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Learn about M.E.

Learn about M.E.

Action for M.E. is working with the ME Association, #MEAction Scotland and the 25% ME Group to ensure more doctors in Scotland better understand M.E.

With funding from Scottish Government’s Neurological Framework, we are promoting a free online learning module on the diagnosis and management of M.E. to GPs, medical students and allied health professionals.

Developed by Dr Nina Muirhead in partnership with the UK CFS/M.E. Research Collaborative (CMRC) the module is based on around 10 clinical case studies, which aim to typify patients who may or may not display signs and symptoms of M.E., and reflects emerging biomedical evidence, evolving international discussions and the patient perspective.

Health professionals will receive one hour Continuing Professional Development-accreditation upon successful completion of the module.

It's complemented by our Learn about M.E. podcast, with input from patients Anna and Craig, about the positive difference that good care and support has made for them, alongside insight from Dr Muirhead and GP Claire Wood. Listen on Apple and Spotify.

Dr Muirhead, a dermatologist specialising in dermatologic surgery and oncology at Buckinghamshire Healthcare NHS Trust, chairs the CMRC Medical Education Group. She says:

Only after I developed M.E. myself did I realise that I had not understood the illness. Feeling the devastating impact of M.E. on myself and my life, I felt determined to offer something that changed that experience for other people.”

The module includes a focus on post-exertional malaise, a key feature of M.E., which is also being observed in a subset of patients with Long Covid.

Scottish Government guidance on M.E.

The Scottish Good Practice Statement on ME-CFS was published in November 2010. Scottish Ministers have given a commitment to review the content of this Statement when the National Institute for Health and Care Excellence (NICE) publishes its revised guideline on M.E/CFS in April 2021. The draft version, published November 2020, notes two major differences relating to treatments:

  • Do not offer people any therapy based on physical activity or exercise as a treatment or cure for M.E./CFS, including any programme based on fixed incremental increases in physical activity or exercise, for example graded exercise therapy.
  • Cognitive Behavioural Therapy is not a treatment or cure for the condition and should not be offered in this context. It may be useful though in supporting people who live with M.E./CFS to manage their symptoms and to improve wellbeing and quality of life.

NICE has also made a statement cautioning against assumptions that M.E./CFS recommendations from the 2007 guideline apply to people with fatigue following Covid-19.