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Living with M.E.

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If your child has M.E.

Our staff are currently working remotely due to the Covid-19 outbreak. All services remain fully operational during this time. For more info and updates on Covid-19, please visit our Coronavirus and M.E./CFS page.

Our services for families

Action for M.E.’s experienced Children and Young People’s Services Team offers:

  • one-to-one information and advice online and one-to-one by phone and email for parents/carers on accessing education, healthcare and social services for your child
  • support and skills for teachers, doctors, social workers and other professionals working with families affected by M.E.
  • a safe, supportive community for young people 18 and under.

Your child does not need to have an official diagnosis for you to get help. If you're struggling and need someone to talk to you, contact our Information and Support Service, who can refer you to our team. You can:

  • call 0117 927 9551 10am to 4pm, Monday to Friday (or leave a message outside these hours)
  • send us an email.

We also offer a dedicated online parent forum where you can get advice and peer-support from other parents and carers of young people who have M.E. This is open to any parents, carers and/or guardians of young people with M.E. who are members of our Young Person's Community.