Young people and families

Education support for pupils with M.E.

Formerly title Support plans for pupils with M.E., this Action for M.E. factsheet for parents of children and young people with M.E. aims to help answer your questions about how your child can be best supported to continue accessing their education, whilst also managing their symptoms and focussing on their health. It includes information on Individual Healthcare Plans; and Education, Health and Care Plans. Updated Friday 16 July 2021.

I have M.E.

It can be difficult for children with M.E. to understand what is happening to their body and why they feel the way that they do. This children's booklet follows the story of 7 year old Chloe who has M.E. Here she shares her experiences with symptoms, resting and day-to-day life with M.E.

My mummy has M.E.

Having M.E. is challenging, especially when you are a parent. If you are struggling to explain your condition to your children, we have created this children's booklet to help. This children's story uses the words of one of our junior members and follows Jack whose mum has M.E.

My sister has M.E.

When your child gets sick it can be difficult for everyone in the family - especially young siblings who don't understand what is happening to their brother or sister. This children's booklet follows the story of Sophie whose big sister has M.E.

Exams for pupils with M.E.

This Action for M.E. factsheet for children and young people with M.E., their parents, teachers, and other professionals supporting them, gives information on exam accessibility, special considerations, Standard Attainment Tests, GCSEs and A-levels.

The role of a family social worker

This Action for M.E. factsheet is for parents of children and young people with M.E., teachers, and other professionals supporting the family. It sets out the role of social workers in relation to families with M.E., and what to do if they raise child protection or safeguarding concerns.

Functional ability scale

The functional ability scale is an important tool to help you work out where you are with your M.E. You can use it to help you describe and measure how much you can do. If you are someone whose symptoms vary a lot, you may want to make a note of where you are on a good day, as well as where you are on a bad day.

Information and support for families living with M.E.

Leaflet giving a short overview of M.E. in children and young people, and our services for young people and families with M.E., including our peer-support forums.

Useful resources