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Support for families

Support for parents and families

We are here for children and young people with M.E., and their parents and family members. Our goal is to empower you and your family to face the challenges that living with illness presents.


Family Support

We are here for parents or family members of a child or young person with a diagnosis (or a suspected diagnosis) of M.E., CFS or pot-viral fatigue syndrome. We can:

  • share key information, resources and support
  • help identify and prioritise key areas of concern you want to address
  • offer emotional support via active, empathic listening, and support self-advocacy
  • signpost to our Children and Young People’s Advocacy Officer (see below).

While our Family Support service does not offer medical, legal or welfare benefits advice, ongoing advocacy support, or counselling/specialist mental health support, we can signpost to agencies that do.

Sharon, whose son has M.E., told us:

“You have been the light that has helped us navigate these most challenging of months, providing bridges between agencies and disciplines, with your experience, expertise and calm, unwavering support.”

For a referral to this service, please contact our Information, Support and Advocacy Service.


Advocacy for children and young people

If you are 18 or under, our dedicated Young People's Advocacy Officer can work with you to ensure your voice is heard in situations that affect you. This service will be available from summer 2021.

We also offer:

  • a safe, supportive community for young people 18 and under, which is free to join and includes a range of peer-support options.
  • up-to-date information and guidance in our website sections for you and your parents/carers.

We are grateful to the Masonic Charitable Foundation for supporting our work with children and young people with M.E., and their parents and families.