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Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. When will I get better?

A. People with M.E. can vary enormously in their experience of the illness, and also how long their symptoms last. Some make good progress, while others can remain ill for a number of years. Some…
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Living with M.E.


Q. How common is misdiagnosis of M.E.?

A. An evaluation of referrals made by GPs to the specialist clinic at Bart’s Hospital (White et al, 2012, Journal of the Royal Society of Medicine short reports) found that 49% did not have a diagnosis…
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Health & care professionals


Q. Where can I learn more about M.E.?

A. Action for M.E. produces a number of resources and hosts events throughout the year, including webinars and webchats, where patients, carers and professionals can learn more about M.E. Other…
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Health & care professionals


Q. Where is the nearest specialist M.E. service?

A. A number of specialist M.E. clinics exist across the UK, with multi-disciplinary teams usually offering diagnostic services and specialist symptom management programmes. Some areas are not covered…
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Health & care professionals


Q. Why is there no single diagnostic criteria for M.E.?

A. Defining M.E. for diagnosis or research continues to be the subject of much debate. Diagnostic criteria currently in use include: the NICE clinical guideline (2007)Scottish Good Practice Statement…
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Health & care professionals


Q. How can Action for M.E. help me support my patients?

A. Action for M.E. works collaboratively with health and social care professionals and we are always interested to hear from those who have an interest in M.E. and/or want to know more.Useful publications that…
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Employers & teachers


Q. How might M.E. affect my student?

A. If one of your students has been diagnosed with M.E. or shows classic symptoms – such as peaks and troughs in health and energy levels, muscle pain, headache, problems with concentration – they…
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Employers & teachers


Q. How can I support my student with M.E.?

A. Be prepared to be as flexible as you can. You can help by: being flexible with attendance requirementsorganising a reduced timetable, for work to be sent to them at home and/or make special…
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Employers & teachers


Q. How might symptoms affect my employee?

A. M.E. is a complex illness and each person experiences the condition differently.People with M.E. do not necessarily look ill – it’s referred to as an “invisible illness” for a reason – and the…
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Employers & teachers


Q. What about phased returns to work?

A. Returning to work after a period of illness with M.E. requires a much more gradual approach than most other phased returns. It is important that work and travel to/from work is incorporated when…
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Employers & teachers


Q. What are reasonable adjustments in the workplace?

A. Under the 2010 Equality Act, employers should make reasonable adjustments to the workplace and working practices or arrangements, so that a disabled employee or job applicant is not at a disadvantage.Make…
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Employers & teachers


Q. What is best practice regarding confidentiality?

A. When a member of staff discloses their M.E., they may – or may not – want you to share this information with other colleagues.Disabled people have the right to insist that their illness remains…
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Employers & teachers