We know that living with M.E. can be hard, especially if you’re aged 18 and under. M.E. can make it difficult to spend time with friends or family and can have a big impact on your life, including school and hobbies. You might have to stop doing some of the things you enjoy for a while, or do them less often so your body can rest. It can be hard for other people to understand what you’re going through and that can leave you feeling as if no-one gets what it’s like to have M.E.
Joining our Young people's community is a great way for you to talk to other people your age who have M.E. Some are more severely affected than others, but even if their experiences are different to yours, every member of our community understands what it’s like to live with M.E.
Joining our community is free and gives you access to:
Our online forum
A vibrant and lively online space where you can talk to other young people affected by M.E. about anything and everything from living with the illness to hobbies and interests. Our friendly forum moderators all have experience of M.E. themselves and will ensure you have a safe and fulfilling experience - so whether you’re looking for advice, support, or just to make new friends, this is the place for you.
If you're under 19-years-old and are affected by M.E., you can join our Children and Young People's Forum.
Some people use the forum to get support and talk about how M.E. effects them, while others use it to talk about things other than M.E., such as hobbies and interests, with people who understand what it’s like to have M.E. The forum is kept safe by Joe the forum administrator and a dedicated group of volunteer Peer Support Moderators (PSMs) who’ll chat to you, provide support and signpost you to resources they think might help you.
You'll need to be registered as a member of our Children and Young People's Community to use the forum. If you're not yet a member and would like to access the forum, just follow these three steps:
If you have any problems or questions, please email firstname.lastname@example.org
Our online magazine written especially for and by young people with M.E. Write and submit your own articles about topics that matter to you, or just read what others have written!
We offer a fully customisable penpal service that puts you in touch with another young person affected by M.E. - just choose the kind of person you’d like to speak to and we’ll make it happen. Any letters the two of you send will come to us and we’ll forward them on so that your address and personal details stay safe.
Some of our more severely affected community members are too ill to write back. If you’re ok with writing a letter to someone and not getting a reply back, then you could make a huge difference to someone who’s very isolated and too unwell to see their friends. If you’re severely affected, you can apply to receive a letter from a buddy writer.
All our community members receive a receive a hand-written birthday card from one of our volunteers unless they choose not to.
All severely affected young people receive a handwritten Christmas card from one of our volunteers unless they choose not to.
Information and support helpline
We also run a dedicated information and helpline service for young people, their parents/carers and professionals. If you're struggling and need someone to talk to you can call 0117 927 9551 from 10am to 4pm, Monday to Friday.
For parents and carers, we offer a dedicated online forum where you can get advice and support from other parents and carers of young people who have M.E.
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