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All Party Parliamentary Group on M.E.

All Party Parliamentary Group on M.E.

The All-Party Parliamentary Group (APPG) on M.E. aims to improve the lives of people with M.E. by working collaboratively to stimulate greater understanding and awareness of the illness, and tackling key policy areas to improve outcomes for people affected by M.E. Is your MP a member?

The group is listed in the official Register of All Party Groups and consists of backbench Members of the Houses of Commons and Lords. Although it does not have any formal powers, it plays an important role in drawing the attention of MPs, Ministers and Lords to M.E. related issues. On 11 May 2016 the APPG hosted an awareness-raising drop-in session and launched its new information resource for MPs, Supporting your constituent with M.E.

The administrative work (ie. the Secretariat) of the APPG on M.E. is undertaken on a joint, voluntary basis by Action for M.E. and the ME Association. This involves drafting and circulating papers; publicising the work of the APPG and arranging for speakers to address the APPG, on behalf of the Chair.

Social care inquiry

Following the publication of Action for M.E.'s Close to collapse report, the APPG is leading an inquiry into the shocking lack of social care provision for people with M.E. This included a policy roundtable in April 2016, chaired by Daniel Zeichner MP, which sought to explore how we can improve access to appropriate social care for people with M.E., asking how we can:

  • address the barriers faced by people with M.E. in accessing care and support
  • ensure that those delivering social care assessments have access to all the information they need to achieve a good understanding of M.E. and its impact
  • identify tangible, realistic and achievable practical steps that will improve outcomes for people with M.E. and their carers.

The findings from the inquiry will be published later this year.

Notes and minutes of meetings

You can read notes and minutes from APPG meetings by clicking on the links below.