Resources

A. A diagnosis is made after other possible causes for symptoms have been excluded. This should be a positive clinical diagnosis made on a well-characterised constellation of symptoms.A doctor will…
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What is M.E.?

A. Over the past 30 years, Action for M.E. has worked to improve the lives of people with M.E., taking action to reduce the isolation experienced by many and working to create change. Despite our…
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What is M.E.?

A. Even in its mildest form, M.E. can have a significant impact on an individual’s life, and not just on their health. A lack of understanding and awareness about M.E. means children, families and…
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What is M.E.? / Living with M.E.

A. New research evidence about M.E. is emerging all the time, and it can be difficult to know which developments are important and which are not.Cort Johnson’s Health Rising blog offers a review…
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What is M.E.? / Living with M.E.

A. We offer a range of booklets and factsheets covering most aspects of living with M.E., employment and education, caring for somebody with M.E. and welfare benefits. These can be ordered by post…
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What is M.E.? / Living with M.E. / Make a difference

A. What is Mentor M.E. and how can I get involved?Action for M.E.’s Mentor M.E. peer support network is a five-year project to develop a network of volunteer peer mentors supporting people living…
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Living with M.E.

A. The welfare benefits system is very complex and we recommend getting a complete benefit check done to see what you may be eligible for. This will depend on your age, income and personal circumstances.Your…
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Living with M.E.

A. Social care is help provided to people in their own home or in a care home. It may include home helps, meals-on-wheels or personal care - help with getting up, washing, dressing, feeding or going…
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Living with M.E.

A. Sometimes your GP may refer you to a specialist. A visit to a specialist is known as secondary care and can only be arranged through your GP.Depending on your symptoms, you may meet a number…
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Living with M.E.

A. If you have M.E. or care for someone who has M.E., you may be entitled to claim benefits.Action for M.E. produces a range of factsheets about benefits available, including detailed information…
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Living with M.E.

A. Whether you’ve been newly diagnosed or have been living with M.E. for some time now, telling friends, family and children you have the condition can seem like a daunting task. Many people have…
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Living with M.E.

A. Under the Equality Act 2010, someone who has “a physical or mental impairment that has a substantial and long-term adverse effect on the ability of an employee to carry out normal day-to-day…
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Living with M.E.