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You can shape the future of M.E. research

April 19, 2021

Could your ideas shape the future of M.E. research? The M.E./CFS Priority Setting Partnership (PSP), led by a Steering Group of people with M.E./CFS, carers and health professionals, has launched a survey today seeking to identify your priorities for research into M.E./CFS.

Sam Bromiley, Action for M.E.’s Participation and Influencing Officer and PSP Coordinator, says:

“In the survey we want to hear about what impact M.E./CFS has on you and what you would like research to find out. We want to hear your questions and ideas, no matter how big or small.”

The survey is open until Monday 5 July 2021 and has two sections. In the first section you can submit your questions and ideas; the second section has tick boxes that ask for some information about you. You can take a break and return to and review or edit your answers as many times as you need by clicking FINISH LATER at the end.

If you would like a paper copy, please email the project or call us 0117 927 9551. For help completing the survey by phone or text, please call The 25% M.E. Group charity on 07392 403591.

The PSP has lots of great resources to help you spread the word about the survey, including sample tweets, WhatsApp links, images for sharing on social media, a poster to print and templates for writing to your local newspaper and GP.

This project has been made possible by funding to Action for M.E. from the National Institute for Health Research, the Scottish Government Chief Scientist Office and the Medical Research Council. The PSP is facilitated by non-profit making initiative, the James Lind Alliance, using an approach tried and tested with a range of other illnesses, including MS and fibromyalgia.