can get help and support from other parents and carers of young people who have M.E.
All children and young people receive a hand written birthday card from one of our team of volunteer card writers.
Our online magazine written especially for children and young people, giving young members the chance to write articles, send pictures in and be involved in the production of it.
All severely affected children and young people receive a handwritten Christmas card from one of our team of volunteer card writers.
Become a bunting bee and make some bunting to help brighten the day of a fellow severely affected member (SAM) and let them know that someone out there is thinking of them. If you would like to help make someone’s day better, start by downloading our bunting pattern.
Become a buddy writer and write to a SAM without expecting a reply back. Getting a letter in the post can make a huge difference to those who often are very isolated and too unwell to see their friends or talk to other people.
You may have been redirected here from the AYME website - following mutual agreement with the AYME Board of Trustees, AYME ceased operating as a charity on Monday 3 April 2017 and Action for M.E. launched our new Children's Services team. AYME’s Chief Executive Mary-Jane Willows took up the position of Head of Children’s Services with us, and consultations were undertaken with AYME staff regarding their transfer to our team. The Boards of Trustees of both charities wholeheartedly believes that this will benefit children, young people, adults and families affected by M.E.
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