Useful resources

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Functional ability scale

The functional ability scale is an important tool to help you work out where you are with your M.E. You can use it to help you describe and measure how much you can do. If you are someone whose symptoms vary a lot, you may want to make a note of where you are on a good day, as well as where you are on a bad day.

M.E./CFS in children and young people

A lack of understanding about M.E. and its impact mean that some young people and their families still face considerable challenges in accessing appropriate care and support. This resource for families to share with their Children and Families Social Worker aims to improve this situation by offering information and practical advice so they can better support their clients, and work more effectively with other health and care professionals.

Supporting children with medical needs

Children with medical needs may receive education provision in a range of settings. They may attend school with some support. If they cannot attend school they may be educated in a medical alternative provision setting, or in a hospital school. Or they may intermittently attend school and receive education in a medical alternative provision setting, at hospital or at home. This document is designed to help schools identify the steps they should take to ensure children with medical needs receive the support that they need.

Are you a young carer?

Are you a young carer for someone with M.E.? CFS? Post-Viral Fatigue Syndrome? Fibromyalgia? Or do you know somebody who is? A young carer is a child or young person up to 19 years old who is caring for a family member. This leaflet outlines the help, support and advice available, with signposting to services in your area.

M.E. and higher education

This factsheet is provided for students with M.E. to share with the support services at their college or university, offering information about M.E., its potential impact on studying, and how tutors can help.