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Some frequently asked questions about M.E. Please contact us if you can't find the information you need.

Q. What does your Voice Committee do?

A. The purpose of the Voice Committee is to ensure that people with M.E. are an inherent part of decision-making about research projects that we do and don’t fund.Along with people with M.E. and…
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Research


Q. What does your Scientific Advisory Panel do?

A. Our Scientific Advisory Panel is made up of researchers with a proven track record in their field and ideally with a specialism or interest within the M.E. field. Members of the Panel are…
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Research


Q. What's the aim of the paediatric study you're funding?

A. Led by: Prof Esther CrawleyAim: This severe paediatric M.E. surveillance study aims to measure the incidence, demographic and clinical features of severe paediatric M.E. in the UK.Prof Crawley…
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Research


Q. What is the ​mitochondrial DNA variation study about?

A. Led by: Dr Joanna ElsonAims: To discover whether people with M.E./CFS have different patterns of mitochondrial DNA variation that could affect a person’s chances of developing the illness or…
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Research


Q. What is the autonomic dysfunction feasibility study you're funding about?

A. Led by: Prof Julia NewtonAims: People with M.E. frequently have symptoms of light-headedness and dizziness which has been shown in studies to be related to drops in blood pressure when they stand…
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Research


Q. What is the neurophysiology of pain in ME study about?

A. Led by: Prof Peter White and Dr Julius BourkeAims: To discover the physiological and chemical abnormalities underlying pain experienced by people with M.E.Cost: Action for M.E. took over the…
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Research


Q. What is the understanding muscle dysfunction study?

A. Led by: Dr Phil Manning and Prof Julia Newton at Newcastle University.Aims: This PhD studentship will establish in vitro approaches to exploring the inter-relationship between muscle function,…
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Research


Q. What is the M.E./CFS Disease Register about?

A. Led by: Prof Derek Pheby, Faculty of Society and Health at Buckinghamshire New University.Aims: The M.E./CFS Disease Register contains details of people with confirmed diagnoses of M.E., who…
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Research


Q. What was the research into immune responses in CFS/M.E. you funded about?

A. Project summary: By Prof Stephen Todryk, Northumbria UniversityThere are likely to be many causes of CFS/M.E., but various laboratories report that immune function in people with CFS/M.E. is…
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Research


Q. What was the ME/CFS Disease Register you helped fund?

A. Action for M.E., the ME Association and ME Research UK are jointly releasing this statement to update our supporters on the ME/CFS Disease Register project, which has now come to an end. The…
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Research


Q. How can children and young people manage activity?

A. Activity management is not just about physical activity: it involves everything that can affect your energy levels, which of course includes time spent on cognitive activity (such as reading…
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Children and young people


Q. How can schools help support a child with M.E.?

A. This page offers information for parents, teachers and other education professionals.There a number of ways that schools can make reasonable adjustments to support a child with M.E. If you feel…
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Children and young people