A small organisation that regularly punches above its weight.
With the voices and experiences of people with ME at the heart of everything we do, we are working to create real change on the scale so urgently needed at a local, national and international level.
Our strategy, Shaping our future together, has been developed in partnership with children, young people and adults with ME, their loved ones and carers, and others who share our values and ambitions.
It sets out our ambitious goals which we believe will help us ensure that people affected by ME receive the respect, treatment, and care they deserve.
We are currently underrepresented by men, non-binary and black and minority ethnic people in our team and would particularly welcome applicants from these groups.
Action for ME supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.
*This page has been created to inform people about our organisation's potential working and volunteering opportunities. We do not require the services of recruitment agencies regarding recruitment.
Much of the work we do here at Action for ME is made possible by our fantastic volunteers.
Some have been with us for many years, while others gain valuable work experience over shorter periods.
Supporting our administrative, communications, marketing, fundraising, and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.
Join us and help lead change for anyone affected by ME.
We are looking for new Trustees to join our Board and help us deliver our mission to improve the lives of all people affected by ME.
With the recent launch of the UK Government Delivery Plan for ME/CFS, and some exciting research partnerships on the horizon, now is an exciting time to join us and play a pivotal role in our work to secure a better future for people with ME.
As a Trustee, you will have a vital role within Action for ME, establishing a clear and shared vision, setting policies and acting in the best interests of Action for ME and people with ME. We are particularly looking for people who bring: Scientific and/or research expertise; healthcare and/or information, support and advocacy experience; Policy experience at local or national level; Communications and/or marketing expertise.
If you have experience in any of these areas and share our ambition for a better future for people with ME, we want to hear from you.
For more information and to apply, visit our Recruitee page.
In spring 2024, thanks to funding from the National Lottery Community Fund, we launched a free Counselling service for children and young people with ME/CFS.
Our brilliant Young People's Steering Group ensures that young people with ME/CFS are at the heart of how we develop, deliver and improve this vital service, along with our other services for those aged 18 and under.
The Steering Group help decide how and where we promote our services and measure the difference these services make.
We meet online every two months, with support from staff, and are really flexible to make sure meetings work for everyone.
Some Steering Group volunteers, as an optional extra, get involved in co-faciliating monthly Breaking Isolation workshops.
So if you're aged between 13 and 18, and would like to meet new people with the chance to make a real difference to your peers - as well as gaining valuable skills and experience - we'd love to hear from you.
Please download our Young People's Steering Group and Workshop information pack to find out more, including how to apply (don't worry, the process is simple and informal).
Recruitment for the Steering Group is ongoing so there's no deadline to get in touch.
If you have any questions or want to talk about this volunteering opportunity, please email Keely, our Family Support Officer.
Thank you.
Some key services for our Young People's Community are led by young volunteers (aged 18 and under) living with ME.
Some contribute to our community forum, helping users feel less isolated and more confident about making connections.
Others write to those children and young people severely affected by ME, without the expectation of a reply. Interested?
Get in touch to find out more.
A range of medical, research, and professional advisors provide an invaluable network of support for Action for ME on a pro bono basis.
All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with ME they help us support.
We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by ME.
If this sounds like something you're interested in, please get in touch.
