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About us

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Our staff team

Our staff team

Our staff care passionately about people affected by M.E., and has daily contact with patients, carers and professionals by telephone, email and social media.

Information, support and welfare advice

In 2014-2015, we answered more than 2,100 calls and provided nearly 45,000 copies of our booklets, factsheets and articles, ensuring that people affected by M.E. have the key information and signposting they needed to access care and support, including welfare benefits

  • Imogen Ward, Information and Support Officer
  • Alice Wilcox, Information and Support Officer
  • Sophie Knight, Welfare Rights Adviser
  • Alice Archer, Welfare Rights Adviser

Pilot regional advocacy service

Action for M.E.’s free regional advocacy service, launching in April 2019, will support adults (age 18 and over) living with M.E. in the Midlands and South West. Advocacy is a process which empowers people to stand up for their rights, and have their views, wishes and needs included in decisions which affect them.

  • Tori Jones, Advocacy Coordinator
  • Larissa Trussell, South West Advocacy Officer
  • Jo Dowell, Midlands Advocacy Officer

Communications and engagement

Working to increase awareness of M.E. among the public, professionals, parliamentarians and the press, our Communications and engagement team manage our website, publications and social media and build relationships with journalists, MPs and policymakers, promoting the work of the charity and highlighting the impact of M.E. in our ongoing campaign for change.

  • Clare Ogden, Head of Communications and Engagement
  • Jenny Daw, Press and Publications Officer
  • Sam Bromiley, Policy and Engagement Officer
  • Holly Taylor, Communications and Marketing Officer

Fundraising, finance and membership

Our fundraising team support our fantastic community fundraisers and engage with charitable trusts and other donors. They also look after our Supporting and Lifelong Members, whose support enables us to continue our vital work.

  • Steve Smith, Head of Fundraising
  • Bella Whately, Senior Fundraiser
  • Jess Burden, Fundraising Officer
  • Keir Barraclough, Fundraising Officer
  • Kate Dobson, Finance and Accounts Officer
  • Ondine Upton, Philanthropy Manager

Children's Services Team

  • Mary-Jane Willows, Head of Children's Services
  • Joe Martin, Peer Support Officer


Along with our Scottish Hub, which offers information, news and signposting for people in Scotland, we lead a number of projects focused on raising awareness of M.E. and empowering those affected by the condition to access care and support.

  • Theresa Burns, Scotland Project Co-ordinator
  • Avril McLean, Mentor M.E. Project Worker