Join our ActforME Network and help drive change
People with M.E., carers and supporters are working together as part of the Act4ME Network to contribute to a real and lasting change for those living with M.E./CFS throughout the UK.
Our vision is a series of coordinated activities to raise awareness of M.E./CFS and put pressure on decision makers to prioritise the condition for increased funding and better awareness and understanding. These might include:
- tweeting or writing to your MP, MSP or AM to highlight a key issue
- asking a local decision-maker to add their support to a specific campaign
- sharing your insight and experience to inform a debate or consultation.
How do I take part?
Sign up online here. Give us your name, contact details and location, and we will add you to the ActforME Network.
- We are asking everyone in the network to commit to one action a month, which you will be notified about by email.
- We may occasionally offer actions targeting specific regions of the UK.
- We will seek feedback from each action to better understand the impact we can have and ensure actions are as successful as possible.
- We will engage with the Act4ME Network to plan our asks and improve the work we do.
The first action will be sent out at the end of June 2021. At first we will be running the network primarily online, and are aiming to open it up to those who may find it difficult to access a computer in the near future. We recognise that M.E. symptoms may mean not everyone can be involved and aim to be as inclusive and accessible as possible. We are happy to work with family/friends on behalf of others, if that's helpful.
June Act4ME ask
The first act we would like you to be a part of is contacting a reporter. This Sunday (13 June) sees the launch of the new channel GB News, and one of their journalists is asking for stories to cover. We’d like you to ask her to report on the mistreatment that those with M.E. have experienced over decades and highlight the importance of good quality medical education. You can do this in your own words by e-mailing the reporter, Michelle Dewsbury, directly at firstname.lastname@example.org. If you prefer you can also tweet the reporter by responding to this tweet.