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Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. What is the neurophysiology of pain in ME study about?

A. Led by: Prof Peter White and Dr Julius BourkeAims: To discover the physiological and chemical abnormalities underlying pain experienced by people with M.E.Cost: Action for M.E. took over the…
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Research


Q. What is the understanding muscle dysfunction study?

A. Led by: Dr Phil Manning and Prof Julia Newton at Newcastle University.Aims: This PhD studentship will establish in vitro approaches to exploring the inter-relationship between muscle function,…
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Research


Q. What was the research into immune responses in CFS/M.E. you funded about?

A. Project summary: By Prof Stephen Todryk, Northumbria UniversityThere are likely to be many causes of CFS/M.E., but various laboratories report that immune function in people with CFS/M.E. is…
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Research


Q. What was the ME/CFS Disease Register you helped fund?

A. Action for M.E., the ME Association and ME Research UK are jointly releasing this statement to update our supporters on the ME/CFS Disease Register project, which has now come to an end. The…
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Research


Q. How can children and young people manage activity?

A. Please be aware that given recent publications and emerging evidence, this page is currently under review.Activity management is not just about physical activity: it involves everything that…
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Children and young people with M.E./CFS


Q. How can schools help support a pupil with M.E.?

A. This page offers information for parents, teachers and other education professionals.There a number of ways that schools can make reasonable adjustments to support a child with M.E. If you feel…
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Children and young people with M.E./CFS


Q. What was the PACE trial?

A. Action for M.E.’s current research strategy focuses on collaborative biomedical research, including funding PhD studentships and working closely with patients, clinicians and researchers as part…
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Living with M.E. / Health & care professionals / Research


Q. What education support is a young person with M.E. entitled to?

A. This page offers information for young people with M.E., teachers, parents and other professionals.Section 19 of the Education Act 1996 (as amended by Section 3 of the Children Schools and Families…
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Children and young people with M.E./CFS


Q. What's the evidence for children with M.E. using GET?

A. Please be aware that given recent publications and emerging evidence, this page is currently under review.Although national guidance recommends that children with M.E. are offered activity management,…
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Children and young people with M.E./CFS


Q. What can I do if my child isn't supported at school?

A. This page offers information for parents of children and young people with M.E.While some schools are very supportive of children and young people with M.E, we know that others get it wrong,…
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Children and young people with M.E./CFS


Q. How might CBT be useful for children and young people?

A. Please be aware that given recent publications and emerging evidence, this page is currently under review.Because M.E. is different for everyone, what works for one person with M.E. might not…
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Children and young people with M.E./CFS


Q. How can I communicate more effectively with my doctor?

A. By doing a little bit of preparation for your appointment with your doctor, you can help yourself – and your doctor – feel more confident and comfortable. Arrange appointments for your best…
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Living with M.E. / Children and young people with M.E./CFS