This resource has been written by young people, for young people. Whether shared digitally or in print, it serves as a valuable tool that helps young people to convey the profound realities of living with M.E./CFS to their peers, friends & family, doctors, and schools to help them to understand their experiences.
Formerly title Support plans for pupils with M.E., this Action for M.E. factsheet for parents of children and young people with M.E. aims to help answer your questions about how your child can be best supported to continue accessing their education, whilst also managing their symptoms and focussing on their health. It includes information on Individual Healthcare Plans; and Education, Health and Care Plans. Updated Friday 16 July 2021.
It can be difficult for children with M.E. to understand what is happening to their body and why they feel the way that they do. This children's booklet follows the story of 7 year old Chloe who has M.E. Here she shares her experiences with symptoms, resting and day-to-day life with M.E.
This Action for M.E. factsheet is for parents of children and young people with M.E., teachers, and other professionals supporting the family. It sets out the role of social workers in relation to families with M.E., and what to do if they raise child protection or safeguarding concerns.
The functional ability scale is an important tool to help you work out where you are with your M.E. You can use it to help you describe and measure how much you can do. If you are someone whose symptoms vary a lot, you may want to make a note of where you are on a good day, as well as where you are on a bad day.