A new campaign has been launched today by Action for ME, ME Research UK and ME Association based on the work of a group of academics, practitioners, clinicians, charity representatives and people with lived experience of ME who have been working together to input to the cross-government Delivery Plan on ME/CFS.
We have worked together to establish a proposal for a national ME/CFS research consortium in line with UKRI’s 5-year strategic themes and 4 of the 5 NIHR Key Initiatives.
It would comprise five hubs, funded over 5-years, coordinated by a single centre whose remit is to work in partnership with patients and stakeholders to develop and promote innovative solutions to building research capacity for patient benefit.
Urgent action is needed to ensure a strategic approach for research into ME/CFS and associated post-infectious illnesses, including Long Covid.
Despite ME’s high prevalence, little is known about its causes and ultimate cure. Parallels have also recently been drawn between ME/CFS and Long Covid with some research indicating that at least 50% of people with long covid have symptoms that directly mirror ME/CFS.
Click here to read more about the campaign, including the full proposal, on the ME/CFS Priority Setting Partnership website.
