• Help us to support others – donate now and change a life

    Donate now

Resources

  • A
  • A
  • A
Text size

Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. How is M.E. diagnosed?

A. A diagnosis is made after other possible causes for symptoms have been excluded. This should be a positive clinical diagnosis made on a well-characterised constellation of symptoms.A doctor will…
Read More

What is M.E.?


Q. What does Action for M.E. hope to achieve?

A. Over the past 30 years, Action for M.E. has worked to improve the lives of people with M.E., taking action to reduce the isolation experienced by many and working to create change. Despite our…
Read More

What is M.E.?


Q. What is the impact of M.E.?

A. Even in its mildest form, M.E. can have a significant impact on an individual’s life, and not just on their health. A lack of understanding and awareness about M.E. means patients can experience…
Read More

What is M.E.? / Living with M.E.


Q. What is the latest research on M.E.?

A. New research evidence about M.E. is emerging all the time, and it can be difficult to know which developments are important and which are not.Cort Johnson’s Health Rising blog offers a review…
Read More

What is M.E.? / Living with M.E.


Q. What services and support does Action for M.E. offer?

A. We offer a range of booklets and factsheets covering most aspects of living with M.E., employment and education, caring for somebody with M.E. and welfare benefits. These can be ordered by post…
Read More

What is M.E.? / Living with M.E. / Make a difference


Q. What is Mentor M.E. and how can I get involved?

A. Mentor M.E. peer support network is a five-year Action for M.E. project, launched in 2016, and funded by the Scottish Government and the Health and Social Care Alliance Scotland (the Alliance)…
Read More

Living with M.E.


Q. Am I eligible for welfare benefits?

A. The welfare benefits system is very complex and we recommend getting a complete benefit check done to see what you may be eligible for. This will depend on your age, income and personal circumstances.Your…
Read More

Living with M.E.


Q. Can I get help with care at home?

A. Social care is help provided to people in their own home or in a care home. It may include home helps, meals-on-wheels or personal care - help with getting up, washing, dressing, feeding or going…
Read More

Living with M.E.


Q. Can I see a specialist?

A. Sometimes your GP may refer you to a specialist. A visit to a specialist is known as secondary care and can only be arranged through your GP.Depending on your symptoms, you may meet a number…
Read More

Living with M.E.


Q. How can you help me apply for welfare benefits?

A. If you have M.E. or care for someone who has M.E., you may be entitled to claim benefits. Action for M.E. produces a range of factsheets about benefits available, including detailed information…
Read More

Living with M.E.


Q. How can I explain M.E. to my family and friends?

A. Whether you’ve been newly diagnosed or have been living with M.E. for some time now, telling friends, family and children you have the condition can seem like a daunting task. Many people have…
Read More

Living with M.E.


Q. How can my employer help?

A. Under the Equality Act 2010, someone who has “a physical or mental impairment that has a substantial and long-term adverse effect on the ability of an employee to carry out normal day-to-day…
Read More

Living with M.E.